Understanding Qualitative Research Methods
Understanding Qualitative Research Methods
Two means of discovering and using knowledge are inductive and deductive
reasoning:
Induction begins with the observation and measurement of phenomena and then
develops ideas and general theories about the universe of interest. In other wards, in
using inductive reasoning, one accepts or believes a finding about an individual and
then applies that belief to all similar individuals, assuming that it will be true for all.
Deduction a theoretical or mental process of reasoning by which the investigator
starts off with an idea, and develops a theory and hypothesis from it, then phenomena
are assessed in order to determine whether the theory is consistent with the
observations. In other wards, in using deductive reasoning, one accepts or believes a
general principle, then applies that principle to an individual case.
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The basic types of research can be categorized in several ways. For example, research
may be pure or applied, experimental or descriptive, clinical or laboratory.
A. Pure Applied
Abstract and general, concerned with Designed to answer a practical question, to
generating new theory, and gaining help people do their jobs better.
new knowledge for the knowledge‟s
sake.
B. Experimental Descriptive
Manipulating one variable to see its Describing a group, a situation, or an
effect on another variables, while individual to gain knowledge, which may
controlling for as many other be applied, to further groups or situations,
variables as possible and randomly as in case studies or trend analysis.
assigning subjects to groups.
C. Clinical Laboratory
Performed in the “real world” where Performed in “unreal” or laboratory
control over variables is quite surroundings that are tightly controlled.
difficult.
It is useful to remember that research is a circular process. The researcher starts with a
question in mind, goes through the investigative stages, and ends up with an answer to
the question. More often than not, further questions arise during the analysis and
interpretation of the data, leading to yet more research ideas, which is true in
quantitative research. But it may happen the other way round in the case of qualitative
research, “You are not putting together a puzzle, whose picture you already know.
You are constructing a picture which takes shape as you collect and examine the
parts”.
Whatever the entry point, the steps required to complete a research project follow a
logical sequence:
1. Identify a problem that needs to be solved or a question that needs to be answered.
2. Review the existing writing on that issue.
3. Formulate a question or hypothesis about the problem based on the reading.
4. Design a procedure that will address the question or hypothesis.
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5. Carry out the procedure.
6. Collect and interpret the findings.
7. Publish the answer to the question so that others may benefit from the identified
Knowledge.
Having followed the above research steps, to conduct a research one has to choose the
method to be used. That means what design you will use to answer the questions you
have posed. You must decide whether to use a qualitative or a quantitative research
design. In order to make decision, you must understand the underpinnings of each
type of research.
Qualitative research approach nowadays is growing and applied in many basic and
applied researches. Many texts are produced on how to go about it. This module is
prepared after referring those selected books listed at the reference section, by looking
some journals, and by incorporating the short notes that were given by the co-
producer. It needs further development and modifications by inserting examples on
qualitative researches performed in Ethiopia, in particular at Gondar College of
Medical Sciences.
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PRE-TEST
1. What is “qualitative research”?
2. List the methods for the application of qualitative research?
3. List down the main differences between qualitative
and quantitative research approaches?
4. Can we use both qualitative and quantitative research approaches
and methods in a research?
Yes No
5. Which one of them aims to generate hypothesis and to describe
rather than testing hypothesis and generalizing?
Quantitative Qualitative
6. Which favours counting rather than natural observation?
Quantitative Qualitative
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INTRODUCTION TO QUALITATIVE RESEARCH
Qualitative research methods allow the researcher to work with the primary and
secondary data (transcribed from interviews, observational notes, and documents), to
explore the nature of the stories people tell or the way they behave to look at the
different perspectives, understandings and interpretations that social beings bring to
each social situation in which they participate. Thus the methods used by the
researcher to collect and analyse qualitative data need to allow those data to be
collected and worked with in their „natural‟ form. The researcher‟s role is to listen,
observe, theory test (in the case of interviews), and then interpret or make sense of
what she/he sees and hears. As the extent and nature of the data cannot be known
before they are collected, the process of collecting and analysing qualitative data often
intermingle. The collection of some data from perhaps a small number of in-depth
interviews may be followed by analysis, which then helps the researcher to identify
further data that are needed to test out or develop his/her preliminary interpretations.
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For example, if some research was being conducted into patients‟ experiences of
waiting to see the doctors, initial interviews might suggest that people waiting by
themselves have a different experience from those waiting with children.
The researcher is in close touch with the real situations of the data, close to the
ground.
The definition of qualitative research methods is that they are methods for collection,
analysis, and interpretation of data on phenomena that are not easily reduced to
numbers or that might be destroyed by an attempt to do so, e.g. „love‟ is a
phenomenon that is fundamentally qualitative. Health is another phenomenon, which
could be said to be fundamentally qualitative in nature.
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consequent sampling of new people and settings is anticipated and planned for, as
best one can, in qualitative research designs.
C. A purposive sample
In qualitative research, participants (or settings, such as schools or organizations)
are carefully selected for inclusion, based on the possibility that each participant (or
setting) will expand the variability of the sample. Purposive sampling increases the
likelihood that variability common in any social phenomenon will be represented in
the data, in contrast to random sampling which tries to achieve variation through the
use of random selection and large sample size.
D. Data collection in the natural setting
Qualitative researchers are interested in understanding people‟s experience in
context. The natural setting is the place where the researcher is most likely to
discover, or uncover, what is to be known about the phenomenon of interest. The
characteristic of qualitative research again reflects the philosophic underpinnings of
the alternate paradigm. Personal meaning is tied to context. To explore how parents
go about informally teaching their children, one goes to the places where this might
happen, such as family homes, shopping centres, social events, etc. Extended
amounts of time with people in the places they inhabit is a critical feature of
indwelling, fostering the development of both explicit and tacit knowledge.
E. Emphasis on ‘human-as-instrument’
The qualitative researcher has the added responsibility of being both the collector of
relevant data – data whose relevance changes as the study proceeds – and the culler
of meaning from the data, which most often is in the form of people‟s words and
actions. It is possible to include other formal instruments, such as questionnaires or
tests, in a qualitative study.
F. Qualitative methods of data collection
The data of qualitative inquiry is most often people‟s words and actions, and thus
requires methods that allow the researcher to capture language and behaviour. The
most useful ways of gathering these forms of data are participant observation, in-
depth interviews, group interviews, and the collection of relevant documents. The
researcher in the form of field notes collects observation and interview data and
audiotaped interviews, which are later transcribed for use in data analysis. There is
also some qualitative research being done with photographs and videotaped
observations as primary sources of data.
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G. Early and ongoing inductive data analysis
The characteristics of qualitative research described so far point to two important
characteristics of qualitative data analysis: a/. It is an going research activity, in
contrast to an end stage, when the design is emergent; b/. It is primarily inductive.
Analysis begins when one has accumulated a subset of the data, providing an
opportunity for the salient aspects of the phenomenon under study to begin to
emerge. Pursuing the relevant persons, settings, follows these initial leads or
documents that will help illuminate the phenomenon of interest. In other words,
there is a broadening or narrowing of the focus of inquiry as the data suggest it.
What is important is not predetermined by the researcher. Within the broad
boundaries of the researcher‟s focus of inquiry, the data studied for what is
meaningful to the participants in the study or „participant perspectives‟. The
outcomes of the research study evolve from the systematic building of
homogeneous categories of meaning inductively derived from the data.
H. A case study approach to reporting research outcomes
The results of a qualitative research study are most effectively presented with a rich
narrative, sometimes referred to as a case study. The number of cases varies with
each study, from one case to several. With book length reports, the researcher has an
opportunity to provide many excerpts from the actual data that let the participants
speak for themselves – in word or action – thereby giving the reader sufficient
information for understanding the research outcomes. In article length reports, the
researcher by necessity is briefer, using a modified case-study mode of reporting. A
qualitative research report characterised by rich description should provide the
reader with enough information to determine whether the findings of the study
possibly apply to other people or settings.
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Figure Showing Characteristics of Qualitative Research
Emergent Design
Focus of inquiry
Qualitative methods
of data collection in
natural settings
Research outcomes
presented using a
case study approach
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2. PRICNCIPLES
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Positivists are not concerned with measuring the meaning of situations to people
because they cannot be measured in a scientific and objective manner.
Belief in objective nature of reality that can be studied and understood.
Experimental design is the model for social research.
Emphasis on the quantification of observations using neutral/standardised
language.
Discounts subjective understandings and intentions of humans.
Theory testing.
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Thus in qualitative research the sample size cannot often be determined in advance, in
the way that is often can be in quantitative research.
In many forms of qualitative research what limits the numbers required is the arrival
at a point at which one seems to have “bottomed the problem”, or where additional
data collection seems to reveal no new information or insight. This moment is known
as “saturation” and this is a matter of judgement. Sometimes the limitations on the
sampling frame are one of feasibility or funding.
Another feature of qualitative research is the nature of the end product. Data in
quantitative research are clearly numeric, and can usually be condensed by the use of
mathematical tools, most notable those of statistics. The conclusion can usually also
be stated in the concise form of theory or hypothesis with, ideally, some
measurements of the precision of that conclusion, such as confidence interval or P
value.
In qualitative research the data usually take the form of verbatim quotations from
research participants, often referred to as respondents or informants. Often these
quotations will be organized into a framework or template, which illustrates how they
support each other in reaching the conclusions. The conclusions will sometimes be
expressed as a theory or hypothesis, but more often as a social construction or model
of how the world is with regard to the topic of the study. This clearly presents
difficulties in communicating the research results within the traditional IMRAD
(Introduction, Methods, Results, and Discussion) framework imposed by the most
scientific journals.
The end product of qualitative research is also more likely to be a better or clearer
description of how things are, rather than predictive of how things might be. That is to
say that qualitative research is more naturalistic and descriptive than experimental.
Qualitative research methods can be used to generate descriptions and hypothesis, and
quantitative research methods can be used to test hypothesis. Thus anything
concluded from a piece of qualitative research is likely to be probabilistic rather than
deterministic, and is more contexts specific then generalizable.
Naturalism
Understanding health behaviour in its everyday context.
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Interpretation
- Investigating how patients and practitioners make sense of certain facts.
- Subjective meanings are crucial to an understanding of how treatment regimes
integrate with everyday life.
- People don‟t define themselves as having asthma thought acute/ „bad chest‟.
- Strategies to avoid the onset of attacks – extreme? But not as bad as having to take
daily medicine=> Stigma.
Process
- Any interventions or changes need to be accommodated in person‟s biography.
- May have to manage drugs long term – asthma identity.
- People with epilepsy come off drugs to test themselves.
Interaction and relativism
- Focus on the relationships between people and the fact there are multiple realities.
- For example, doctor and the patient may have different views of reality, e.g.
research on difficult patients crossed off GP lists.
- Also research on medication for asthma patients shows it can decrease morbidity
and mortality.
- Patients have negative views about medication. Worry about dependence on drugs
and long- term effects.
Realities
“Regarding patients‟ views of reality as ignorant or misguided and attempting to
persuade them of the value of the biomedical approach have limited value in
increasing adherence, and the need to integrate patient‟ perspectives has been
recognized recently”. (Green and Britten, 1998:1231).
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3. APPLICATION AND TECHNIQUES
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General Components of Qualitative Research
The Problem
Qualitative research begins with a problem or issue of interest that guides the entire
project. It will dictate the style of the research design, the data collection techniques,
and even the presentation of the findings.
Theory
No study, naturalistic or other wise can be conducted without an underlying theory or
model. It may be a formal anthropological or psychosocial theory or a personal model
about how things work, but theory is crucial in the definition of the problem and in
deciding how to tackle it.
Theories need not be elaborate sets of constructs, assumptions, propositions, or
generalizations. They can be personal theories about how the world, or some small
part of it, works.
Research Questions
Although the qualitative researcher will have developed some research questions
during the research design phase, any more questions will typically be generated
during the initial survey phase of fieldwork.
Research questions are fluid in naturalistic research, unlike the fixed hypothesis mode
of quantitative research. Some questions may be dropped as irrelevant; some may be
modified as additional data are gathered; and new questions may be added as the
study proceeds.
Participant Selection
Qualitative research can be characterized as an inquiry in which the investigator
observes and questions participants in their own setting, to learn their perspective on
things – a naturalistic inquiry. Therefore, researchers will use purposeful sampling to
choose participants who can offer the fullest and most relevant information about the
topic under study. In purposeful sampling, you must establish the criteria or
conditions necessary to be included in the study, the purposefully, choose a case or
cases that match these criteria. The participants who turn out to be the most reliable
and informative become the key informants. Others may have useful information to
add and will be seen as secondary informants.
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There are several types of purposeful sampling, and they are chosen according to the
researcher‟s needs for a particular study. Some of the most popular types are:
Typical: A case is chosen because it is thought to be like the majority (i.e.
typical). For example, a therapist might want to see how a typical person with
hemiplegia proceeds through a particular rehabilitation program.
Extreme or deviant: After the norm for a typical case is established, the
researcher might want to explore extreme cases in order to make a comparison, for
example, a person with hemiplegia who does not complete the rehabilitation
program or a person who completes the program in an extremely short time.
Comprehensive: A situation in which all the cases in a sample can be examined,
fro example, all the people with hemiplegia completing rehabilitation program
with a particular treatment regimen.
Unique-case selection: Selection is based on unique or rare attributes, for
example, a person with double lower extremity amputations who becomes an
athlete.
Reputational-case selection: A case is chosen on the recommendation of
experienced experts, based on its reputation, for example, a highly successful
caregiver support program for persons caring for a spouse with Alzheimer‟s
disease. The program is recommended by an expert in caregiver support programs
because of its excellent reputation.
Comparable-case selection: Selecting cases on the same relevant characteristics
over a period of time in order to compare results for replication, for example,
selecting a person with hemiplegia who successfully completes a rehabilitation
program, for each month, over a 6-month program.
Critical case selection: The one case that makes the point dramatically, for
example, a program succeeding in a particularly difficult location, a successful
program with especially low overhead costs, or a rehabilitative program showing
an extremely high success rate with severely disabled clients.
Convenience sample: The case or cases that can be studied most easily, cheaply,
or quickly, for example, persons with hemiplegia participating in the rehabilitation
program run by the researcher.
Data Collection
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Often, the only data collection “instruments” used during qualitative research are the
investigators themselves. Qualitative researchers generally collect data via
observation, interviewing, and tape recording in the field. Because they are the ones
observing the events and asking the questions, they are considered the data collection
“instruments”. Some of the actual processes of collecting data include observation,
interviewing, filming, photography, and record and artefact review.
Data Analysis
Qualitative data analysis is the process of systematically organizing the field notes,
interview transcripts, and other accumulated materials until you understand them in
such a way as to address the research questions and can present that understanding to
others. Several techniques can be used to analyze qualitative data; the technique
chosen depends on the goal of the study.
Report Writing
Naturalistic reports generally take the form of long narratives, sometimes interspersed
with pictorial presentations. There are many formats to choose from. You will still
need a beginning, middle, and an end.
The beginning:
The beginning portion of the report should include a general background to help
readers understand the focus of your paper. The introduction often concludes with a
description of the design of the rest of the paper. The description should include a
discussion of the research methods and techniques used, the time and length of the
study, the number of settings and subjects, the nature of the data, where and how the
documents were located, researcher-subject relations, checks on data, and other
information that might help the reader evaluate the soundness of your study.
The middle:
The middle of the paper makes up the bulk of the work. This where you argue your
thesis, present your theme, and illuminate your topic. Everything in the core of the
paper should relate to the focus specified in the introduction. The material comes from
the data analysis and can be patterns, themes, and relationships that arose from coding
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and categorizing the data. Use the most salient quotations you can find judiciously to
illustrate the main points of the thesis.
The end:
The end section should be written as a conclusion. Often the focus is decisively
restated, the arguments reviewed, and the implications elaborated.
Exercise 1 and 2
Instruction
Read the two articles on Annex IV-A and Annex IV-B (on pages 50 and 58), and try
to address the following questions.
Questions to consider
Does the research allow respondents to shape the research agenda (questions)
and interview content (responses), e.g. how structured is the schedule?
What kinds of questions are asked? e.g. are some questions more qualitative?
Consider whether there is probing, e.g. drawing out of the explanations?
Is there a set order to the questions?
Are the interviews transcribed? How long are the interviews?
How is the analysis conducted, e.g. what is done with the responses/ text?
What is the theoretical position of the researchers?
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Read this article and make notes about its quality, Address the following issues in
your investigation:
In what way is the study qualitative?
Is the sampling frame adequate?
Are the results valid?
Are the results generalizable?
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- How can systems be improved?
- What strategies are required to overcome identified problems?
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using a combination of unstructured interviews and record research to supplement
and validate the observations.
Participant Observation
It is a qualitative observational technique, which involves the observer
(researcher) in the activities of the group being observed. Events are observed and
recorded, together with the interpretation and explanation of them by the other
„actors‟ (participants). It is the best method for understanding the experiences of
people, and the meanings they attach to them, although the types of observations
are limited by the social role undertaken by the observer.
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In overt observation, access is usually obtained through negotiations with a
„gatekeeper‟ (e.g. the head of an organization). The first step is writing to the heads
of organizations on the official headed paper about the aims, nature and
confidentiality of the study, and its potential value. This permission is often given
without consulting the members being studied, and the investigator needs to be aware
of this, because the observations then become covert.
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“The primary advantage of observational methods is… to gain access to behaviour of
which individuals themselves may provide biased accounts, or indeed be unaware.
However, the primary advantage is that it is particularly labour intensive in terms of
both data collection and analysis” (Fitzpatrick and Boulton, 1996, 124-6).
Note
Easier to be an observer in a public rather than a private place.
Need to be in the right place at the right time.
Can be unproductive and time wasting.
Observe what people do as well as how they talk about it.
Observer needs to keep careful field notes.
Be particularly well in looking at doctor-patient relations and community studies.
(Ethnography: studying human behaviour in its natural context).
Use structured/ unstructured questionnaires.
Problems:
- Observer effect (Hawthorne effect)
- Rich data but may be hard to quantify or replicate.
B. INTERVIEWS
There are different types of interviews:
Structured
Standardised questions; closed questions; set order of questions
Semi-structured
Open and closed questions together or the fixed interview guide approach where
agenda set but open questions? Pre-determined questions.
In-depth (Unstructured/focused)
Issues covered in detail; respondent leads the interviews/sets the agenda; no fixed
order? Method of analysis?
In-depth or Semi-structured Interviews
An in-depth interview is a conversion between the researcher and the subject about
the research area or topic. It is designed to allow the respondent to tell their story in
their own way, while ensuring that the aspects the researcher wants to explore are
covered. It also allows the subject matter to be explored in some depth to discover the
nature of the experience, feelings and perceptions of the respondent
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Characteristics of structured questionnaires and semi-structured interviews
Structured Questionnaires Semi-structured Interviews
Asks the same questions of each Allows the respondent to express
respondent using the same wording their ideas in their own way using and
typically has a limited range of their own words and determining
possible answers. the range of aspects and issues
they want to raise.
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Ending the Interview
As the interview draws to its close the researcher moves on to less sensitive and more
general matters. The respondent should be reminded again that the interview is
confidential, and the researcher should ensure that the respondent is content with the
way in which the interview has developed.
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Avoid double questions, e.g. „How do you feel about going there with
other people and having to do what they want to do?‟
Avoid leading questions, e.g. „don‟t you think it would be better if…?‟
Don‟t sum up what people say: rather, say:
- „Am I right in thinking that you…?
Don‟t interrupt the flow if they don‟t immediately answer the question,
but don‟t let them stray too far away from the topic – gently bring them
back!
„That‟s very interesting; I wonder if we could now move on to talk about…?
C. FOCUS GROUPS
Focus groups are used as a research method to find out what groups of people think
and how they discuss ideas together. The focus group therefore attempts to recreate a
natural phenomenon: a group of people with something in common discussing an
issue, an experience or an event. A focus group is not used to find out what each
individual thinks or has experienced, but rather how the group discusses the topic
being researched. The group will often be given a task. The group discussion is then
structured to allow the group to discuss the issue before moving on to complete the
task, which may be, for example, to identify the most important point that have been
raised in the discussion, or to prioritise areas for improvement in service provision.
The focus group facilitator prepares a guide to help in structuring the discussion while
allowing the interaction between the members of the group to develop.
A focus group is:
A group discussion i.e. group discusses views with each other.
8-10 homogenous group.
Focused on a particular topic.
Have members who have something in common.
Led by a facilitator.
Time limited.
Task limited.
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Beginning - getting people talking, relating experiences and ideas.
Middle - helping people to focus by asking more specific questions.
End - completing the group task.
Advantages:
- May encourage people to participate who otherwise may not want to.
- Inter-interviewee ideas.
- May be able to generate breadth quicker than interviews.
- Quick method for establishing parameters.
Disadvantages:
- Some topics may be too „sensitive‟ and too personal.
- Deviant views may be inhibited.
D. DOCUMENT
Documentary evidence
- Independent evidence e.g. medical records, patient diaries.
- May provide an historical context.
- Useful for subjects difficult to study – „inside story‟.
- Autobiographical/ semi-autobiographical material valuable to both researcher
and Health professionals.
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- The whole phenomenon of „deviance‟ (in its sociological sense) is best studied by
qualitative techniques.
- Particularly suited to understanding groups of people and their behaviour, in
addition to that of individual people. Thus they can be used to understand the
behaviour and needs of particular subgroups of society, such as single parents, the
elderly, ethnic minorities, and even such sociologically bizarre groups as doctors.
In short qualitative methods are good to:
Study of explanatory models (e.g. Health Belief Model)
Comparing different perspectives of different groups (e.g. doctors and patients)
Identifying social networks
Assessing the social impact of events
Studying medical pluralism
Study deviance (e.g. non-compliance)
Understanding behaviour of social groups.
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Interviews are usually classified as structured, in-depth (unstructured), and semi-
structured. There is no such thing as a totally unstructured interview, as the
participants structure all interviews in real time, either consciously or unconsciously.
‘Focused interview’ is another term you will hear which suggests more rather than
less structure.
Some other methodologies are
- Ethnology: the actual study of peoples and culture.
- Ethnography: the description of peoples and culture.
- Ethnomethodology: encompasses some of the methods used.
All derived from the Greek ethnos, meaning nation. It is the same word that give rise
to the more commonly word ‘ethnic’, referring to a supposedly culturally
homogenous group.
There is a host of other terms that describe various aspects of the qualitative research
tradition. Many depend on the analysis of artefacts, usually written such as archives,
literature, reports, etc. Such documentary materials is analysed using techniques
broadly described as ‘contents analysis’.
Other methods rely rather more on oral accounts and histories, sometimes described
as ‘narratives’.
Other less familiar and conceptually more difficult terms include phenomenology,
hermeneutics and Grounded theory, etc. Grounded theory looked at more detail and it
is a very common methodology approved by health service researchers.
In summary, some examples of qualitative research methods are:
Participant Observation
Non-participant observation
Unstructured Interviews
Semi-structured interviews
Focused interviews
Methodologies are:
Ethnology
Ethnography
Pathography (= the skill of ethnography applied to the particular context of
medicine)
Content analysis
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5. DATA COLLECTION AND DATA ANALYSIS IN QUALITATIVE
RESEARCH: FRAME WORK APPROACH AND GROUNDED THEORY
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The two main approaches to data collection and data analysis are:
a. Framework- practical and quicker
b. Grounded Theory- more theoretical, sociological and extensive.
Framework Analysis
Used to analyse in-depth and focus group data.
Facilitates systematic analysis.
Based on content analysis method.
Involves summarizing and classifying data within a thematic framework (code
book).
Relies on „skills‟ of the analyst.
Stage I. Familiarization
Fresh look at the data as analyst rather than collector.
Gain an overview of the data collected.
Need to see the data (listening to tapes/reading transcripts)
Selection of interviews to ensure full range if time limits.
Make notes on key ideas and recurrent themes.
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Process of systematically applying the thematic framework to the data.
Provides a mechanism for labelling data.
Makes data manageable.
Keep index broad at first.
Make in pencil initial categories in the margins of each transcript.
Be flexible about categories.
Indexing ensures process of analysis is visible to others.
Grounded Theory
The grounded theory is a method for discovering theories, concepts, hypothesis, and
propositions directly from data, rather than from prior assumptions, other research, or
existing theoretical frameworks.
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In social science it is common to use „grounded theory‟ approach in qualitative
approach. This refers to a process of discovering theory from data that have been
systematically gathered and analysed: „generating a theory from data means that most
hypothesis and concepts not only come from the data, but are systematically worked
out in relation to the data during the course of the research‟ (Glaser and Strauss
1967). It is a theory that is inductively derived from the study of the phenomena it
represents rather than deductive. Thus data gathering, analysis and theory have a
reciprocal relationship. In social science, where it is not always possible to control the
conditions under which social phenomena are observed, there is greater need to build
theory inductively from several observations before a predictive, explanatory theory
can be derived.
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researcher actively seeks to develop understandings and hypotheses as to what is
going on and how it is ordered. This stage is essential in developing a theory of the
phenomenon. These ideas are then tested deductively through further data collection
and analysis. Thus, doing grounded theory involves a sequence of deductive and
inductive thinking throughout the process. The inductive label is often given to
grounded theory because of its emphasis on the principle that all aspects of this
process must be grounded in the data.” (Murray and Chamberlain, 1999: 184.
Sampling is about the explicit generation of information to refine and develop theory
rather than the notion of randomness or representation.
Saturation of the theory is when no new categories are found which relate to the
central issue or process being researched, and the theory can account for all the data
that have been obtained (check by examining the negative instances).
Coding: The process of making the data manageable by classifying into topics and
sub topics and attaching labels to concepts and themes that appear in the data.
- A priori labels – are those that are formulated before the research has begun.
- Inductive codes – emerge out of the process of analysis and collection of data.
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Constant comparative method
Involves comparing incidents, informants or categories systematically for differences
between them. This will promote the identification of the properties of the categories
(for example when does this category not apply), and also of the links between
properties. Constant comparative method interweaved with other processes such as
memo writing, questioning and hypothesis testing. It is a method of generating theory.
Theory Development
A. Analytical questioning
Early stage questioning:
What is the event characteristic of?
Whom does it apply to?
Where does it occur? Why is
it happening?
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Diagrams: visual representations of the analysis, which provide an overview of it.
Assists in identifying relationships between categories and showing where there are
theoretical gaps.
C. Core categories
The predominant category is the category that ties all other categories together. It can
account for the wide variation in the phenomenon and links all the categories together.
Often it is a social process and typically only one in a Grounded Theory analysis.
Examples:
Normalcy - Aftermath of coronary artery bypass surgery (Keller, 1991)
Taboo – Patients experiences of dying with cancer (Exley, 1999)
Stigma – Mental health problems (Glaser and Strauss).
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6. ASSESSING QUALITY IN QUALITATIVE RESEARCH
Data collection and analysis: Were the data collection and analysis procedures
systematic? Did the analysis incorporate all the observations? To what extent did the
analysis develop concepts that explained observations? Was it possible to follow the
iteration? Did the researcher search for disconfirming cases? Is evidence provided in
support of the analysis? Is sufficient original material presented?
Reflexivity of the account: Did the researcher assess the likely impact of the
methods used on the data obtained? Was sufficient data included in the reports of the
study to provide evidence for the conclusions that were drawn? (Mays and Pope
(2000). Assessing quality in qualitative research).
Worth or relevance: was this piece of work worth doing at all? Has it contributed
usefully to knowledge?
Clarity of research question: if not at all the outset of the study was it clear by
the end? Was the researcher able to set aside his/her research pre-conceptions?
Appropriateness of the design of the question: would a different method have
been more appropriate? For example, if a causal hypothesis was being tested, was
a qualitative approach appropriate?
Context: is the context adequately described so that the reader could relate the
findings to other settings? Is there evidence that supporting material is
representative? Is there evidence to establish validity? Is there evidence of efforts
to establish reliability? Is the study set in a broader context?
37
Shared concern with the meaning of events for people
Holistic approach
Small numbers are acceptable
Depth understanding may be acquired over time
Access to „private worlds‟.
In pairs consider the following scenarios and consider how you would conduct some
qualitative research with group and the pros and cons of using interviews, observation
or focus groups with each:
GPs perceptions and experiences of providing care for refugees and asylum
seekers.
38
7. QUALITATIVE VERSUS QUANTIATIVE RESEARECH APPROACHES
The following summarized points will help the researcher to compare and decide which
type of research method to choose for his/her study.
A. Purpose
Quantitative: The purpose is theory testing: to establish facts, show causal explanations
and relationships between variables, allow prediction, and strive for generalizability.
Qualitative: The purpose is to develop concepts that will sensitize readers to different
cultures, describe multiple realities and interpretations, develop grounded theory, and
develop an understanding of the perspectives of the actors and of that particular
setting.
B. Designs
Quantitative: The designs are predetermined and structured, and do not change during
the course of the study; they are formal and specific according to a defined plan of
operation.
Qualitative: The design fall at the other end of the spectrum. They are general in nature
rather than confined, evolving through out the study and remaining flexible to allow
for change; they are used as a “hunch” as to how to proceed.
C. Data
Quantitative: The data gathered in quantitative research designs are quantifiable and
statistical, using counts and measures. Variables are defined ahead of time, and data
are managed according to the procedures outlined in the research proposal.
Qualitative: Data gathered in qualitative designs are descriptive and deal with qualities.
They may consist of field notes, artefacts, people‟s own words, personal documents,
or official documents. Qualitative data are extensive and difficult to manage. Their
management requires specific techniques, just as numerical data do.
- Qualitative research can produce vast amount of data. These may include:
39
Verbatim notes or transcribed recordings of interviews or focus groups,
Jotted notes and more detailed “field notes” of observational research,
A diary or chronological account, and
The researcher‟s reflective notes made during the research.
- Transcripts and notes are the raw data of the research. They provide a descriptive
record of the research, but they cannot provide explanations. The researcher has to
make sense of the data by sifting and interpreting them.
D. Subject Samples
Quantitative: The subject samples tend to be large, requiring random selection to yield
precisely defined subjects who will be typical of those in the population. There is
usually a control group to control for extraneous variables.
40
Quantitative enquiry:
Purpose: forecast, estimate population parameters, identify trends; explore
correlation and causation, indicate frequency, and make statistical inferences.
Achieved by: using random, probability samples; large samples, minimize sample
error, increase confidence; statistical representatives.
41
F. Techniques or Methods
Quantitative: Those used in quantitative methods include experiments and quasi-
experiments, structured surveys, structured interviewing (market research),
structured observation/ formal observation (quantifiable boxes), data sets,
manipulation, control and statistical analysis of data.
Qualitative: The researcher is often the only “tool” for data collection. He/she may
make use of guiding questions, as in an interview, as well as using mechanical tools
such as audio or video tape recorders and a transcriber.
H. Data Analysis
Quantitative: Data analysis occurs at the conclusion of the data collection in a
quantitative study. It tends to be deductive and tends to use statistical manipulation
in accordance with the proposal guidelines. It is a straightforward operation that is
often complicated rather than speedily.
A fundamental difference is that the quantitative researcher seeks evidence to prove
or disprove hypothesis that were developed before the study.
42
In qualitative data analysis theory is built as the data are grouped and analyzed –
theory emerges from the bottom up.
In much qualitative research the analytical process begins during data collection as
the data already gathered are analysed and shape the ongoing data collection. This
sequential analysis has the advantage of following the researcher to go back and
refine questions, develop hypotheses, and pursue emerging avenues of inquiry in
further depth. Crucially, it also enables the researcher to look for deviant or negative
cases; that is, examples of talk or events that run counter to the emerging
propositions or hypotheses and can be used to refine them. Such continuous analysis
is almost inevitable in qualitative research.
The analysis:
In general, qualitative research does not seek to quantify data. Simple counts are
sometimes used and may provide a useful summary of some aspects of the
analysis.
Qualitative sampling strategies do not aim to identify a statistically
representative set of respondents.
In most qualitative analysis the data are preserved in their textual form and
“indexed” to generate or develop analytical categories and theoretical
explanations.
Qualitative research uses analytical categories to describe and explain social
phenomena. These categories may be derived inductively, i.e. obtained gradually
from the data- or used deductively, either at the beginning or part way through
the analysis as a way of approaching the data. Deductive analysis is less common
in qualitative research.
The term grounded theory is used to describe the inductive process of identifying
analytical categories as they emerge from the data (developing hypothesis from the
ground or research field upwards rather defining them a priori).
All the data relevant to each category are identified and examined using a process
called constant comparison, in which each item is checked or compared with the
rest of the data to establish analytical categories. The key point about this process
is that it is inclusive; categories are added to reflect as many of the nuances in the
data as possible, rather than reducing the data to a few numerical codes.
43
Analysing qualitative data is not a simple or quick task. Done properly, it is
systematic and rigorous, and therefore labour-intensive and time consuming.
Good qualitative analysis relies on the skill, vision and integrity of the researcher
doing that analysis.
I. Outcome
Quantitative: Quantitative research studies will answer specific research questions by
producing statistical evidence to prove a point. While the researcher certainly
discusses the findings, there is in common saying that the data, meaning the statistical
outcomes, speak for themselves.
Qualitative: The outcome of qualitative research, more often than not, is a lengthy
descriptive document, presenting the data in words than rather than numbers. The
write-up is rich, textural, anecdotal, and full of thick description in narrative form.
The final analysis provides either verifications of an existing theory or new-grounded
theory, together with well-formulated research questions that now need to be
investigated.
J. Problems
Quantitative:
a. The researcher may have difficulty controlling variables that will affect the
study;
b. The study‟s validity may be called into questions, as some may feel
that highly controlled experimental studies have little relevance to real
life;
c. Obtrusiveness the investigator and data collection methods may affect the
subjects or environment; and
d. The researcher (or readers) may be tempted to rectify the topic variables- that is
to regard these abstractions as if they were material things.
Qualitative:
a. The non-standardization of procedures;
b. The difficulty of managing large amounts of data and data reduction methods;
c. The extremely time-consuming nature of the whole process; and
44
d. The difficulty of using naturalistic methods to study large populations.
K. Other Points
Quantitative:
What does quantitative research involve?
How often? – How many Xs are there?
Collects numbers e.g. the X% of pregnant women smoke and X% of people
would like to give up.
Begins with idea/hypotheses
By deduction allows conclusions to be drawn
Strength is reliability (repeatability).
Available data, e.g. official statistics (Census, GHS= general health survey)
Experiments, e.g. RCT = randomised control trial
Surveys – Cross sectional (GHS)/ cohort
- most common social research tool
- large number of people can be questioned relatively quickly
- results are easily quantified and analysed
- limited application (simple factual information but not able to extract meanings).
Reliable: measure consistently. Reliability through standardized tools, focus
on measuring patterns of behaviour
Valid: measure what they are claiming to measure
Standardise: published questionnaires with established properties of validity
and reliability.
Qualitative
What does qualitative research involve?
What? Why? How?
Collects words, e.g. “I can‟t cope with the stress of giving up smoking”.
Generates ideas, hypothesis and future research questions
Often inductive
Strength is validity – closeness to the truth. Validity focus on how people
behave, what people actually mean when they describe their behaviour/ attitudes.
45
Aims to make sense of phenomena in terms of the meanings that people bring to
them.
Develop concepts to help understand social phenomena in a natural setting.
What stops people giving up smoking?
- Need to listen to what people have to say, understand their perspective.
- Emphasises meaning, experience and views of respondents.
Able to uncover information which is difficult to get at
Focus on meaning of individuals‟ or organizations‟ behaviour
Explores respondents‟ own experience
Data = rich in detail
Closer to the respondents‟ perceived world
Giving people a voice
Does not produce quantified answers.
Thus, corresponding to the concept of reliability there is the concept of dependability, and
corresponding to the concept of validity is the concept of credibility. The means
46
to these ends are also described, and include such techniques as triangulation deriving
(data from several perspectives or sources).
It is most important to understand that qualitative and quantitative researches are
rather complementary approaches, which when used together, will usually reveal
more about the world and how it works than will either used alone. Certain topics
lending themselves more naturally to one or other approaches.
The kind of knowledge produced by such different endeavours is different, but neither
type is any absolute sense superior or inferior to the other, and in the progress of
medicine, as was stressed in the introduction, both types of knowledge are required.
In summary:
Both approaches now widely used in health services researches.
Understanding social research methods is important for appraising published
research.
Be wary of artificially dividing qualitative and quantitative research.
Important to use the right method for the research question.
47
Exercise 4. ‘The Warring Paradigms’
Aim: To consolidate and apply your understanding of the main features of qualitative
and quantitative methods.
The Task: You will be given a table showing the features of qualitative and quantitative
approaches. This table will be incorrect. It is your task to re-shuffle the answers so
that they are in the right places. Individually select the appropriate answer for each of
the boxes in the table.
48
Analytic units Patterns and natural events Pre-defined variables
Quality criterion Rigour/ proof/ evidence/ statistical Relevance/ plausibility/ illustrativeness/
significance responsiveness to subjects‟ experiences
Source of theory A prior/ confirmation/ rejection Grounded/ emergent
Nature of truth Only time and context bound Time and context-free generalizations are
statements working hypothesis are possible possible
Image of reality Multiple, holistic, dynamic, Singular, tangible, static, external
socially constructed
Research product Stress the validity of research Stress meaningfulness of research findings
findings for scholarly community to both scholarly and user communities
8. RESEARCHER EFFECTS
The researcher can affect the findings of a qualitative research study in four ways:
A. Program participants behaving differently because of the presence of the
researcher. There may be a “halo effect” so that staff perform in an exemplary
manner, or there may be so much tension and anxiety that staff perform below par.
49
GLOSSARY
50
Focus groups a research method of interviewing people while they are interacting in
small groups.
Grounded theory the investigator develops conceptual categories from the data and
then makes new observations to develop these categories. Hypotheses
are derived directly from the data.
Holistic the phenomenon of interest is viewed in terms of the relationships
between each level of the system. Holism identifies the whole of the
social system as more than the simple sum of individuals within it.
Holism is at the centre of sociological theory.
Hypothesis a tentative solution to a research question, expressed in the form of a
prediction about the relationship between the dependent and
independent variables.
Hypothetico-deductive method beginning with a theory and, in a deductive way,
deriving testable hypothesis from it, the hypothesis are then tested by
gathering and analyzing data and the theory is supported or refuted.
Information bias misclassification of, for example, people‟s responses due to error
or bias.
Interpretive approach the theoretical perspective that social scientists must
include the meaning that social actors give to events and behaviour;
symbolic interactionists and ethnomethodologists hold interpretive
perspectives and subscribe to the philosophy of phenomenology.
Interview a research method, which involves a trained interviewer asking
questions and recording respondents‟ replies. Interview questions can
be structured (printed on a questionnaire with set question wording and
pre-coded response categories), semi-structured (mostly open-ended
questions, i.e. with no pre-coded response categories) or unstructured
and in-depth (listed topics about which interviewers probe respondents
for their views and experiences).
Leading question question phrased in a way, which leads the respondent to believe
that a certain reply, is expected.
Naturalistic research descriptive research in natural, unmanipulated, social settings
using les obtrusive, qualitative method.
Need includes felt need (want), expressed need (demand), normative need
(experts‟ definitions which can change over time in response to
51
knowledge) and comparative need (comparisons with others and
considerations of equity).
Observation a research method in which the investigator systematically watches
listens to and records the phenomenon of interest.
P value P is the symbol of probability associated with the outcome of a test of a
null hypothesis (i.e. the probability that an observed inferential statistic
occurred by chance, as in P<0.05); p (small p) is used for proportions.
Statistical tests exist which, in appropriate study designs and samples,
can test for the probability of observing the values obtained.
Paradigm a set of ideas (hypothesis) about the phenomena under inquiry.
Paradigm shift this occurs, over time, evidence accumulates which refutes, or is
incompatible with, the paradigm, and thus the old paradigm is replaced
by the new one.
Participant observation a research method in which the investigator takes part in
(i.e. has a „role‟ in) the social phenomenon of interest.
Perspective a way of interpreting empirical phenomena.
Phenomenology the philosophical belief that, unlike matter, humans have a
consciousness. They interpret and experience the world in terms of
meanings and actively construct an individual social reality.
Phenomenological sociology based on the concept of social structure of reality
through the social interaction of people (social actors), who use
symbols to interpret each other and assign meanings to perceptions and
experiences.
Positivism aims to discover laws using quantitative methods and emphasises
positive facts. It assumes that human behaviour is a reaction to (i.e.
determined by) external stimuli and that is possible to observe and
measure social phenomena, using the principles of the natural scientist,
and to establish a reliable and valid body of knowledge about its
operation based on empiricism and the hypothetico-deductive method.
Precision the ability of a measure to detect small changes in an attribute.
Prospective study collection of data over the forward passage of time (future).
Qualitative research social research, which carried, out in the field (natural settings)
and analysed largely in non-statistical ways.
52
Quantitative research the measurement and analysis of observations in a numerical
way.
Random error the errors in the study (usually from the sampling) randomly vary
and sum to zero over enough cases; random error results in an estimate
being equally likely to be above or below the true value.
Random sampling this gives each of the units in the target population a calculable
and non-zero probability of being selected.
Randomisation assignment at random of people to experimental and control groups
in experiments.
Reactive (Hawthorne) effect a guinea pig effect (awareness of being studied). If
people feel they are being tested they may feel the need to create a
good impression, or if the study stimulates new interest in the topic
under investigation then the results will be distorted.
Relativism no single system of knowledge or beliefs (or „social facts‟) exists; it is
dependent on context (i.e. culture).
Reliability the extent to which the measure is consistent and minimises random
error (its repeatability).
Research design this refers to the strategy of the research - how the sampling is
conducted, whether a descriptive or experimental design is selected,
whether control groups are needed, what variables need to be
operationalised and measured, what analysis will be conducted.
Research methods, or techniques these are methods of data collection – interview,
telephone, postal surveys, diaries and analysis of documents,
observational methods and so on. They are also the instruments to be
used.
Responsiveness a measure of the association between the change in the observed
score and the change in the true value of the construct.
Sample a subset of a population.
Sampling techniques used to obtain a subset of a population without the expense
of conducting a census (gathering of information from all members of
a population).
Sampling distribution the distribution of means of all possible different samples of
n observations that can be obtained from this population. It has a mean
53
equal to the population mean. It is a normal distribution (assuming the
sample size is large enough).
Sampling error any sample is just one of an almost infinite number that might have
been selected, all of which can produce slightly different estimates.
Sampling error is the probability that any one sample is not completely
representative of the population from which it was drawn.
Sampling frame a list of the sampling units from which the sample can be drawn.
Selection bias bias in the sample obtained.
Sensitivity ability of the actual gradations in the scale‟s scores to reflect these
changes adequately; probability of correctly identified affected
person („case‟).
Sensitivity analysis a method for making plausible assumptions about the margins
of errors in the results, and assessing whether they affect the
implications of the results. The margins of error can be calculated
using the confidence intervals of the results or they can be guessed.
Simple random sample a probability sampling method that gives each sampling
unit an equal chance of being selected in the sample.
Social stratification the structured inequalities that exist between social groups
owing to the unequal and systematic distribution of rewards and
resources.
Specificity a measure of the probability of correctly identifying a non-affected
person (i.e. „non-case‟) with the measure.
Standard deviation this is the most common measure of dispersion. It is based on
the difference of values from the mean value (the spread of
individuals results round a mean value); it is the square root of the
arithmetic mean of the squared deviations from the mean.
Standard error this a measure of the uncertainty in a sample statistic; the standard
deviation of the sampling distribution is called the standard error. It
is related to the population variation. The standard error of a mean
is the standard deviation of the population divided by the square
root of the sample size.
Statistical significance significance at the 0.05 per cent level means that five times
in 100 the results could have occurred by chance, i.e. if the test was
54
performed 100 times, on five occasions significant results will
occur by chance.
Stigma the social reaction which leads to a spoilt identity and application
of the label of deviant society.
Survey a method of collecting information from a sample of the population
of interest (known as a sample survey).
Systematic error the errors in the study result in an estimate being more likely to be
either above or below the true value, depending upon the nature of
the systematic error in any particular case.
Systematic research the process of research should be based on an agreed set of
rules and processes which are rigorously adhered to, and
against which the research can be evaluated.
Systematic review of the literature review prepared with a systematic approach to
minimising biases and random errors, and including
components on materials and methods.
Systematic random sampling a sample in which every kth case is selected from
the population (n) (with a random starting point).
Theory a set of logically interrelated propositions and their
implications.
Triangulation the use of three or more different research methods (i.e.
multiple methods) to investigate the phenomenon of interest.
Type I error (or alpha error) the error of rejecting a true null hypothesis.
Type II error (or beta error) the failure of reject (i.e. acceptance of) a null
hypothesis when it is actually false.
Validity, external the extent to which the research findings can be generalised to
the wider population of interest and applied to different
settings.
Validity, internal the extent to which the instrument is really measuring what it
purports to measure.
Variable an indicator assumed to represent the underlying construct or
concept, produced by the operationalisation of the latter.
55
REFERENCES
56
ANNEX
After you have selected the design for your study, answer the following question:
1. Do you have access to an appropriate site for the
study? Name the site:
How will you gain permission to enter the site?
2. Are there appropriate participants for your study?
List the criteria for participants who would be appropriate for your study: How
many people will you be able to choose from?
How will you gain their permission to be participants?
3. Data Collection:
Can you enter the field often enough to gather data? How
often do you calculate that will be?
What data collection techniques will you use?
A. Observation: Which people, interactions, or behaviours do you wish to
observe?
57
B. Interviews: Which participants do you wish to interview
Outline the topics you wish to gain information or opinions about
C. Audiotape recording (do you have equipment?)
Videotape recording (do you have equipment?)
Do you need separate permission for this
activity? If yes, how will you get that permission?
Which events, interactions, or behaviours do you wish to record
D. Artefact Review: What kinds of documents or objects will you need to
examine?
Where will you locate such artefacts?
E. Client Record Review: Do you need separate permission for this
activity? If yes, how will you get that permission?
Which client records will you need to review? What are the selection criteria?
How many records will you need?
58
ANNEX II- FORMAT FOR THESIS ON QUALITATIVE RESEARCH
Title Page
Abstract
Acknowledgement
List of Tables
List of Figures
Chapter I Introduction
Background
Purpose of the study
Significance of the
study Research
questions Assumptions
Limitations
Chapter II Literature Review
Chapter III Research Method
Research design
Research questions
Procedures:
Participants
Data collection methods
Data analysis
Chapter IV Analysis and Discussion
Results of coding and early
analysis In-depth analysis
Data displays
Checks on the analysis
Hypothesis generation
Appendices
Appendix A: Permission forms
59
Appendix B: Interview outlines
Appendix C: Start codes
Annex IV- A
‘Parenting and Disability: The Role of Informal and Formal Support Networks’
Parker, Gillian Mary
Abstract
This study will identify the support, which disabled parents need to enable them to
continue parenting successfully when impairment disrupts their parental activity.
Stage one will survey 100 disabled parents and their families to explore their
experiences around the time of onset; the impact this had on parenting; the role of
health and social care services and informal networks; the impact of impairment on
family life and relationships; impact on the children; the ways in which household
tasks are allocated between family members; the extent to which and reasons why
children may have become involved in additional household duties and „caring‟
activity; how responsibility of parenting and parental activity id allocated within the
family; and basic socio-demographic data. „Looking after children‟ materials will be
adapted for use with the children of disabled parents. Stage two will be 12 in-depth,
longitudinal case studies of recently disabled parents and their children‟s experiences
during the first twelve months of disablement. As in the first stage the emphasis will
be on the roles of formal and informal structures in supporting (or not) parenting
activity and children through this period.
60
Background
The principles of Children Act are that intervention with families should promote
parental independence and responsibility, and be withdrawn once parents are in a
position to parent (Aldgate et al, 1994). However, recent research and policy debates
on the issue of „young carers‟ has emphasised assessing the child‟s needs separately,
providing services to replace a „lost childhood‟, and training young carers to make
their role more bearable (Cohen, 1995). The sentiment underpinning services for
young carers thus involves substituting rather than enabling the parental role. We
have made a critique of this focus on the support needs of the child ‟as a carer‟
(Parker and Olsen, 1995a), arguing instead that research should focus on why some
children of disabled parents become over-involved in caring activity in the first place.
A recent „Chief Inspector‟ letter has, similarly, stressed that social service assessment
in situations of this sort should identify both parents‟ and children‟s needs.
A crucial distinction which research on both disability and „child carers‟ usually fails
to make is between parenting – „the concern that parents have for their child‟s
welfare in all its various manifestations – and parental activity – the things that
parents do as parents (Parker 1993, p.99). There is little to suggest that disability
affects parents‟ desire or ability to parent; however, in the absence of adequate
support, disability may affect parents‟ parental activity. This lack of support can lead
to children being taken into care or non-disabled partners being given custody after
divorce (Morris, 1989). Prejudice from both professionals and the population at large
may deny disabled parents their right to parent.
Existing research
The research literature on parenting and disability is fragmented. In particular, it has
been characterized by the dominance of a medical model of disability (focusing on the
illness or impairment as the source of the problem rather than the need for support)
and has therefore asked a limited range of questions about the relationship between
parental disability and children. Furthermore, its emphasis has been on pathologising
the parenting of disabled people and measuring outcomes for children in largely
psychological and psych-social terms.
It is not surprising that researchers in different areas of enquiry have asked different
kinds of questions in assessing disability and parenting. One body of research has
principally been interested in finding out whether children of mentally ill parents are
61
more likely to suffer mental health problems themselves (Rutter, 1996 and 1981;
Rutter and Madge 1976; Rytter et al, 1976; Cytryn et al, 1984). Whilst finding some
associations between parental and child mental illness, this literature has very rarely
to unpack the role of poverty, unemployment, poor housing, institutionalisation, and
so on, in the development of problems in children.
Research into learning disability has focused more on IQ and parenting skills in the
early years of child‟s life (for a review see Andron and Tymchuk, 1987). The research
of Booth and Booth (1994a) has exposed the different standards by which parents
with learning difficulties are judged and how the lack of support at critical stages can
make parenting much more stressful and difficult. They, and other authors (for
example, Dowdney and Skuse, 1993), also criticise intelligence indicators as tools for
analysing parenting skills, arguing that they are static measurements of „intelligence‟,
which do not allow for skill development and learning. As with research into mental
illness and parenting, the evidence in this are is equivocal, with other mediating
factors paying important roles in the relationship between parental and child IQ.
The literature on disability and parenting has therefore asked different questions in
relation to different illnesses and impairment and, whilst this is a natural result of
focusing on the individual and their illness rather than on support, it has prevented
most researchers from looking at the broader factors which structure the experience of
disability and parenting. Disabled parents have been judged by different standards to
62
their non-disabled peers (George, 1994), and have been given less chance to prove
their parenting ability (Booth and Booth, 1994b, p. 164). There is often little attempt
to consider the impact of social class and poverty on disabled parents, and insufficient
weight is given to the effects of services) or lack of them) on parenting.
In addition, the focus in this literature has tended to be on measures of children‟s
psychological adjustment to illness and disability in the family. Attention has not
focused on the likelihood of children either doing too much by way of domestic and
other tasks, or of doing things that are age-inappropriate. By contrast, however, the
last few years have been a tremendous growth of interest, comment and prescription
regarding „young carers‟ – children „caring‟ for ill or disabled relatives (Aldridge
and Becker, 1993a, and 1993b; Mahon and Higgins, 1995). This has been
accompanied by a similar growth in embryonic services for „young carers‟, with
many authorities now providing some kind of child-centred service (befriending,
activities, sign-posting and so on). We, as well as other authors, have made a
sustained critique of both the empirical and political bases to this growth in services
aimed at making caring more acceptable for children of disabled and ill parents.
(Olson, 1996; Parker and Olson, 1995a and 1995b; Keith and Morris, 1995).
63
carry out the support tasks. Clearly, the influence of household composition will
intersect with gender directly. We might hypothetically expect that in two-parent
families with a disabled father, mothers would be more willing to provide assistance
than if the disabled parent is the mother. Household composition is thus one of the
key analytic variables in the proposed research.
Secondly, the literature has emphasised the radically different „caring‟ agenda that
children with mentally ill parents may have (Clements, 1995; Mapp, 1994). Whereas
„care‟ for physically disabled parents has been characterised as essentially task-based
(shopping, cleaning, carrying, and so on), it has been in more emotional and
psychological terms by those looking at „young carers‟ of mentally ill parents. Whilst
physical impairment has no bearing on the quality of parenting) love, support,
guidance, and so on), mental illness, by its nature, may well involve periods where
parenting is poor. It is therefore important to search for formal and informal support
mechanisms, which are particularly appropriate for parents with mental health
problems.
2. Our second empirical concern is the extent to which children labelled as „young
carers‟ differ in their experiences from their peers, and from other children in
situations (for instance, large families) which might engender large domestic
responsibilities. These questions from the basis of a large-scale, nationally
representative survey of children‟s caring and other work, short listed under the
ESRC Children 5-16 Research Programme: Growing into the Twenty-First Century.
However, in research proposed here, we would like to tackle the problem of
understanding outcomes for children in families with ill and/or disabled parents. We
aim to do this by modifying the Looking After Children schedules, developed as a
tool for analysing outcomes for children in social work (Ward, 1995). These
instruments, covering health, education, identity, family and social relationships,
social presentation, emotional and behavioural development and self-care, attempt to
set agreed standards as to what is best for children, and what desirable goals are in
child health and development. They provide some valid and reliable measures of
outcomes for children and will contribute to answering the questions, „How do
„young‟ carers‟ differ from their peers?‟.
64
Research which takes a family approach towards the support needs of disabled
parents, and explores what enables them to go on being parents and prevents
dependence on their children for assistance and care, is urgently needed. This team is
well placed to do such research.
Plan of Study
Design and
Method Stage I
This stage will be a retrospective, descriptive survey of around 100 households
containing a disabled parent and one or more dependent children aged seven or over.
Methods will be largely interview-based and will include suitability-adapted versions
of the „Looking After Children‟ instruments.
Sampling frame
No wholly adequate sampling frames for younger disabled adults exist. Local
authority registers of disabled people vary considerably both in their range and
coverage. The sample for stage 1 will thus be opportunistic, recruited in the East
Midlands via voluntary organizations, newsletters, GP surgeries, contact with hospital
clinics and through advertisement. We will develop existing contacts with local
organizations of and for disabled people to publicise the research, and inserts in
organizations‟ newsletters will invite people to identify themselves as possible
participants. Articles in local newsletters will invite people to identify themselves as
possible participants. Articles in local newspapers and „free sheets‟ and items on
local radio will raise awareness of the research. Local contacts with day centres for
people with minimal mental health problems will also be used to recruit
participants.
„Snowballing‟ techniques – asking people who have already agreed to participate in
the research if they know of anyone else in a similar position who might be willing it
take part will also be used.
The sample will be stratified to ensure roughly equal numbers of people from single
and dual parent households and with mental health problems and physical
impairments, Beyond this we will try to achieve a spread of key characteristics such
as more or less recent onset and ethnicity, as well families who feel that they have
coped more and less well. We will also include people who have become disabled
since becoming parents as well as those who have become parents while disabled.
Clearly, with a sample of 100 there are limits on the extent of the analysis, which is
possible. By constructing the sample in this way we will have sufficient numbers to
analyse the statistical importance of the two main variables of interest (single vs dual
parenthood and physical impairments vs mental health problems) while also being
able to describe other aspects of parents‟ experiences.
Pre-pilot work
A small group of families (around 10) will be recruited initially and interviewed in-
depth. The first visit will involve a conversation with the family as a whole the issues
that they see as important in relation to disability and parenting. The materiel from
these interviews will be tape-recorded and used to influence the structure and content
of interview schedules for the main element of stage 1. It is possible that we will not
cover the children‟s perspective sufficiently using this approach. If this proves to be
the case, we will ask parents for their permission to talk to children separately.
The content of the interview schedules will be determined after pre-pilot work but is
likely to cover: experiences around the time of onset and the impact that this had on
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parenting and parental activity; the role of health and social care services and informal
networks in helping family members to cope; the impact of the onset of impairment
on family life and relationships; impact on the children initially and subsequently; the
ways in which households tasks are allocated between family members; the extent to
which and reasons why children may have become involved in additional household
duties and „caring‟ activity; how responsibility for parenting and parental activity is
allocated within the family; and basic socio-economic information.
Schedules for children will vary slightly according to their age and, as with those for
the adults, the content will be determined after the pre-pilot work. Clearly, at least
part of what we can cover will depend on whether or not the children were born
before or after their parent was disabled and, if the latter, if they remember much
about that time. It seems likely that the interviews will work best if they focus on the
present and children‟s perceptions of their and their parents‟ current circumstances.
Outcomes for children (health status, education, social activity and so on) will be
explored by using suitable adapted versions of the „Looking After Children‟ materials
for the appropriate age groups. Whilst the schedules give a guide to the sorts of age-
appropriate tasks and responsibilities that children should have learned, they do not
enable us to identify a) situations where a child may have learned a desirable task (for
instance „to cook simple meals‟) but may be doing that task an unreasonable number
of times and b) situation where a child has responsibilities for tasks (for instance
undertaking simple electrical repairs, undertaking first aid) earlier in life than is
reasonable. Given that one of the current anxieties about the children of disabled
parents is that they become involved in certain activities „too soon‟ or too much, we
plan to modify the schedules to explore this issue. We will examine how to use parts
of the 110-15 and 16+ schedules with children below those ages.
The interview schedules and the adapted „Looking After Children‟ materials will
piloted on the families used for the pre-pilot work and revised in the light of that
experience and the families‟ reactions to the interviews.
Interviews with 100 disabled parents, any of their children aged 7 to 18 living at
home, and any other „significant‟ adults in the households will then be carried out. At
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this stage, parents and children will be interviewed separately. Wherever possible,
parents will be interviewed first, followed by the children, on a single visit to the
household. However, in some cases it may not be possible to carry out all the
interviews on a single visit, either because of time constraints (for example, if the
interviews are carried out in the evening) or because it is not easy to assemble all the
relevant participants at the same time. Provision for more than one visit per household
has thus been made both in the timetable and the fieldwork budget.
All interviews will be carried out by research associates and appoint a woman to his
post so that parents and children get the opportunity to choose the sex of the person
who interviews the child (ren), if they wish. This issue may be particularly important
in relation to parents and children from minority ethnic communities.
Stage 2
The design of this stage will be in-depth, longitudinal case studies of 12 families
where a parent has recently become disabled. Methods will be predominantly
qualitative. This is appropriate in an area where knowledge is limited and where the
topics are both complex and potentially sensitive.
Sample
Twelve disabled parents will be identified soon after initial onset or diagnosis. We
plan to work with local clinicians in the three Leicester acute hospitals to identify
these adults via hospital clinics and wards. Previous research by one of the proposers
(Seymour and Parker, 1994) used this method of sample generation successfully.
We will recruit parents with serious mental health problems, four with trauma-related
impairments, and four with deteriorating or fluctuating conditions such as rheumatoid
arthritis or multiple sclerosis. This will allow us to compare and contrast experiences
across a number of axes: sudden versus gradual onset; stable versus fluctuating
conditions; mental versus physical impairment.
Interviews
Disabled parents (and their partners, if they have one) will be interviewed as soon as
is feasible after identification. We would aim to achieve this within a month where at
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all possible although previous experience (Seymour and Parker, 1994) suggests that
this may not be possible for people with serious or fluctuating conditions. This first
interview, which will be in-depth, will cover the immediate impact of disability and
the support needs it has generated, particularly in relation to parenting. The roles of
formal and informal support will be explored in detail.
Where there are two parents, the couple will be interviewed briefly together and then
separately, but simultaneously. This a pattern used successfully by one of the
researchers in previous work with couples (Parker, 1993), which ensures that partners
do not worry excessively about what the other is saying. It also allows the parents to
express views and feelings that they feel might distress the other.
Follow up interviews three months and nine months later will review the current
position. Interviews with the parents will use critical incident techniques to identify
significant events, which have occurred since the first interview and explore how
these were coped with. We will identify events of any sort, including the „normal‟
events that families go through but which may prove particularly challenging where a
parent is disabled, for example, illness of either parent, admission to hospital, a
child‟s move from one school to another, moving house, death or illness of
grandparents or other significant adults, change in employment, change in formal
support arrangements and so on. As in the first stage, the emphasis will be on the roles
of formal and informal structures in supporting (or not) parenting activity and the
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children through these changes. As before, parents in dual parent families will be
interviewed separately but at the same time, after a brief joint interview.
At the follow up stage, separate interviews with children over the age of 7 will
explore their perceptions of the impact of their parents‟ impairment and the effect that
this has had, if any, on the family. Although we will cover their involvement in
domestic or caring activities, and any changes that their parents‟ condition had had on
this, we would expect the children‟s own perceptions of what has been significant to
guide the interviews. We will also cover, where possible, the significant events
identified by the parents and explore with the children any impact that they feel these
have had on their involvement in domestic or caring activities. The adapted „Looking
After Children‟ instruments used in stage 1 will be used with the children in stage 2 at
the follow-up interviews.
As in the first stage, it may not be possible to achieve all the interviews in a family on
one occasion and the timetable and resources requested reflect this. Similarly, we will
offer the parents and children the choice of interviewer for the work with the children.
We will also interview selected other adults identified as providing significant support
to the parents and children. Participates will be asked to identify those individuals
from both the formal and the informal sector whom they feel have been most helpful,
particularly in relation to parenting issues. Grandparents or siblings of the disabled
adult, for example, may play important roles in helping the family to cope. Similarly,
social workers, GPs, head teachers or teachers may have proved supportive. Where
this is the case we will seek the disabled parents‟ permission to approach these people
for interview. Again, the approach will be qualitative and will explore the individual‟s
perspective of their role in supporting the family, whether they felt that others might
more appropriately have provided support, how long they feel the family will need the
support currently being provided and any other issues that emerge from the interviews
with the disabled parents (and their partners).
Analysis
The stage 1 survey is predominantly descriptive. However, where appropriate,
material will be analyzed quantitatively to explore the contribution of our two main
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analytic variables (single vs dual parents, mental illness vs physical impairment).
Bivariate analysis will use the chi-squared statistic, which is appropriate for
categorical data that are not necessarily normally distributed. Where possible, logistic
techniques will be used to explore the relative contributions of different.
Gardner and Chapple's study illustrates both the valuable insights that can be
derived from qualitative work and the difficulties of demonstrating the credibility of
such findings in medical journals. This study "sensitises" practitioners to possible
barriers to referral, such as fear of hospitals and fatalism about the inevitability of
morbidity with ageing. It also reminds us that in the real world symptoms are
experienced and accounted for in consultations not as diseases with textbook clarity
but as facets of a more diffuse illness experience. Rather than identifying the exact
proportion of a population with particular health beliefs, qualitative research can
unearth beliefs that may be hidden in less respondent centred study designs or within
a busy consultation with a doctor.
Such insights, however, can also be derived from novels, patient anecdotes, or
journalism, which clinicians have always used to inform their communication with
patients, alongside evidence from research studies. It is the purported credibility of
findings that sets qualitative research apart from these other non-research sources: it
makes claims, however implicitly, to being valid and to having some generalisability
beyond the particular situation or setting described.
Set against the conventions of good research design, a study carried out by a single
general practitioner on patients from his or her own practice in one site surely raises
legitimate questions about objectivity and generalisability. To what extent are the
barriers reported here an artefact of the interviewer-interviewee relationship for
instance, what patients thought the general practitioner wanted to hear? To what
extent is fear of hospitals rooted in local myths, which have no relevance in other
parts of the country? How far can we really conclude from this evidence that cultural
71
gaps between deprived populations and their healthcare providers really contribute to
the "health divide" without a comparative group of more affluent patients?
In qualitative research, issues of validity and generalisability are essentially the same
as those in quantitative studies establishing the truth of accounts (in that they
represent some reality outside the research itself) and adding to theory (in that the
findings are applicable to a population or setting wider than that of the study).
Attention to questions of reliability is essential.1 In interview studies, this involves
careful transcription, thorough and systematic coding, and a justification for data
extracts chosen for illustration for instance on grounds of representativeness. In
addition, credibility in the findings and conclusions drawn depends on information
about context. This includes information about the prompts used to generate data and
the research setting, both of which can have a significant impact on the content of
accounts given by participants,2 and the theoretical framework used to make sense of
the data. Data extracts taken out of context tell us little about the situated nature of
beliefs and behaviour, and inferences that are not rooted in a theoretical
understanding are unlikely to be generalizable to other settings. Most important is
evidence that the researchers have explicitly sought to falsify emergent hypotheses,
for instance by theoretical sampling and accounting for deviant cases within their
dataset.3
The use of a single site or a small sample size does not in itself threaten the validity or
potential generalisability of a qualitative study. Although there is not enough space in
a short paper to ground the findings in a broader literature or to discuss how deviant
cases were handled, the authors have used comparative material to strengthen the
credibility of their findings, and the second author was involved in the analysis
providing some analytical distance on the data. The generalisability of this study does
not derive from the representativeness of the sample, but from the concepts (such as
fear of hospitals or fatalism about ageing) that may well be relevant to other settings
andpatientgroups.
References
1. Silverman D. The quality of qualitative health research: the open ended interview
and its alternatives. Soc Sci Health 1998; 4: 104-118.
2. Green J, Hart L. The impact of context on data. In: Barbour R, Kitzinger J, eds.
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Developing focus group research. London: Sage, 1999.
3. Green J. Grounded theory and the constant comparative method. (Commentary.)
BMJ 1998; 316: 1064-1065[Medline].
© BMJ 1999
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Focus group discussion can be performed but if they are practicing at that moment
may limit the finding.
Observation may not be important.
N.B. [Link] consent, should not be forgotten
2. Political, cultural and other sensitive issues have to be addr
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