Harish Rana Case
Harish Rana Case
At the age of 20 years, while pursuing B. Tech degree at Punjab University, the applicant
met with an unfortunate accident after he fell from the fourth floor of his paying guest
accommodation. Consequently, he sustained a diffuse axonal injury. Given the severity of
his condition, he was administered treatment in the form of conservative management,
including AED, analgesics, ventilating support, antibiotics, tracheostomy, and feeding
through a Ryle's tube (nasogastric tube). Eventually, the mode of administering CANH
came to be switched from Ryle's Tube/nasogastric tube to a surgically placed PEG tube,
which requires replacement at a hospital every two months.
Medical reports further indicated that the applicant exhibited no evidence of awareness
of his environment and was incapable of interacting with others. The applicant remained
bedridden ever since the incident, due to which he has often suffered terribly from painful
bedsores, despite receiving the most attentive nursing care from his mother.
The Supreme Court in 2025 directed the constitution of a primary and secondary
medical board of doctors in accordance with the Common Cause Guidelines and to submit
its report ascertaining whether life sustaining treatment for the applicant ought to be
withdrawn or withheld. The reports indicated that continued administration of CANH is
required for the applicant's sustenance, however, this may not aid in improving the
applicant's condition.
The applicant's parents requested the Court to take necessary steps to ensure that the
applicant does not suffer any more.
Court's Assessment
Perusing this matter, the Court firstly noted that in Common Cause 2018 (supra), the
Court held that- “right to live with dignity” under Article 21 of the Constitution inherently
includes the “right to die with dignity” and passive euthanasia and Assisted Medical
Directives (AMD) are both legal and permissible under the framework of Article 21 of the
Constitution, being rooted in the constitutional values of liberty, dignity, and individual
privacy. The Court further delved into the difference between active euthanasia and passive
euthanasia and that this distinction was based on the constitutional principles underlying
Article 21 of the Constitution.
Furthermore, the Court clarified that in the judgment, “Euthanasia” will refer strictly to
active euthanasia, which remains impermissible; “Withdrawing or Withholding of
Medical Treatment” will replace the term passive euthanasia.
The Court thus framed and answered the following issues”
Whether the administration of CANH is to be regarded as “medical treatment”?
The Court clarified that CANH refer to all forms of enteral nutrition and parenteral
nutrition which are administered upon clinical indication, which is not inclusive of oral
feeding, by cup, spoon, or any other method of delivering food or nutritional supplements
into the patient's mouth. Examining the clinical and procedural characteristics of CANH, the
Court explained that this indicates that CANH cannot be regarded as a mere means of
basic sustenance or primary care, but should be recognised as a technologically
mediated medical intervention that is prescribed, supervised and periodically reviewed
by trained healthcare professionals in accordance with established medical standards.
Relying on relevant precedents, the Court explained that it is crucial that CANH be regarded
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presumption in favour of preserving life, reflecting the sanctity of life. This presumption
is not absolute and may be displaced where continuation of medical treatment ceases
to serve any therapeutic purpose, i.e., becomes futile, merely prolongs the suffering
without the hope of recovery or causes indignity to the life of the patient.
• Assessment of best interests must, therefore, necessarily encompass an
evaluation of the futility of treatment, the absence of therapeutic purpose, the invasive
and burdensome nature of continued medical intervention, and the indignity attendant
upon artificially prolonging life in a state devoid of awareness, autonomy, or human
interaction.
• Decision-makers such as the patient's next of kin/next friend/guardian, the treating
physician, the members of the medical boards, or the courts (if involved), as the case
may be, must look at the patient's welfare in the widest sense, not just medical but
also social and psychological.
• Decision-makers must try to put themselves in the place of the individual patient
and ask what his wishes and attitude to the treatment is or would be likely to be; and
they must consult others who are looking after him or interested in his welfare, in
particular for their view of what the patient would have wanted.
• Best interests principle shall incorporate a strong element of the substituted
judgment standard, requiring the decision maker to place himself, so far as possible, in
the position of the patient and to consider in a patient-centric manner what that patient
would have wanted if he had capacity to do so. However, substituted judgment would
not operate as an autonomous or overriding standard. The ultimate inquiry remains
what course of action serves the patient's best interest.
• Decision-makers, after identifying and collating necessary and ascertainable
considerations, both medical or non-medical, must engage in the balance sheet
exercise, which would involve weighing the potential benefits of continued treatment
against its burdens, including physical suffering, invasiveness, indignity, psychological
distress, wishes and welfare of the patient, the impact upon the patient's lived
experience and family life, and other like considerations.
Whether it is in the best interest of the applicant that his life be prolonged by
continuation of medical treatment?
Answering this issue, the Court took note of the current state of the applicant, his
medical reports and opinions expressed by his next of kins/next friends/guardians, after
being informed of medical considerations by the doctors. It was noted that all across the
board and without any ambiguity, it has been opined that the applicant would remain in
Persistent Vegetative State (PVS) for years to come, with the tubes inserted all over his
body. However, he would never be able to recover from such a condition. The treatment
being administered to the applicant has become prolonged, futile, and offers no hope of
recovery.
Emphasising that the present matter is the first case that has reached the Court
wherein the Common Cause Guidelines are being applied in their full measure, the Court
clarified that discussion demonstrating how the best interest principle applies to the facts
of the present matter should not be misconstrued to mean that a court must always be
the final arbiter of what is in the best interest of the patient.
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What are the further steps to be undertaken in the event that a decision to
withdraw or withhold medical treatment is arrived at?
The Court emphasised that the withdrawal or withholding of medical treatment must be
effected through a structured and humane process, accompanied by a palliative and EOL
care plan. The Court opined that two aspects are required to be addressed at this stage:
(i) streamlining of the Common Cause Guidelines; and (ii) the need for a subject-specific
legislation.
Decision and Directions
With the aforestated assessment, the Court directed the withdrawal of applicant's
CANH and waived the reconsideration period of 30 days due to the peculiar facts of the
case.
The Court directed AIIMS to grant admission and provide necessary facilities to the
applicant in its Palliative Care department so that the withdrawal and/or withholding of the
applicant's medical treatment, including CANH, can be given effect to. AIIMS was directed
to ensure that such withdrawal and/or withholding is carried out through a robust palliative
and EOL care plan, which is specifically tailored to manage symptoms without causing any
discomfort to the applicant, and ensuring that his dignity is preserved to the highest
degree.
High Courts of all States shall issue appropriate directions to all Judicial Magistrates of
First Class (JMFC) within their jurisdiction to receive intimation from the hospital, in
accordance with the guidelines as laid down in Common Cause (supra), in the event the
primary medical board and secondary medical board are unanimous in their decision to
withdraw and/or withhold the medical treatment of any patient.
Union of India in coordination with the respective Secretaries of Health & Family Welfare
of all States/UTs, shall ensure that the CMOs of all concerned districts across the country,
forthwith prepare and maintain a panel consisting of registered medical practitioners
possessing qualifications in accordance with the guidelines as laid down in Common Cause
(supra), for the purpose of nomination to the secondary medical board.
It shall be the duty of the Secretaries of Health and Family Welfare of each State/UT to
make sure that such periodic review and updation at regular intervals is undertaken by the
CMOs of all districts falling within their respective State/UT.
The Judgment of the Court was delivered by
J.B. PARDIWALA, J.:— For the convenience of exposition, this judgment is
divided into the following parts:
INDEX
(A). FACTUAL MATRIX
(B). SUBMISSIONS ON BEHALF OF THE APPLICANT
(C). SUBMISSIONS ON BEHALF OF THE UNION OF INDIA
(D). CORE CONCEPTS UNDERLYING THE DECISION IN COMMON CAUSE
2018
I. The Essential Distinction: Active and Passive Euthanasia
II. Permissibility of Passive Euthanasia under Article 21 of the
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Constitution of India
(a) The unifying and omnipresent force of ‘dignity’ in the discourse on
‘right to die with dignity’
(b) Viewing the “right to die with dignity” through the prism of self-
determination, individual autonomy and privacy
(c) Recognising non-voluntary passive euthanasia within the
framework of Article 21
(i) ‘Dignity’ as the standalone basis for the recognition of non-
voluntary passive euthanasia
(ii) Unconscious or incompetent patients and their right to bodily
integrity
(iii) ‘Authorized omission’ in consonance with the duty of care of
doctors
III. Impermissibility of Active Euthanasia under Article 21 of the
Constitution of India
IV. Establishing the Permissibility of Advanced Medical Directives
V. Procedural Framework for Passive Euthanasia
(E). ISSUES FOR DETERMINATION
(F). ANALYSIS
(1) Whether the administration of CANH is to be regarded as “medical
treatment”?
(2) What is the meaning, scope, and contours of the principle of “best
interest of the patient” in determining whether medical treatment
should be withdrawn or withheld?
(a) Best interest of the patient in United States of America (USA)
(b) Best interest of the patient in United Kingdom (UK)
(c) Best interest of the patient in Ireland
(d) Best interest of the patient in Italy
(e) Best interest of the patient in Australia
(f) Best interest of the patient in New Zealand
(g) Best interest of the patient in European Union (EU)
(h) Best interest of the patient in India
(i) Medical considerations under the best interest principle
(ii) Non-medical considerations under the best interest principle
(i) Application of the best interest principle
(3) Whether it is in the best interest of the applicant that his life be
prolonged by continuation of medical treatment?
(4) What are the further steps to be undertaken in the event that a
decision to withdraw or withhold medical treatment is arrived at?
(5) Streamlining and contextualising the Common Cause Guidelines
I. Safeguarding Checkpoints that remove any hesitation amongst
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doctors
II. Role of the patient's next of kin/next friend/guardian
III. Bridging the procedural gap for patients who are undertaking
medical treatment in a home-setting
IV. Nomination of registered medical practitioner by CMO
V. Reconsideration Period
VI. Court Intervention
(6) Legislative inaction and the need for legislation
th
I. The 196 Law Commission Report
II. The decision of Aruna Shanbaug
st
III. The 241 Law Commission Report
IV. The decision of Common Cause 2018
V. Draft Guidelines of 2024
(G). CONCLUSION
I. Summary of our discussion
(a) Understanding Common Cause 2018
(b) CANH is a medical treatment
(c) Best Interest Principle
(d) Palliative and EOL Care
(e) Streamlining of the Common Cause Guidelines
(f) Need for a comprehensive statutory framework
II. The Final Order
“God asks no man whether
he will accept life.
That is not the choice.
You must take it.
The only choice is how.”
1. The above words of Henry Ward Beecher assume great significance in
the present case, more particularly when the courts are asked to give their
decision on the question whether an individual can choose to accept life by
preferring to die. The famous Shakespearean dilemma of “to be or not to be”,
which had so far remained as a literary quote, is now being used for judicial
interpretation to canvass the liberty to die.
2. The present Miscellaneous Application (“MA”) has been filed by a
mentally and physically incapacitated applicant, namely, Harish Rana,
through his parents, in the captioned SLP that came to be disposed of by this
Court vide order dated 08.11.2024. By way of the said order, this Court
resolved the matter between the parties by ensuring that adequate care and
necessary treatment are provided to the applicant, including but not limited
to the provision of home care, at the expense of the respondents.
3. The captioned SLP had arisen from the order dated 02.07.2024 passed
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by the High Court of Delhi in Writ Petition (C) No. 4927 of 2024, whereby the
High Court had dismissed the writ petition on the ground that the applicant
was not being kept alive mechanically and that he was able to sustain himself
without any extra or external medical aid. In the High Court's opinion, such a
condition did not require any judicial intervention. Aggrieved by the said
order, the applicant, through his parents, preferred the captioned SLP.
4. While disposing of the captioned SLP, this Court had granted liberty to
the applicant to move this Court through his parents for obtaining any further
directions should it become necessary to do so. Accordingly, owing to the
applicant's continued vegetative existence, which violates his right to live
with dignity as enshrined under Article 21 of the Constitution of India, the
parents have moved this Court once again vide the present MA inter alia
seeking: (i) constitution and referral of the applicant's case to the primary
medical board; and (ii) declaration that the provision of Clinically Assisted
Nutrition and Hydration (hereinafter referred to as “CANH”) which is currently
being administered to him through a Percutaneous Endoscopic Gastrostomy
tube (hereinafter referred to as “PEG tube”) is “medical treatment”.
5. Further, the parents have also prayed that the suitability of continuation
of CANH be assessed in accordance with the ruling of the five- judge
Constitution Bench of this Court in Common Cause v. Union of India, (2018) 5
SCC 1 (hereinafter referred to as “Common Cause 2018”) and the guidelines
ascribed therein, which were later modified to some extent by Common Cause
v. Union of India, (2023) 14 SCC 131 (hereinafter referred to as “Common
Cause 2023”). For ease of reference, the guidelines regarding withdrawal and
withholding of medical treatment where no Advance Medical Directive
(“AMD”) exist, as laid down in Common Cause 2018 (supra) and modified in
Common Cause 2023 (supra), will be hereinafter referred to as “Common
Cause Guidelines”
(A). FACTUAL MATRIX
6. The applicant, presently aged 32 years, was once a young man of 20
years with a promising future, pursuing a [Link] degree at Punjab University,
when he met with a tragic and life-altering accident. On the fateful evening of
20.08.2013, at around 6 p.m., the applicant is stated to have fallen from the
fourth floor of his paying guest accommodation, as a result of which he
sustained a diffuse axonal injury. He was initially rushed to the Garhwal local
hospital, but within a few hours, he had to be shifted to the Postgraduate
Institute of Medical Education & Research, Chandigarh (“PGI, Chandigarh”)
due to the severity of his medical condition. From 21.08.2013 to 27.08.2013,
he remained admitted at the PGI, Chandigarh, where he was administered
treatment in the form of conservative management, including AED,
analgesics, ventilating support, antibiotics, tracheostomy, and feeding
through a Ryle's tube (nasogastric tube). Although he was discharged from
PGI, Chandigarh, on 27.08.2013, yet unfortunately, his condition remained
far from recovery.
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discussion, the family spoke to the learned counsels about the nature of the
applicant's life before the incident. They informed that the applicant was the
eldest child who was extremely energetic and physically active. Further, they
shared that the applicant was deeply interested in gymming and playing
football. The applicant's brother fondly remembered that the applicant used
to play football and video games with him. The brother also stated that after
years of exhaustive efforts, the family and the doctors have reached to the
decision with great difficulty and on firm belief that the continuation of
medical treatment no longer serves any meaningful purpose and only
prolongs the agony of the applicant.
18. In the aforesaid discussion, the parents stated that they have been
taking care of the applicant for more than 13 years and that they, along with
doctors, have done everything within their human capacity to alleviate the
condition of the applicant during this period. However, they believe there has
been no improvement in his condition. Both parents are worried as to who
would take care of the applicant if anything were to happen to either of them
due to their old age. According to the parents, brother, and sister, the
applicant has no voice of his own, he has not been able to speak, hear or see,
or recognise anyone or eat on his own or respond to touch or affection for the
past 13 years, and he is entirely dependent on artificial support. The
applicant's sister is of the opinion that the decision is being taken by the
family solely in furtherance of the applicant's dignity and best interests.
19. Following the in-person meeting dated 07.01.2026, another meeting
was conducted by the learned ASG, through video conferencing on
08.01.2026. The said meeting was attended by the learned ASG herself,
along with the representatives of the Ministry of Health and Family Welfare
(“MoHFW”), and the doctors who were part of the secondary medical board,
namely Professor Deepti Vibha, Professor Nishkarsh Gupta, and other
concerned officials. During the course of the meeting, the following points
were deliberated upon:
“Present Medical Status of the Petitioner as per Clinical Findings
(i) The petitioner has been in an irreversible permanent vegetative state
for the last 13 years;
(ii) There is no chance of improvement or repair of the medical
condition, rendering continued treatment futile;
(iii) There exists a clear, unquivocal and well-considered view of the
parents of the petitioner, who are also the primary caregivers, arrived
at after informed interaction and deliberation.”
20. Thereafter, in pursuance of our Order dated 18.12.2025, the father, the
mother and the younger brother of the petitioner were present before us in
the committee room of this Court. All three made a fervent appeal before us
to take necessary steps to ensure that the applicant does not suffer any more.
They tried to convey to us that the medical treatment imparted over a period
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cases it is right to allow a person to die (and the debate so far has been
over whether this is such a case) we hold without qualification that no one
may introduce an external agency with the intention of causing death. I do
not think that the distinction turns upon whether what is done is an act or
omission. This leads to barren arguments over whether the withdrawal of
equipment from the body is a positive act or an omission to keep it in
place. The distinction is between an act or omission which allows an
existing cause to operate and the introduction of an external agency of
death.”
Lord Goff
“I agree that the doctor's conduct in discontinuing life support can
properly be categorised as an omission. It is true that it may be difficult to
describe what the doctor actually does as an omission, for example where
he takes some positive step to bring the life support to an end. But
discontinuation of life support is, for present purposes, no different from
not initiating life support in the first place. In each case, the doctor is
simply allowing his patient to die in the sense that he is desisting from
taking a step which might, in certain circumstances, prevent his patient
from dying as a result of his pre-existing condition; and as a matter of
general principle an omission such as this will not be unlawful unless it
constitutes a breach of duty to the patient. I also agree that the doctor's
conduct is to be differentiated from that of, for example, an interloper who
maliciously switches off a life support machine because, although the
interloper may perform exactly the same act as the doctor who
discontinues life support, his doing so constitutes interference with the life-
prolonging treatment then being administered by the doctor. Accordingly,
whereas the doctor, in discontinuing life support, is simply allowing his
patient to die of his preexisting condition, the interloper is actively
intervening to stop the doctor from prolonging the patient's life, and such
conduct cannot possibly be categorised as an omission”
Lord Browne-Wilkinson
“The positive act of removing the nasogastric tube presents more
difficulty. It is undoubtedly a positive act, similar to switching off a
ventilator in the case of a patient whose life is being sustained by artificial
ventilation. But in my judgment in neither case should the act be classified
as positive, since to do so would be to introduce intolerably fine
distinctions. If, instead of removing the nasogastric tube, it was left in
place but no further nutrients were provided for the tube to convey to the
patient's stomach, that would not be an act of commission. Again, as has
been pointed out (Skegg, Law, Ethics and Medicine (1984), p.169 et seq.)
if the switching off of a ventilator were to be classified as a positive act,
exactly the same result can be achieved by installing a time-clock which
requires to be reset every 12 hours: the failure to reset the machine could
not be classified as a positive act. In my judgment, essentially what is
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52. It was in the pursuit of answers to these questions and dilemmas that
the Constitution Bench, across all four opinions, arrived at a seminal
conclusion. The Bench unequivocally held that the ‘right to live with dignity’
under Article 21 extends beyond the preservation of life to encompass the
‘right to die with dignity’.
53. In his opinion, Dipak Misra, CJ., anchored the right to die with dignity
on the observations of the Constitution Bench in Gian Kaur v. State of Punjab,
(1996) 2 SCC 648 : 1996 SCC (Cri) 374. He reasoned that the fundamental
right to life under Article 21 is not merely a guarantee of biological survival
but a right to live with dignity. Crucially, this entitlement does not cease as
life nears its end. Rather, it extends to the very terminus of existence.
Consequently, it was held that the “right to live with dignity” inherently
embraces the right to dignity until the moment of death, including a right to
have a dignified process of death. To fully comprehend the weight of this
reasoning, it is apposite that we look closely at the specific context in which
Gian Kaur (supra) held that the ‘right to live with dignity’ could encompass a
‘right to die with dignity’.
54. The Constitution Bench in Gian Kaur (supra) held that the right to life
under Article 21 of the Constitution of India does not include the right to die
in its absolute sense. In coming to the conclusion, the Court in Gian Kaur
(supra) emphasized on two strands: (i) that the extinction of life or the
extinguishment of life would violate the sanctity of life, and consequently be
in teeth with Article 21 itself, which recognizes the said sanctity of life, and
(ii) that the right to life is a natural right and suicide as an unnatural
extinction of life is incompatible with it. Further, while dealing with the issue
therein, the Court took note of the debate on euthanasia in the context of
individuals in PVS and observed that: (i) the right to live with human dignity
would mean the existence of such a right up to the end of natural life and
may include the right of a dying man to a die with dignity when his life is
ebbing out; and (ii) in such cases, premature termination of life would not
amount to extinguishing life but only constitute accelerating the conclusion of
the process of natural death which has already commenced. However, this
Court sounded a clear note of caution that such cases should not be equated
with the right to die an unnatural death i.e., one that curtails the natural span
of life. The relevant observations made by this Court in Gian Kaur (supra) are
reproduced as follows:
“22. When a man commits suicide he has to undertake certain positive
overt acts and the genesis of those acts cannot be traced to, or be included
within the protection of the “right to life” under Article 21. The significant
aspect of “sanctity of life” is also not to be overlooked. Article 21 is a
provision guaranteeing protection of life and personal liberty and by no
stretch of imagination can “extinction of life” be read to be included in
“protection of life”. Whatever may be the philosophy of permitting a person
to extinguish his life by committing suicide, we find it difficult to construe
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certain and imminent and the process of natural death has commenced, for
these are not cases of extinguishing life but only of accelerating the
conclusion of the process of natural death which has already commenced.
[…]
165. In the context of the issue under consideration, we must make it
clear that as part of the right to die with dignity in case of a dying man
who is terminally ill or in a persistent vegetative state, only passive
euthanasia would come within the ambit of Article 21 and not the one
which would fall within the description of active euthanasia in which
positive steps are taken either by the treating physician or some other
person. That is because the right to die with dignity is an intrinsic facet of
Article 21. The concept that has been touched deserves to be concretised,
the thought has to be realised. It has to be viewed from various angles,
namely, legal permissibility, social and ethical ethos and medical values.
166. The purpose of saying so is only to highlight that the law must take
cognizance of the changing society and march in consonance with the
developing concepts. The need of the present has to be served with the
interpretative process of law. However, it is to be seen how much strength
and sanction can be drawn from the Constitution to consummate the
changing ideology and convert it into a reality. The immediate needs are
required to be addressed through the process of interpretation by the Court
unless the same totally falls outside the constitutional framework or the
constitutional interpretation fails to recognise such dynamism. The
Constitution Bench in Gian Kaur, as stated earlier, distinguishes attempt to
suicide and abetment of suicide from acceleration of the process of natural
death which has commenced. […]
xxx xxx xxx
202.1. A careful and precise perusal of the judgment in Gian Kaur case
reflects the right of a dying man to die with dignity when life is ebbing out,
and in the case of a terminally-ill patient or a person in PVS, where there is
no hope of recovery, accelerating the process of death for reducing the
period of suffering constitutes a right to live with dignity.”
(Emphasis Supplied)
(b) Viewing the “right to die with dignity” through the prism of self-
determination, individual autonomy and privacy.
58. The Constitution Bench in Common Cause 2018 (supra) has charted
out the “right to die with dignity” in the context of passive euthanasia by also
interlinking key facets of the right to life that have already been cemented in
Article 21 jurisprudence, i.e., through a combined interpretation of the right
to self-determination, individual autonomy and privacy.
59. Dipak Misra, CJ., builds this reasoning by opining that, when the
treatment is administered only as a procrastinating effort, the patient would
be condemned to a continuum of pain and suffering which would violate the
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over human faculties denudes life of its meaning. Terminal illness hastens
the loss of faculties. Control over essential decisions about how an
individual should be treated at the end of life is hence an essential
attribute of the right to life. Corresponding to the right is a legitimate
expectation that the State must protect it and provide a just legal order in
which the right is not denied. In matters as fundamental as death and the
process of dying, each individual is entitled to a reasonable expectation of
the protection of his or her autonomy by a legal order founded on the rule
of law. A constitutional expectation of providing dignity in death is
protected by Article 21 and is enforceable against the State.
xxx xxx xxx
440. The nine-Judge Bench decision of this Court in K.S. Puttaswamy v.
Union of India held privacy to be the constitutional core of human dignity.
The right to privacy was held to be an intrinsic part of the right to life and
liberty under Article 21 and protected under Part III of the Constitution […]
441. The protective mantle of privacy covers certain decisions that
fundamentally affect the human life cycle. It protects the most personal
and intimate decisions of individuals that affect their life and development.
Thus, choices and decisions on matters such as procreation, contraception
and marriage have been held to be protected. While death is an inevitable
end in the trajectory of the cycle of human life of individuals are often
faced with choices and decisions relating to death. Decisions relating to
death, like those relating to birth, sex, and marriage, are protected by the
Constitution by virtue of the right of privacy. The right to privacy resides in
the right to liberty and in the respect of autonomy. The right to privacy
protects autonomy in making decisions related to the intimate domain of
death as well as bodily integrity. Few moments could be of as much
importance as the intimate and private decisions that we are faced
regarding death. Continuing treatment against the wishes of a patient is
not only a violation of the principle of informed consent, but also of bodily
privacy and bodily integrity that have been recognised as a facet of privacy
by this Court.
442. Just as people value having control over decisions during their lives
such as where to live, which occupation to pursue, whom to marry, and
whether to have children, so people value having control over whether to
continue living when the quality of life deteriorates.
xxx xxx xxx
517. The entitlement of each individual to a dignified existence
necessitates constitutional recognition of the principle that an individual
possessed of a free and competent mental state is entitled to decide
whether or not to accept medical treatment. The right of such an individual
to refuse medical treatment is unconditional. Neither the law nor the
Constitution compel an individual who is competent and able to take
decisions, to disclose the reasons for refusing medical treatment nor is
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passive euthanasia for incompetent patients can only be entertained when the
following three prerequisites/medical parameters are satisfied:
a) The patient must be diagnosed to be suffering from a medical ailment
and be classified as either terminally ill, in a PVS, or like conditions;
b) The patient must be undergoing prolonged medical treatment with
respect to the said ailment, indicating that the intervention has ceased
to be temporary; and
c) The ailment must be irreversible, meaning:
i. the condition is incurable; or
ii. there is no hope of the patient being cured.
72. When the aforesaid threshold conditions/medical parameters are met,
any medical intervention would prove to be futile and not afford any benefit to
the patient. In such a situation, merely prolonging an inevitable death comes
with the heavy cost of pain and suffering, which directly impacts the right to
die with dignity. For incompetent patients who cannot directly express their
wishes, it is at this stage that constitutional morality, underscored by dignity,
must take over. This direct relationship between the prolonged administration
of futile and invasive treatment that does not confer any benefit or which is
sans any purpose to the patient, and the infringement of dignity, comes
across from the opinions of Dipak Misra, CJI., Sikri, J., and Chandrachud, J.,
respectively, in Common Cause 2018 (supra) as follows:
(i). Dipak Misra, CJ., while discussing social morality, medical ethicality
and the State interest under the constitutional backdrop, emphasised
that withdrawal of treatment in an ‘irreversible’ situation or when life is
ebbing out, must not give way to social morality or the doctor's dilemma
about their Hippocratic Oath. “When prolongation is done sans purpose”,
the aforesaid considerations must not assume the forefront, but rather,
it is the sustenance of dignity and self-respect of an individual, which is
inherent in Article 21, that needs protection. Moreover, passive
euthanasia, in such cases, essentially involves the prevention of
unnecessary intrusion into the physical frame of a person in order to
enable a smooth exit from life, one that is without pain, suffering and
most importantly, indignity. The relevant observations are reproduced
as thus:
“M. Social morality, medical ethicality and State interest
176. Having dwelt upon the issue of self-determination, we may
presently delve into three aspects, namely, social morality, medical
ethicality and the State interest. The aforesaid concepts have to be
addressed in the constitutional backdrop. We may clearly note that
the society at large may feel that a patient should be treated till he
breathes his last breath and the treating physicians may feel that
they are bound by their Hippocratic oath which requires them to
provide treatment and save life and not to put an end to life by not
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divorced from morality. Viewed from this lens, he proposes that the
“sanctity of life” principle might not strictly require that life be
preserved “at all costs”. The principle only requires that there should not
be a deliberate destruction of human life. Therefore, when a certain
brink is reached, withdrawal of life-prolonging treatment might very well
be in consonance with the preservation of the sanctity of life in its fullest
form. He opines that the right to life with dignity subsumes within itself
the right to die a natural death and therefore, would permit the
withdrawal of prolonged treatment which has no curative effect. The
relevant observations are reproduced as thus:
“263. Influenced primarily by the aforesaid considerations, I deem
it relevant to indulge into discussion on morality.
xxx xxx xxx
266. The moral dilemma is that it projects both the sides—
protracted as well as intractable. On the one hand, it is argued by
those who are the proponents of a liberal view that a right to life
must include a concomitant right to choose when the life becomes
unbearable and not so worth living, when such a stage comes and the
sufferer feels that that the life has become useless, he should have
right to die. Opponents, on the other hand, project “Sanctity of
Life” (SOL) as the most important factor and argue that this “SOL”
principle is violated by self-styled angles of death. Protagonists on
“SOL” principle believe that life should be preserved at all costs and
the least which is expected is that there should not be a deliberate
destruction of human life, though it does not demand that life should
always be prolonged as long as possible.
267. It might therefore be argued, as Emily Jackson (2008)
cogently does, that the law's recognition that withdrawal of life-
prolonging treatment is sometimes legitimate is not so much an
exception to the SOL principle, as an embodiment of it.
268. In the most secular judicial interpretation of the SOL doctrine
yet, Denman, J. of UKHL explicated thus:
“in respect a person's death, we are also respecting their life —
giving it sanctity…A view that life must be preserved at all costs
does not sanctify life.,..to care for the dying, to love and cherish
them, and to free them from suffering rather than simply to
postpone death is to have fundamental respect for the sanctity of
life and its end.”
269. Hence, as the process of dying is an inevitable consequence
of life, the right to life necessarily implies the right to have nature
take its course and to die a natural death. It also encompasses a
right, unless the individual so wishes, not to have life artificially
maintained by the provision of nourishment by abnormal artificial
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means which have no curative effect and which are intended merely
to prolong life.
xxx xxx xxx
310. Taking into consideration the conceptual aspects of dignity
and the manner in which it has been judicially adopted by various
judgments, the following elements of dignity can be highlighted (in
the context of death with dignity): […]
310.5. Dignity may be compromised if the dying process is
prolonged and involves becoming incapacitated and dependent;
310.6. Respect for human dignity means respecting the intrinsic
value of human life;
310.7. Avoidance of dependency;
310.8. Indefinite continuation of futile physical life is regarded as
undignified;[…]
311. Once we examine the matter in the aforesaid perspective, the
inevitable conclusion would be that passive euthanasia and death
with dignity are inextricably linked, which can be summed up with
the following pointers:[…]
311.3. A dreadful, painful death on a rational but incapacitated
terminally-ill patient are an affront to human dignity.”
(Emphasis Supplied)
(iii). D.Y. Chandrachud, J., also echoes the view taken by A.K. Sikri, J.,
insofar as the interpretation of the “Sanctity of Life” principle is
concerned, and elaborates that the said principle does not require that
life always be prolonged for as long as possible. He also dissuades the
adoption of an absolutist interpretation of Sanctity of Life and states
that a dignified existence is the cornerstone that sanctifies life. When
medical treatment can do nothing to restore those in a PVS to a state of
health, it would largely be futile. The growth of modern medicine has
found innovative ways to delay death and prolong mere biological
existence during the act of dying. However, in his opinion, when the
same medical knowledge indicates a point of no return, endlessly
continuing artificial medical support would only protract indignity. The
relevant observations are thus:
“413. Though the sanctity principle prohibits “the deliberate
destruction of human life, it does not demand that life should always
be prolonged for as long as possible”. While providing for an intrinsic
sacred value to life “irrespective of the person's capacity to enjoy life
and notwithstanding that a person may feel their life to be a great
burden”, the principle holds that “life should not always be
maintained at any and all cost”. Ethical proponents of the sanctity of
life tend to agree that when “medical treatment, such as ventilation
and probably also antibiotics, can do nothing to restore those in
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of the State interest is diluted in such a situation has also been expounded by
Dipak Misra, CJ., in his opinion as follows:
“O. Submissions of Intervenor (Society for the Right to Die with Dignity)
182. […] It is his submission that in the modern State, the State
interest should not overweigh the individual interest in the sphere of a
desire to die a peaceful death which basically conveys refusal of treatment
when the condition of the individual suffering from a disease is irreversible.
The freedom of choice in this sphere, as Mr. Mohta would put it, serves the
cause of humanitarian approach which is not the process to put an end to
life by taking a positive action but to allow a dying patient to die peaceably
instead of prolonging the process of dying without purpose that creates a
dent in his dignity
183. The aforesaid argument, we have no hesitation to say, has force. It
is so because it is in accord with the constitutional precept and fosters the
cherished value of dignity of an individual. It saves a helpless person from
uncalled for and unnecessary treatment when he is considered as merely a
creature whose breath is felt or measured because of advanced medical
technology. His “being” exclusively rests on the mercy of the technology
which can prolong the condition for some period. The said prolongation is
definitely not in his interest. On the contrary, it tantamounts to destruction
of his dignity which is the core value of life. In our considered opinion, in
such a situation, an individual interest has to be given priority over the
State interest.”
(Emphasis Supplied)
74. In the aforesaid excerpt, it may seem as though the view that State
interest must not outweigh individual interest, is specific to a context wherein
the individual himself has expressed his desire to die a peaceful death
through the refusal of further invasive treatment when the condition is
irreversible. However, that would be a rather restrictive outlook that ignores
the depth of what was sought to be conveyed by Dipak Misra, CJ. We say so
because whether the affliction of the patient is reversible or not would be a
hurdle for a conscious patient who has expressed a desire to withdraw or
withhold medical treatment. Competent individuals have an unconditional
right to refuse medical treatment, and this has been particularly emphasised
in the opinion of D.Y. Chandrachud, J., as we had already previously stated. It
is under such circumstances that we are of the view that the aforesaid inverse
relationship between state interest and withdrawal of withholding of medical
treatment must necessarily be understood in the context of incompetent
patients as well.
75. A sceptic might further argue that, because incompetent patients are
themselves unable to convey their decision on whether medical treatment
must be continued or withheld/withdrawn, a ‘choice’ is being made for them
by external individuals who have thought it fit to calculate the subjective
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worth of the patient's life. However, such an argument would itself be built on
shaky foundation as it conveniently ignores the reality that the
commencement of any medical intervention already begins with a ‘choice’.
More often than not, this initial ‘choice’ to intervene commences with
validation i.e., through the informed consent expressed by the patient
himself. If the ‘choice’ to ‘treat’, by any chance, is not set in motion with such
consent, it begins with necessity - the necessity to restore the patient to
health that combines itself with the Hippocratic Oath that doctors always bind
themselves to.
76. However, a crucial question that then arises is, how long can we keep
such medical intervention ongoing? Especially when the grounding of the
medical intervention in necessity slowly begins to fade away, owing to it
being sans any purpose? Even if the consent to intervene was initially
expressed by the patient himself, the issue still remains complex because one
cannot endlessly assume continuous consent despite the circumstances of the
patient undergoing myriad changes during the period of unconsciousness.
Assuming the existence of such a continuous and endless consent would be
problematic for several obvious reasons.
77. In such circumstances, continuing medical treatment or
withholding/withdrawing the same would both necessarily include a ‘choice’.
Any averment that only its discontinuation would involve a moral, legal and
ethical dilemma and its continuation would not, is seriously misplaced. This
aspect has been very pithily captured by the following observations made by
Hoffmann L.J. in the Court of Appeals decision of Airedale (supra):
“Does this mean that people who have not expressed their wishes in
advance and are now incapable of expression must lose all right to have
treatment discontinued and that those caring for them are in every case
under a corresponding duty to keep them alive as long as medical science
will allow? Counsel for the Official Solicitor said that this was so. If they
have not chosen, the court has no right to choose on their behalf. I think
that the fallacy in this argument is that choice cannot be avoided. To
continue treatment is as much a choice as to discontinue it. Why is it not
an act of choice to decide to continue to invade the privacy of Anthony
Bland's body with tubes, catheters, probes and injections? If on account of
his unconsciousness he is obliged to submit to such treatment, one cannot
say that it is because the court is refusing to choose on his behalf. One way
or the other, a choice is being made. It is only if one thinks it natural and
normal to want treatment that continuing to provide it seems not so much
a choice as a given state of affairs. And of course in most cases this would
be true. In a case in which it was being said that a person should not be
given treatment which would avoid death and restore him to full health,
one would want to know that this was his personal choice and that it had
been expressed very clearly indeed.
But Anthony Bland's is not a normal case. The continuation of artificial
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sustenance and medical treatment will keep him alive but will not restore
him to having a life in any sense at all […]
xxx xxx xxx
In my view the choice which the law makes must reassure people that
the courts do have full respect for life, but that they do not pursue the
principle to the point at which it has become almost empty of any real
content and when it involves the sacrifice of other important values such as
human dignity and freedom of choice. I think that such reassurance can be
provided by a decision, properly explained, to allow Anthony Bland to die.
It does not involve, as counsel for the Official Solicitor suggested, a
decision that he may die because the court thinks that his “life is not worth
living.”
(Emphasis Supplied)
78. Hoffmann L.J. was addressing a dilemma that preoccupied the minds
of this Court in Common Cause 2018 (supra) as well - when patients have not
expressed their wishes in advance, either expressly through their informed
consent during the commencement of the medical intervention or by
executing an AMD, and have been subsequently rendered unconscious,
whether they must always succumb to the choice of continuing treatment
rather than the choice of bringing it to a halt? This was answered with an
emphatic ‘No’, by highlighting that one cannot escape the reality of the fact
that there resides a choice in every action or omission that is made in relation
to the patient, and that the same is true also as regards the unending
continuation of medical treatment. Therefore, when we are confronted with
the truth that both continuation and withdrawal of treatment are based on a
‘choice’, the duty of the court and the doctors alike, must be to ensure that
the scales tilt in favour of safeguarding the full respect for life and its avowed
values of human dignity.
(ii) Unconscious or incompetent patients and their right to bodily
integrity.
79. This ‘choice’ which has preoccupied our aforesaid discussion can be
looked at in relation to the concept of bodily integrity as well. Before
proceeding any further, it has to be clarified that bodily integrity and bodily
autonomy have a notable yet nuanced conceptual difference. It may not be
appropriate for us to equate them to mean one and the same, under all
circumstances. We understand ‘bodily integrity’ as a right that exists with a
separate identity. It serves as one of the foundational bases upon which the
idea of ‘bodily autonomy’ rests. In other words, it is because one enjoys the
right to bodily integrity (amongst other personal rights), that they are able to
exercise the right to bodily autonomy. Now, why is it important for us to
highlight any distinction that may exist between them? Once it is established
that the right to bodily integrity is neither a mere sub-set of autonomy nor its
mirror reflection, we may be able to strongly cement that its strength is not
diluted for unconscious or incompetent patients.
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80. The most common definition of bodily integrity is the “right to be free
from physical interference”4. Jonathan Herring argues that the right to bodily
integrity provides for the exclusive use and control over our own bodies on
the basis that our bodies are the “site” and “location” of where our
5
subjectivity engages with the world. Therefore, the right carries with it, the
concomitant right to exclude all others from the body. If there existed no
right to bodily integrity and no right to exclude, then any right to either invite
or deny would lose its value.6 Bodily autonomy, on the other hand, protects a
person's capacity to make his or her own decisions in relation to his or her
body. Therefore, when there is an infringement upon the bodily integrity of
another, the same would amount to a disrespect that is broader than the
disrespect for the person's capacity to live life according to their own reasons,
motivations and terms. Bodily integrity reflects a focus on the welfare, well-
being and respect for one's personhood rather than a myopic focus on his
rational decision-making capacity. Such a right carries with it strict duties of
non-interference against an open set of persons and makes any infringement
actionable.
81. We also wish to elucidate the existence of the aforesaid conceptual
difference between bodily autonomy and bodily integrity through certain
observations made by A.K. Sikri, J. and Ashok Bhushan J., respectively. The
relevant observations are reproduced as follows:
A.K. Sikri, J.,
“315. I had indicated at the earlier stage that Hippocratic Oath, coupled
with ethical norms of medical profession, stand in the way of euthanasia. It
brings about a situation of dilemma insofar as medical practitioner is
concerned. On the one hand his duty is to save the life of a person till he is
alive, even when the patient is terminally ill and there are no chances of
revival. On the other hand, the concept of dignity and right to bodily
integrity, which recognises legal right of autonomy and choice to the
patient (or even to his relations in certain circumstances, particularly when
the patient is unconscious or incapacitated to take a decision) may lead to
exercising his right of euthanasia.
316. Dignity implies, apart from a right to life enjoyment of right to be
free of physical interference. At common law, any physical interference
with a person is, prima facie, tortious. If it interferes with freedom of
movement, it may constitute a false imprisonment. If it involves physical
touching, it may constitute a battery. If it puts a person in fear of violence,
it may amount to an assault. For any of these wrongs, the victim may be
able to obtain damages.
317. When it comes to medical treatment, even there the general
common law principle is that any medical treatment constitutes a trespass
to the person which must be justified, by reference either to the patient's
consent or to the necessity of saving life in circumstances where the
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the dignity and right to bodily integrity of the patient that the “best interest”
standard has been jurisprudentially developed, especially to answer legal
issues surrounding non-voluntary passive euthanasia. This doctrine or
standard would bind both the remaining stakeholders as identified by Ashok
Bhushan, J., i.e., the family/kin and the treating doctors, respectively. This is
precisely why they both play a key role in the procedure laid down by
Common Cause 2018 (supra) in the process of determining whether the
medical treatment must be withheld or withdrawn. We have briefly
contextualised the ‘best interest’ doctrine here but have deemed it
appropriate to discuss the same separately under another section to afford
the doctrine the detailed discussion that it deserves.
(iii) ‘Authorized omission’ in consonance with the duty of care of
doctors
85. Despite the constitutional permissibility of passive euthanasia under
Article 21, the fear of criminal liability creates a hurdle in its rightful exercise
and implementation. The looming threat that a doctor could be charged with
a crime for withdrawing life support creates a chilling effect. Physicians, wary
of prosecution, may hesitate to withhold futile treatment, even when
continuing it prolongs the patient's suffering and indignity. Such an
environment risks relegating the rights and dignity of incompetent patients to
the background in favour of legal wariness. This Court in Common Cause
2018 (supra), while addressing this issue, explicitly ruled that when
treatment is withdrawn or withheld in strict adherence to the prescribed
procedural safeguards, no criminal liability could be attached to the physician.
While this Court explored various legal justifications for this immunity,
including the lack of intent and causation, we are of the considered opinion
that the most robust defence lies in the absence of an ‘illegal omission’, as
once the same is established, the doctor cannot be held liable, rendering
further inquiries into intent or causation unnecessary. The observation made
by Dipak Misra, CJ., that such a withdrawal or withholding either comes
within the protection of informed consent (in cases of voluntary passive
euthanasia) or “authorised omission” (in cases of non-voluntary passive
euthanasia) respectively, and hence, no criminal liability can be attached,
captures this perfectly. The same is reproduced thus:
“166. […] The authorities, we have noted from other jurisdictions, have
observed the distinctions between the administration of lethal injection or
certain medicines to cause painless death and non-administration of
certain treatment which can prolong the life in cases where the process of
dying that has commenced is not reversible or withdrawal of the treatment
that has been given to the patient because of the absolute absence of
possibility of saving the life. To explicate, the first part relates to an overt
act whereas the second one would come within the sphere of informed
consent and authorised omission. The omission of such a nature will not
invite any criminal liability if such action is guided by certain safeguards.”
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(Emphasis Supplied)
86. It is true that under the Indian penal law, the definition of an ‘act’
encompasses illegal omissions. Further, it is fairly well established that the
fiduciary relationship between a doctor and a patient generally imposes a
duty of care on the doctor to preserve life. Consequently, a failure to treat
would, in normal circumstances, constitute a breach of this duty, thereby
inviting liability. However, this duty does not translate into a mandate to
artificially prolong life ad infinitum or to avert death at all costs. It is
recognised that ‘to be is to die’ and that death is the inevitable conclusion of
existence. In such circumstances, it would be legally and logically
unreasonable to impose upon doctors a duty to perpetually prevent the
unpreventable. Therefore, the scope of this duty of care shifts shape when a
patient meets the threshold conditions/medical parameters previously
discussed, i.e., when they are terminally ill or in a PVS, undergoing prolonged
medical treatment with no hope of cure. In such scenarios, where continued
intervention ceases to be ‘treatment’ and becomes merely a mechanism for
prolonging physical life, causing harm to the patient's dignity, the duty to
avert death ceases to exist. Simply put, in such cases, if the doctor withdraws
or withholds treatment in accordance with the prescribed procedure, then
such omission to treat will not constitute a breach of their duty of care. It, in
fact, becomes the truest manifestation of the duty of care. Consequently, the
act of withdrawing or withholding medical treatment, in such scenarios, will
not be held to be an ‘illegal omission’.
87. D.Y. Chandrachud. J., in his concurring opinion in Common Cause 2018
(supra), stated that the treatment of the human body involves a “continuous
association” between the caregiver and the receiver. He further stated that
the expert caregiver is involved in a continuous process where medical
knowledge, the condition of the patient, and the relevant circumstances,
require them to constantly evaluate choices, i.e., choices on the nature and
extent of medical intervention, the wisdom regarding a course of action, and
about what should or should not be done. This perspective was also expressed
by Sir Thomas in Airedale (supra), wherein he held that what is involved is
not just medical treatment, but medical treatment in accordance with the
doctor's best judgment as to what is in the patient's best interests. Dr. Atul
Gawande, in his acclaimed book, Being Mortal, brings to the fore this point in
a beautiful manner:
“If to be human is to be limited, then the role of caring professions and
institutions—from surgeons to nursing homes—ought to be aiding people
in their struggle with those limits. Sometimes we can offer a cure,
sometimes only a salve, sometimes not even that. But whatever we can
offer, our interventions, and the risks and sacrifices they entail, are
justified only if they serve the large aims of a person's life. When we forget
that, the suffering we inflict can be barbaric. When we remember it, the
good we do can be breathtaking.”
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88. Thus, when a doctor, on the basis of the best interests of their patient
and in accordance with the procedural safeguards prescribed under Common
Cause 2018 (supra), withholds or withdraws medical treatment, it can very
well be termed as a step taken in furtherance of their duty of care, not in
contradiction to it. In fact, the procedural safeguards prescribed in Common
Cause 2018 (supra), especially the establishment of two independent medical
boards, were intended to ensure that any act taken in accordance with that
procedure would best take care of two things simultaneously - ensure that
patient interests are kept at the forefront and also that the doctors are not
exposed to any liability.
89. It could be argued that, in essence, withdrawing support places the
patient back into the “zone of danger” from which they were initially rescued.
Does this not constitute a breach of the duty of care? By exposing the patient
to the potential pain and agony associated with the removal of life support,
such as a ventilator or feeding tube, are we not contradicting the very
principles of dignity that support passive euthanasia in the first place? To
answer this, it is important to understand passive euthanasia as a termination
of a ‘rescue operation’ and not as the ‘abandonment’ of a patient. As noted
above, the duty of care does not cease. It merely shifts from curative
treatment to palliative care. In cases where medical treatment is withdrawn
or withheld, the doctor's duty entails providing robust palliative care (as
discussed in further detail in the later parts of this judgment) and ensuring
that the act of withdrawal does not result in a situation in which the patient's
dignity is further compromised.
III. Impermissibility of Active Euthanasia under Article 21 of the
Constitution of India
90. One of the many aspects that have been highlighted by us in the
preceding paragraphs is the concurrence in the opinions of A.K. Sikri, J., and
Chandrachud, J., that the right to a dignified death cannot be said to be at
loggerheads with the conception of sanctity of life. If one accepts the nuanced
interpretation where the quality of life breathes meaning into the sanctity of
life, a natural corollary might suggest that active euthanasia should also be
permissible. Indeed, in their respective opinions, both A.K. Sikri, J., and
Chandrachud, J., have themselves acknowledged the existence of a body of
scholarship arguing that, on moral grounds, the distinction between active
and passive euthanasia is tenuous, and that, if any difference exists, it is
purely a matter of policy. However, the Court noted that its role was not to
test the touchstone of morality, but to apply the yardstick of constitutional
principles inherent in Article 21. Consequently, while the moral divide
between the two may be blurred for philosophers, for the Bench in Common
Cause 2018 (supra), the constitutional divide remained clear.
91. To understand the basis for the constitutional divide between active
and passive euthanasia, it is apposite to look at the observations made by
this Court in Common Cause 2018 (supra), which are as follows:
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broad principles to govern and provide a just basis for the execution and
enforcement of such AMDs. Dipak Misra, CJ., in his leading opinion, laid down
guidelines that would govern aspects such as: (i) who can execute an AMD,
(ii) what such a directive should contain, (iii) how it should be recorded and
preserved, and lastly, (iv) when and by whom it can be given effect to.
Acknowledging and directly addressing the challenge of enforcing AMDs due
to the chasm that divides the past and present, the following guideline was
also incorporated:
“198.6.2. An Advance Directive shall not be applicable to the treatment
in question if there are reasonable grounds for believing that circumstances
exist which the person making the directive did not anticipate at the time
of the Advance Directive and which would have affected his decision had
he anticipated them.”
98. In addition to the guidelines on execution and enforcement of an AMD,
Dipak Misra, CJ., also laid down guidelines regarding the procedure to be
followed for undertaking passive euthanasia in those scenarios where no AMD
exists. Therefore, when dealing with an AMD and passive euthanasia (with or
without an AMD), the guidelines as laid down by this Court in Common Cause
2018 (supra) and later modified in Common Cause 2023 (supra) constitute
the governing law of the land.
99. On the issue of who can execute an AMD, this Court in Common Cause
2018 (supra) laid down the following guidelines:
a) The Advance Directive can be executed only by an adult who is of a
sound and healthy state of mind and in a position to communicate,
relate and comprehend the purpose and consequences of executing the
7
document.
b) It must be voluntarily executed and without any coercion or inducement
8
or compulsion and after having full knowledge or information.
c) It should have characteristics of an informed consent given without any
9
undue influence or constraint.
d) It shall be in writing clearly stating as to when medical treatment may
be withdrawn or no specific medical treatment shall be given which will
only have the effect of delaying the process of death that may otherwise
cause him/her pain, anguish and suffering and further put him/her in a
state of indignity.10
100. On the issue of what an AMD should contain, this Court in Common
Cause 2018 (supra) laid down the following guidelines:
a) It should clearly indicate the decision relating to the circumstances in
which withholding or withdrawal of medical treatment can be resorted
11
to.
b) It should be in specific terms and the instructions must be absolutely
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47
are being fed into the small intestine. Regular flushing of feeding tubes,
preventing and controlling of infections and monitoring for complications are
integral components of CANH protocols.48 The CANH protocols require that
enteral feeding tubes be flushed with water before and after medication or
feeding, or at certain hourly intervals during continuous feeding, to prevent
49
clogging and ensure adequate hydration. The protocols further mandate
that, in the event a CANH device gets dislodged, the reinsertion of the CANH
shall be undertaken only under appropriate medical supervision so as to
obviate the high risk of peritonitis and aspiration, which are potentially fatal
complications. 50 For example, if a PEG tube becomes partially dislodged and
such dislodgement goes unnoticed, the specialised liquid nutrition, fluids, or
medication administered through it may leak into the abdominal cavity,
leading to peritonitis, which is a severe infection that may be life-threatening.
Similarly, if a nasogastric or orogastric tube gets misplaced, it risks
introducing fluids or medication into the respiratory tract or pleura, which
could be fatal. Therefore, medical guidance has to be sought for reinsertion,
51
to prevent such adverse consequences.
118. The aforesaid clinical and procedural characteristics of CANH indicate,
without an iota of doubt, that CANH cannot be regarded as a mere means of
basic sustenance or primary care, but should be recognised as a
technologically mediated medical intervention that is prescribed, supervised
and periodically reviewed by trained healthcare professionals in accordance
with established medical standards.
119. We are in respectful agreement with Schreiber J.'s erudite reasoning
in In re Conroy, 98 N.J. 321, wherein, although he acknowledged the
emotional symbolism of food and the innate emotions which are invoked
when it comes to feeding and nourishment, yet he went on to hold that CANH
methods are significantly different from bottle feeding or spoon feeding when
judged on medical parameters. He observed that artificial feeding
mechanisms such as nasogastric tubes, gastrostomies and intravenous
infusions are significantly different from bottle or spoon feeding as they are
medical procedures with inherent risks and possible side effects, administered
by skilled health care providers to compensate for impaired physical
functioning. Drawing an analogy between artificial feeding by means of a
nasogastric tube or intravenous infusion and artificial breathing by means of a
respirator, Schreiber J. elaborated on how these medical procedures that
ensure nutrition and hydration involve the risks and burdens of serious
complications and could sometimes be seriously distressing to the patient.
The pertinent observations made by Schreiber J. read thus:
“Certainly, feeding has an emotional significance. As infants we could
breathe without assistance, but we were dependent on others for our
lifeline of nourishment. Even more, feeding is an expression of nurturing
and caring, certainly for infants and children, and in many cases for adults
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as well.
Once one enters the realm of complex, high technology medical care, it
is hard to shed the ‘emotional symbolism’ of food. However, artificial
feedings such as nasogastric tubes, gastrostomies, and intravenous
infusions are significantly different from bottle feeding or spoon feeding -
they are medical procedures with inherent risks and possible side effects,
instituted by skilled health care providers to compensate for impaired
physical functioning. Analytically, artificial feeding by means of a
nasogastric tube or intravenous infusion can be seen as equivalent to
artificial breathing by means of a respirator. Both prolong life through
mechanical means when the body is no longer able to perform a vital
bodily function on its own.
Furthermore, while nasogastric feeding and other medical procedures to
ensure nutrition and hydration are usually well tolerated, they are not free
from risks or burdens; they have complications that are sometimes serious
and distressing to the patient.”
(Emphasis Supplied)
120. Drawing upon this analogy between CANH and artificial respiratory
support given by Schreiber J., we may refer to one another crucial observation
made by the High Court of Auckland, New Zealand in Auckland Area Health
Board v. Attorney-General, (1992) 8 CRNZ 634 regarding the role played by
such artificial life sustaining systems and why their medical function or
purpose should be given due regard when considering their administration. In
Auckland Area Health Board (supra), while considering the permissibility of
withholding artificial respiratory support, Thomas J. observed that a life
support system may by itself not prevent or cure the underlying life-
threatening condition but may nonetheless serve a therapeutic or medical
function by enabling the patient to survive long enough for recovery. In such
a case, the intervention only alleviates the effect(s) of the illness while nature
or other medical treatments address the underlying condition. In that sense,
unless the life support system serves further medical function or therapeutic
purpose, it would not be unlawful to discontinue it if such discontinuance is in
accordance with good medical practice. Thomas J. goes on to observe that:
“To require the administration of a life support system when such a
system has no further medical function or purpose and serves only to defer
the death of the patient is to confound the purpose of medicine. In such
circumstances, the continuation of the artificial ventilation may be lawful,
but that does not make it unlawful to discontinue it if the discontinuance
accords with good medical practice.”
This reasoning adopted in Auckland Area Health Board (supra) applies with
equal force to CANH. Thus, like artificial ventilatory support, CANH also serves
a therapeutic or medical function and must therefore be assessed under the
same legal framework applicable to other life-sustaining medical
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interventions.
121. Furthermore, in Airedale (supra), Lord Keith rejected the argument
that artificial feeding by nasogastric tube was indistinguishable from normal
feeding, the latter of which did not amount to medical treatment. He
emphatically acknowledged that there is a distinction between CANH and
normal feeding, as the administration of nourishment by artificial means
involves the application of a medical technique. Driving home this point, Lord
Keith succinctly observed that it is incorrect to direct exclusive attention to
the fact that nourishment is being provided. Rather, regard should be had for
the whole regime of medical treatment that keeps the patient alive, including
that of artificial feeding, which involves the application of medical technique.
In observing thus, Lord Keith places CANH on the same pedestal as other
forms of medical treatment, vis-à-vis which the medical practitioners are
under no greater duty to administer it if such medical treatment would not
confer any benefit to the patient. We consider it important to quote Lord
Keith's observations in Airedale (supra), which are as follows:
“[…] It was argued for the guardian ad litem, by analogy with that case,
that here the doctors in charge of Anthony Bland had a continuing duty to
feed him by means of the nasogastric tube and that if they failed to carry
out that duty they were guilty of manslaughter, if not murder. This was
coupled with the argument that feeding by means of the nasogastric tube
was not medical treatment at all, but simply feeding indistinguishable from
feeding by normal means. As regards this latter argument, I am of the
opinion that regard should be had to the whole regime, including the
artificial feeding, which at present keeps Anthony Bland alive. That regime
amounts to medical treatment and care, and it is incorrect to direct
attention exclusively to the fact that nourishment is being provided. In any
event, the administration of nourishment by the means adopted involves
the application of a medical technique. But it is, of course, true that in
general it would not be lawful for a medical practitioner who assumed
responsibility for the care of an unconscious patient simply to give up
treatment in circumstances where continuance of it would confer some
benefit on the patient. On the other hand a medical practitioner is under no
duty to continue to treat such a patient where a large body of informed and
responsible medical opinion is to the effect that no benefit at all would be
conferred by continuance. Existence in a vegetative state with no prospect
of recovery is by that opinion regarded as not being a benefit, and that, if
not unarguably correct, at least forms a proper basis for the decision to
discontinue treatment and care: Bolam v. Friern Hospital Management
Committee [1957] 1 WLR 582”
(Emphasis Supplied)
122. The aforementioned observation made by Lord Keith regarding
consideration of the whole regime of medical treatment, including artificial
feeding, when read with Lord Lowry's observation Airedale (supra), makes it
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all the more poignant. Taking a comprehensive view of CANH, Lord Lowry
observed that an artificial feeding regime is inevitably associated with the
continuous use of catheters and enemas and the constant combating of
potentially deadly infection(s). He observes thus:
“4. Although entirely satisfied with your Lordships’ consensus, I ought
finally to touch on the real point in the case. The strength of the Official
Solicitor's argument lies in its simplicity. In answer to the respondent's
reliance on accepted medical opinion that feeding (nutrition and
hydration), particularly by sophisticated artificial methods, is part of the
life-supporting medical treatment, he says that the duty to feed a helpless
person, such as a baby or an unconscious patient, is something different,
an elementary duty to keep the patient alive which exists independently of
all questions of treatment and which the person in charge cannot omit to
perform: to omit deliberately to perform this duty in the knowledge that
the omission will lead to the death of the helpless one, and indeed with the
intention, as in the present case, of conducing to that death, will render
those in charge guilty of murder. One of the respondent's counter-
arguments, albeit not conclusive, is based on the overwhelming verdict of
informed medical opinion worldwide, with particular reference to the
common law jurisdictions, where the relevant law generally corresponds
closely with our own, that therapy and life-supporting care, including
sophisticated methods of artificial feeding, are components of medical
treatment and cannot be separated as the Official Solicitor contends. In
this connection it may also be emphasised that an artificial feeding regime
is inevitably associated with the continuous use of catheters and enemas
and the sedulous avoidance and combatting of potentially deadly infection.
I consider that the court, when intent on reaching a decision according to
law, ought to give weight to informed medical opinion both on the point
now under discussion and also on the question of what is in the best
interests of a patient and I reject the idea, which is implicit in the
appellant's argument, that informed medical opinion in these respects is
merely a disguise for a philosophy which, if accepted, would legalise
euthanasia.”
(Emphasis Supplied)
123. At this juncture, it is pertinent to refer to the observation regarding
‘feeding tubes’ made by Sikri, J. in Common Cause 2018 (supra), which reads
thus:
“219. Passive euthanasia occurs when medical practitioners do not
provide life-sustaining treatment (i.e. treatment necessary to keep a
patient alive) or remove patients from life-sustaining treatment. This could
include discontinuing treatment. This could include discontinuing life-
support machines or feeding tubes or not carrying out life-saving
operations or providing life-extending drugs.”
(Emphasis Supplied)
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124. A similar view has been echoed by D.Y. Chandrachud, J., in Common
Cause 2018 (supra), in his reference to feeding through hydration tubes as an
example of medical treatment which an individual might be subjected to in an
emergency, but with regard to which one should have the right of refusal if
such artificial prolongation results in human suffering. D.Y. Chandrachud, J.,
in Common Cause 2018 (supra) observes thus:
“359. Individuals who suffer from chronic disease or approach the end of
the span of natural life often lapse into terminal illness or a permanent
vegetative state. When a medical emergency leads to hospitalisation,
individuals in that condition are sometimes deprived of their right to refuse
unwanted medical treatment such as feeding through hydration tubes or
being kept on a ventilator and other life support equipment. Life is
prolonged artificially resulting in human suffering […]”
125. To acknowledge that the very survival of the patient in a PVS
condition is resting on an invasive form of artificial support made possible by
medical science and technology, yet deny such intervention the status of a
‘medical treatment’ in respect of which doctors could exercise their clinical
judgment, would stretch the concept of basic or primary care to an extent
that it becomes illogical. Thus, it is crucial that CANH be regarded as medical
treatment, forming an integral part of a patient's medical management, and
be subject to the same ethical, legal, and clinical principles that govern the
initiation, continuation, withholding, or withdrawal of other life-sustaining
medical interventions. To deny it recognition as a medical treatment would
reduce the patient to being a passive subject of medical technology, while
simultaneously depriving doctors of the agency necessary to responsibly
assess the therapeutic value of such intervention in the discharge of their
duty of care.
126. However, another significant aspect that needs to be addressed is
whether CANH that is administered at home can still be regarded as a
medical treatment. We hereby clarify that merely because routine feeding in
the form of CANH can be administered at home, by an informed lay person, it
cannot be relegated to a non-medical status. We find the reasoning given by
Morris J., in Re BWV; Ex parte Gardner, 2003 VSC 173, to be most apt in
addressing this point. Therein it was recognised by the Supreme Court of
Victoria, Australia, that artificial nutrition and hydration involves protocols,
skills and care which draw from and depend upon medical knowledge. In his
opinion, Morris J., clearly reasons out why the use of PEG for artificial nutrition
and hydration is unquestionably a medical procedure. He explains how
artificial nutrition and hydration will inevitably require the careful choice of
materials and preparation methods, close consideration of dosage rates,
measures to prevent infection, and regular cleaning of conduits. These
measures cannot be regarded as common knowledge. Rather, they draw from
and depend upon medical knowledge. More pertinently, he observes, that
although artificial nutrition and hydration, via a PEG, can be performed at
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shall be the “best interests of the patient”, and the determination in that
regard must rest with competent medical experts. The relevant observations
are as under:
Dipak Misra, CJ.
“192. […] In general, as per the settled law vide the decision in
Airedale, life-sustaining treatment including artificial nutrition and
hydration can be withdrawn if the patient consents to it and in case of
incompetent patients, if it is in their best interest to do so.”
A.K. Sikri, J.
“462 […] Placing a patient on artificial life support would, in such a
situation, merely prolong the agony of the patient. Hence, a decision by
the doctor based on what is in the best interest of the patient
precludes an intent to cause death […].
D.Y. Chandrachud, J.
“521. The decision by a treating doctor to withhold or withdraw medical
intervention in the case of a patient in the terminal stage of illness or in a
persistently vegetative state or the like where artificial intervention will
merely prolong the suffering and agony of the patient is protected by the
law. Where the doctor has acted in such a case in the best interest of the
patient and in bona fide discharge of the duty of care, the law will protect
the reasonable exercise of a professional decision.”
Ashok Bhushan, J.
“629.9. We are also of the opinion that in cases of incompetent patients
who are unable to take an informed decision, “the best interests
principle” be applied and such decision be taken by specified
competent medical experts and be implemented after providing a
cooling period to enable aggrieved person to approach the court of law.”
(Emphasis Supplied)
133. Furthermore, according to Para. 198.5.3 (cases where an AMD is
present) and Para. 199.4 (cases where an AMD is absent) of the guidelines as
laid down in Common Cause (supra), respectively, it is also obligatory upon
the court dealing with the question of withdrawal or withholding of medical
treatment to ascribe reasons for the same, while specifically keeping in mind
the principle of best interest of the patient. At Para. 202.14 of the guidelines
as laid down in Common Cause (supra), this Court also laid down that when
withdrawing or withholding medical treatment is considered medically
appropriate as a part of the patient's palliative care, then the patient's best
interests must take priority over the interests of the State to preserve life.
The relevant excerpts from the guidelines as laid down in Common Cause
(supra) are as follows:
“198.5.3. Needless to say that the High Court shall render its decision at
the earliest as such matters cannot brook any delay and it shall ascribe
reasons specifically keeping in mind the principles of “best interests of the
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patient”.
xxx xxx xxx
199.4. […] Needless to say, the High Court shall ascribe High Court shall
ascribe reasons specifically reasons specifically keeping in mind the
keeping principle of “best interests of the patient”.
xxx xxx xxx
202.14. When passive euthanasia as a situational palliative measure
becomes applicable, the best interest of the patient shall override the State
interest.
(Emphasis Supplied)
134. From the foregoing discussion, it emerges that the application of the
principle of the “best interests of the patient” possesses an intrinsic and
qualified significance in determining whether medical treatment should be
withdrawn or withheld. However, at this stage, a pertinent question arises as
to the precise content, contours, and scope of this principle, and the manner
in which it is to be applied to the facts and circumstances of each individual
case. We are, therefore, of the considered view that it is imperative, at the
threshold, to elucidate the meaning and ambit of the principle of best
interests, which receives paramount consideration in contemplating the
withdrawal or withholding of medical intervention. We intend to undertake
this exercise by examining a series of decisions rendered by courts across
various jurisdictions, wherein the principle of best interests has been
expounded, particularly in the context of issues relating to the withdrawal or
withholding of medical treatment. We shall also advert, albeit briefly, to the
meaning and scope of this principle as evidenced in the recommendations
given by the Law Commission of India in its 196th Report titled “Medical
Treatment to Terminally Ill Patients (Protection of Patients and Medical
st
Practitioners)” and in its 241 Report titled “Passive Euthanasia - A Relook”,
and, finally, to the exposition of this Court in Common Cause 2018 (supra).
(a) Best interest of the patient in United States of America (USA)
135. The earliest authority in the USA relevant for our discourse is of In re
Eichner on behalf of Fox, 73 A.D.2d 431. In this case, the Supreme Court of
New York was concerned with the case of Brother Joseph Charles Fox, an 83-
year-old Catholic monk who suffered a cardiac arrest during routine hernia
surgery, resulting in severe and irreversible brain damage and leaving him in
a PVS. He was sustained solely by artificial ventilation and had no prospect of
recovery. Father Philip K. Eichner, a close associate and religious superior,
applied before the court seeking a declaration of the patient's incompetence
and authorisation to withdraw the respirator, relying on the patient's
previously expressed wishes not to be kept alive by extraordinary means. The
trial court permitted withdrawal of the respirator. The District Attorney
preferred an appeal. During the pendency of the appeal, the patient died
naturally; however, the court proceeded to determine the matter, observing
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that similar issues were capable of recurring. The Supreme Court of New York
ultimately affirmed the decision of the trial court, holding that withdrawal of
extraordinary life-sustaining treatment was permissible, subject to strict
procedural safeguards and clear medical confirmation. The court observed
that the law confers jurisdiction upon the court to act in relation to an
incompetent person only in furtherance of his best interests and in exercise of
its protective jurisdiction.
136. The court then addressed the question of the patient's wishes and
recognised that, in many cases, a specific prior statement of intent may not
be available. In such circumstances, the court held that an alternative
mechanism is required to safeguard the patient's right to refuse treatment.
The court approved the use of the substituted judgment standard in such
circumstances and recognised that such an approach had received judicial
acceptance in the USA. The court further observed that substituted judgment
is intended to give effect to the patient's own wishes and autonomy and is
best undertaken by persons who knew the patient closely. The court further
emphasised that the substituted judgment must proceed on the basis that it
reflects the patient's own choice, i.e., what the patient would have wanted if
he had capacity. The relevant observations are as under:
“The legal component concerns the mechanism by which the patient's
intentions are ascertained, if possible, and his best interests safeguarded.
But the question does not end there for we recognize that a specific
statement of intent by the patient will occur only in a minority of cases.
Another mechanism is required if the comatose patient's [**548] right to
refuse extraordinary life-prolonging medical treatment is to be
safeguarded. Both Quinlan and Saikewicz faced the problem, although in
different contexts: in Quinlan the 21-year-old Karen, in the full flower of
her [***89] health, had no reason to contemplate the possibility of death
and therefore no reason to make known her wishes; in Saikewicz, the 67-
year-old retardate had an I.Q. of 10, and a mental age of less than three,
and hence was incapable of intelligently expressing his wishes […] Both
courts, however, elected a similar procedural mechanism: a “substitute” or
proxy judgment by the patient's guardian in the best interests of the
incompetent patient. This was no great departure from the norm since
“[courts] in the exercise of their parens patriae responsibility to protect
those under disability have sometimes implemented medical decisions and
authorized their carrying out under the doctrine of ‘substituted judgment
[…] The Quinlan court held that the “only practical way to prevent
destruction of the right is to permit the [***90] guardian and family of
Karen to render their best judgment * * * as to whether she would
exercise it in these circumstances”. Similarly, the guardian ad litem in
Saikewicz was required to make a substitute judgment based on the
“incompetent person's actual interests and preferences […] We believe that
this is essentially a sound approach, borne of the exigencies of the
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surrogate must act in the patient's best interests, assessed by factors such as
relief from suffering, preservation or restoration of functioning, and the
quality and extent of life sustained. The surrogate may also consider the
impact of the decision on those closest to the patient. The relevant
observations are as under:
“[…] A more rational approach involves the determination of whether the
proposed [*1019] treatment is proportionate or disproportionate in terms
of the benefits to be gained versus the burdens caused.
Under this approach, proportionate treatment is that which, in the view
of the patient, has at least a reasonable chance of providing [***22]
benefits to the patient, which benefits outweigh the burdens attendant to
the treatment. Thus, even if a proposed course of treatment might be
extremely painful or intrusive, it would still be proportionate treatment if
the prognosis was for complete cure or significant improvement in the
patient's condition […]
xxx xxx xxx
Of course the patient's interests and desires are the key ingredients of
the decision-making process. When dealing with patients for whom the
possibility of full recovery is virtually nonexistent, and who are incapable of
expressing their desires, there is also something of a consensus on the
standard to be applied.
The focal point of decision should be the prognosis as to the reasonable
possibility of return to cognitive and sapient life, as distinguished from the
forced continuance of that biological vegetative existence.
Prolongation of life […] does not mean a mere suspension of the act of
dying, but contemplates, at the very least, a remission of symptoms
enabling a return towards a normal, functioning, integrated existence.
If it is not possible to ascertain the choice the patient would have made,
the surrogate ought to be guided in his decision by the patient's best
interests. Under this standard, such factors as the relief of suffering, the
preservation or restoration of functioning and the quality as well as the
extent of life sustained may be considered. Finally, since most people are
concerned about the well-being [***27] of their loved ones, the surrogate
may take into account the impact of the decision on those people closest to
the patient.”
(Emphasis Supplied)
139. Further, in In re Conroy (supra), the Supreme Court of New Jersey
considered the case of Claire C. Conroy, an incompetent, bedridden nursing-
home resident suffering from severe and irreversible physical and mental
impairments, including advanced dementia, gangrene, ulcers, and inability to
swallow. She was not terminally ill, comatose, or in a vegetative state, but
was being sustained through a nasogastric feeding tube, which constituted
her sole source of nutrition and hydration. Her nephew and legal guardian
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patient's intent under the subjective test. Evidence that, taken as a whole,
would be too vague, casual, or remote to constitute the clear proof of the
patient's subjective intent that is necessary to satisfy the subjective test —
for example, informally expressed reactions to other people's medical
conditions and treatment — might be sufficient to satisfy this prong of the
limited-objective test.
In the absence of trustworthy evidence, or indeed any evidence at all,
that the patient would have declined the treatment, life-sustaining
treatment may still be withheld or withdrawn from a formerly competent
person like Claire Conroy if a third, pure-objective test is satisfied. Under
that test, as under the limited-objective test, the net burdens of the
patient's life with the treatment should clearly and markedly outweigh the
benefits that the patient derives from life. Further, the recurring,
unavoidable and severe pain of the patient's life with the treatment should
be such that the effect of administering life-sustaining treatment would be
inhumane. Subjective evidence that the patient would not have wanted the
treatment is not necessary under this pure-objective standard.
Nevertheless, even in the context of severe pain, life-sustaining treatment
should not be withdrawn from an incompetent patient who had previously
expressed a wish to be kept alive in spite of any pain that he might
experience.”
(Emphasis Supplied)
141. In Rasmussen v. Fleming, 154 Ariz. 207, the Supreme Court of
Arizona was seized with a case involving a 64-year-old patient named Mildred
Rasmussen who was admitted to a nursing home and later suffered multiple
strokes, leading to severe, irreversible brain damage and a chronic vegetative
state. She was incapable of caring for herself, was largely non-responsive,
and had no realistic prospects of recovery, according to medical experts.
142. The Supreme Court of Arizona expressed the view that in cases
involving surrogate medical decision-making, two distinct standards have
been developed by courts, namely, substituted judgment and best interests.
Under the substituted judgment standard, the guardian is required to attempt
to reach the decision that the incapacitated person would have made if he or
she had the capacity to choose, and this standard is most appropriately
applied where the patient, while competent, has manifested his or her
intentions concerning medical treatment. However, the court clarified that
where the evidentiary record is barren of any reliable indication of the
patient's prior wishes, the substituted judgment standard provides little or no
meaningful guidance and must therefore give way to the best interests
standard. In such circumstances, the surrogate decision-maker is required to
determine what course of medical treatment would best serve the patient's
interests, assessed by reference to objective considerations. The relevant
observations are as under:
“We conclude that Rasmussen's right to refuse medical treatment still
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existed despite her incompetency and her failure to articulate her medical
treatment desires prior to becoming incompetent. Because she was
incapable of exercising that right, however, we must determine who could
exercise that right for her.
WHO CAN EXERCISE AN INCOMPETENT'S RIGHT TO REFUSE MEDICAL
TREATMENT
The court of appeals held that either a family member or a guardian
could exercise Rasmussen's right to refuse medical treatment […] The
guardian ad litem contends that the guardian should not have unbridled
discretion to decide whether to refuse any or all medical treatment. We
agree. Courts have developed two standards to guide surrogate decision
making: “substituted judgment” and “best interests.” Under the
substituted judgment standard, the guardian “attempt[s] to reach the
[***36] decision that the incapacitated person would make if he or she
were able to choose.” […] This standard best guides a guardian's decision-
making when a patient has manifested his or her intent while competent.
[***37] Unfortunately, the record in this [*222] [**689] case is barren of
any evidence that Rasmussen expressed her medical desires in any form
prior to becoming incompetent. Where no reliable evidence of a patient's
intent exists, as here, the substituted judgment standard provides little, if
any, guidance to the surrogate decisionmaker and should be abandoned in
favour of the “best interests” standard […] Under the best interests
standard, the surrogate decisionmaker assesses what medical treatment
would be in the patient's best interests as determined by such objective
criteria as relief from suffering, preservation or restoration of functioning,
and quality and extent of sustained life.”
(Emphasis Supplied)
143. Later, in the landmark decision of Cruzan v. Director, Missouri
Department of Health, 1990 SCC OnLine US SC 123 : 497 US 261 (1990), the
Supreme Court of the USA considered the case of Nancy Cruzan, a 25-year-
old woman who had suffered severe brain damage due to oxygen deprivation
following a motor vehicle accident, leaving her in a PVS with no realistic
prospect of regaining cognitive function. She was sustained by CANH through
a feeding tube, though she could breathe without mechanical assistance.
Nancy's parents, acting as her guardians, sought withdrawal of the feeding
tube, relying upon her prior informal statements indicating that she would not
wish to live in a “vegetable-like” condition. The hospital declined to withdraw
life-sustaining treatment without judicial authorisation. The Missouri Supreme
Court denied permission, holding that there was no clear and convincing
evidence of Nancy's wishes to refuse life-sustaining treatment.
144. The matter reached the Supreme Court of the United States to decide
whether the Federal Constitution required the State of Missouri to permit
withdrawal of CANH in such circumstances. A majority of the court, speaking
through Chief Justice Rehnquist and four concurring judges, upheld the
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Some of these objective criteria are the same as those considered in the
“best interests of the ward” test. “[T]he best interests analysis, like that of
the substituted judgment doctrine, requires a court to focus on the various
factors unique to the situation of the individual for whom it must act.” […]
while ward's best interests are relevant to substituted judgment
determination, “they are relevant only to the extent that the individual, if
competent, would weigh them in deciding whether to accept treatment”.”
(Emphasis Supplied)
151. In the case of In re Guardianship of L.W., 167 Wis. 2d 53, the
Supreme Court of Wisconsin examined whether life-sustaining medical
treatment, including artificial nutrition and hydration, could be withdrawn
from an incompetent patient in a PVS, and whether such a decision could
lawfully be taken by a guardian. In this case, L.W., a 79-year-old man with a
long history of severe schizophrenia who had been admitted to the hospital
for decades and may never be competent, suffered a cardiac arrest and
thereafter entered a chronic PVS. His physicians advised that, absent his
improvement, withdrawal of life-sustaining treatment would be considered.
The guardian sought declaratory guidance as to whether he could consent to
such withdrawal without prior court approval. Although L.W. died naturally
while the matter was pending, the court addressed the issues owing to their
public importance. The court held that an incompetent individual in a PVS
possesses a constitutionally protected right to refuse unwanted medical
treatment, including CANH, and that a guardian may exercise that right on
the ward's behalf where withdrawal is in the ward's best interests. The court
clarified that, where a patient's wishes can be clearly ascertained, it is in the
patient's best interests to honour those wishes, however, where there is little
or no reliable evidence of past wishes (as in the case of a never-competent or
long-incompetent patient) the substituted judgment standard would be
inapplicable, and the decision must instead be governed exclusively by the
best interests principle. In applying that principle, the guardian must begin
from a presumption in favour of the continuation of life, but may rebut that
presumption through a good faith assessment of objective factors viewed
from the patient's standpoint, including prognosis, life expectancy, prospects
of recovery, the burdens and benefits of continued treatment, and the degree
of humiliation, dependence, and loss of dignity likely to result from the
patient's condition and its treatment. The court gave ample caution that in
such circumstances the guardian must not substitute his own assessment of
the beliefs, values, and wishes of the patient's life. The relevant observations
are as under:
“We conclude that an incompetent individual in a persistent vegetative
state has a constitutionally protected right to refuse unwanted medical
treatment, including artificial nutrition and hydration, that a court-
appointed guardian may consent to withdrawal of such treatment where it
is in the “best interests” of the ward to do so, and that the guardian does
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not need the prior authority of the court, although that decision may be
reviewed by the court at the instance of parties in interest. We stress that
this opinion is limited in scope to persons in a persistent vegetative state.
xxx xxx xxx
Certainly the patient's wishes, as far as they can be discerned, are an
appropriate consideration for the guardian. If the wishes are clear, it is
invariable as a matter of law, both common and statutory, that it is in the
best interests of the patient to have those wishes honored, for the patient
has made the pre-choice of what he or she considers to be the best
interests under the *80 circumstances that arise […]
xxx xxx xxx
We also hold that in a case such as this one where there can be no
reliable ascertainment of the incompetent's wishes, only the best interests
standard can be applied. We are fully in accord with the circuit court's
conclusion in this respect. In the circumstances of this proceeding the
guardian.
xxx xxx xxx
In making the best interests determination, the guardian must begin
with a presumption that continued life is in the best interests of the ward.
Whether that presumption may be overcome depends upon a good faith
assessment by the guardian of several objective factors.
Objective factors the guardian may consider include:
The degree of humiliation, dependence, and loss of dignity probably
resulting from the condition and treatment; the life expectancy and
prognosis for recovery with and without treatment; the various treatment
options; and the risks, side effects, and benefits of each of those options.
xxx xxx xxx
In determining whether to withdraw or withhold medical treatment from
patient in persistent vegetative state, guardian must assess objective
factors from standpoint of patient, and should not substitute his or her own
view of “quality of life” of ward; guardian's determination of what is in
ward's best interests necessarily involves assessment of value that
continuation of life has for ward, but should not involve value others find in
continuation of ward's life, and guardian should not engage in subjective
quality of life determination on behalf of ward. U.S.C.A. Const. Amend. 14;
W.S.A. Const. Art. 1, § 1; W.S.A. 154.01 et seq.”
(Emphasis Supplied)
152. From the above, it appears that courts in the USA have approached
decisions relating to withdrawal of life-sustaining treatment through a
structured interaction between the substituted judgment standard and the
best interests principle, rather than treating them as isolated or competing
tests.
153. Where evidence exists of the patient's prior wishes, values, or
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convictions, the courts in the USA have preferred the substituted judgment
standard as the primary mode of decision-making. This is evident in In re
Eichner (supra), where the court emphasised that the role of the surrogate is
to determine what the patient would have decided if he had been competent,
based on prior expressions and deeply held beliefs, while simultaneously
grounding that inquiry in the objective threshold of medical findings of
irreversibility, absence of cognitive function, and lack of therapeutic purpose
i.e., medically what is in best interest. Similarly, in Barber (supra), the court
acknowledged the prior expressions of the patient's wishes and then
evaluated continued treatment through a proportionality analysis, holding
that treatment which merely prolongs biological existence without any
reasonable prospect of recovery does not serve the patient's interests and
imposes no legal duty on physicians to continue it.
154. At the same time, the courts have repeatedly acknowledged that
substituted judgment cannot operate meaningfully in the absence of reliable
evidence of the patient's intentions. In such circumstances, the substituted
judgment standard yields to a best interests determination grounded in
objective criteria. This transition is clearly articulated in Rasmussen (supra),
where the court held that substituted judgment is appropriate only where the
patient has expressed his wishes while competent, and that where the record
is barren of such evidence, decisions must be guided solely by the patient's
best interests, assessed through factors such as relief from suffering, recovery
of cognitive functioning, and the quality and extent of life sustained. A similar
approach is reflected in In re Conroy (supra), where the court developed best
interests tests to govern cases involving incompetent patients whose wishes
could not be clearly established, permitting withdrawal of treatment where
the burdens of continued life with treatment clearly outweigh its benefits and
continuation would be inhumane.
155. The decision of the Supreme Court of the USA in Cruzan (supra),
introduces an important point of divergence. While the majority upheld the
State's requirement of clear and convincing evidence of the patient's wishes
before permitting withdrawal of life-sustaining treatment, the dissenting
opinions, particularly those of Justice Brennan and Justice Stevens, placed
greater emphasis on the patient's best interests and the factual findings of
the trial court. The dissent criticised the elevation of the State's abstract
interest in preserving life over the individual patient's interests, especially
where the medical evidence established permanent unconsciousness,
irreversibility, and the absence of any benefit to the patient from continued
treatment. The dissent further noted that the trial court had already found, on
clear and convincing evidence, that withdrawal of treatment was in the
patient's best interests, that the family acted in good faith, and that no third-
party interests were adversely affected. We resonate with the observations
made in the dissenting opinions, more particularly, the primacy that they
have accorded to the patient's welfare and dignity, rather than endorsing very
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best interests, it must follow that the treatment may, and indeed
ultimately should, be discontinued where it is no longer in his best
interests to provide it. […] The question is not whether the doctor should
take a course that will kill his patient, or even take a course which has the
effect of accelerating his death. The question is whether the doctor should
or should not continue to provide his patient with medical treatment or
care which, if continued, will prolong his patient's life […] This is because
the question is not whether it is in the best interests of the patient that he
should die. The question is whether it is in the best interests of the patient
that his life should be prolonged by the continuance of this form of medical
treatment or care.
xxx xxx xxx
[…] The correct formulation of the question is of particular importance in
a case such as the present, where the patient is totally unconscious and
where there is no hope whatsoever of any amelioration of his condition. In
circumstances such as these, it may be difficult to say that it is in his best
interests that the treatment should be ended. But if the question is asked,
as in my opinion it should be, whether it is in his best interests that
treatment which has the effect of artificially prolonging his life should be
continued, that question can sensibly be answered to the effect that his
best interests no longer require that it should be.
xxx xxx xxx
[…] Here, the condition of the patient, who is totally unconscious and in
whose condition there is no prospect of any improvement, is such that life-
prolonging treatment is properly regarded as being, in medical terms,
useless […] But for my part, I cannot see that medical treatment is
appropriate or requisite simply to prolong a patient's life, when such
treatment has no therapeutic purpose of any kind, as where it is futile
because the patient is unconscious and there is no prospect of any
improvement in his condition. It is reasonable also that account should be
taken of the invasiveness of the treatment and of the indignity to which, as
the present case shows, a person has to be subjected if his life is
prolonged by artificial means […] But in the end, in a case such as the
present, it is the futility of the treatment that justifies its termination. I do
not consider that, in circumstances such as these, a doctor is required to
initiate or to continue life-prolonging treatment or care in the best interests
of his patient […]”
(Emphasis Supplied)
161. In a similar trend, Lord Mustill observed that it was in the best
interest of the community at large that Anthony Bland's life should end. The
doctors had done all they could have done. It was a lose-lose situation as
nothing would be gained by continuing Bland's treatment. Lord Lowry also
observed that in reaching a decision according to law, one ought to give
weight to informed medical opinion both on the point whether to continue the
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artificial feeding regime of a patient in PVS and also on the question of what
is in the best interests of a patient. The relevant observations of Lord Mustill
and Lord Lowry are as follows:
“[…] Threaded through the technical arguments addressed to the House
were the strands of a much wider position, that it is in the best interests of
the community at large that Anthony Bland's life should now end. The
doctors have done all they can. Nothing will be gained by going on, and
much will be lost. The distress of the family will get steadily worse. The
strain on the devotion of a medical staff charged with the care of a patient
whose condition will never improve, who may live for years and who does
not even recognise that he is being cared for, will continue to mount […]
xxx xxx xxx
[…] I consider that the court, when intent on reaching a decision
according to law, ought to give weight to informed medical opinion both on
the point now under discussion and also on the question of what is in the
best interests of a patient and I reject the idea, which is implicit in the
appellant's argument, that informed medical opinion in these respects is
merely a disguise for a philosophy which, if accepted, would legalise
euthanasia.”
(Emphasis Supplied)
162. Lastly, Lord Browne-Wilkinson, in concurrence with the above views,
expressed the view that if there comes a stage where a responsible doctor
reaches a reasonable conclusion, which accords with the views of a
responsible body of medical opinion, that further continuance of an intrusive
life support system is not in the best interests of the patient, the doctor can
no longer lawfully continue that life support system as to do so would
constitute the crime of battery and the tort of trespass. According to him,
unless the doctor has reached the affirmative conclusion that it is in the
patient's best interest to continue the invasive care, such care must cease.
The relevant observations of Lord Browne-Wilkinson are as under:
“[…] In my judgment it must follow from this that if there comes a
stage where the responsible doctor comes to the reasonable conclusion
(which accords with the views of a responsible body of medical opinion)
that further continuance of an intrusive life support system is not in the
best interests of the patient, he can no longer lawfully continue that life
support system: to do so would constitute the crime of battery and the tort
of trespass to the person. Therefore, he cannot be in breach of any duty to
maintain the patient's life. Therefore, he is not guilty of murder by
omission.”
(Emphasis Supplied)
163. Thus, from the collective reasoning and concurring opinions
expressed by the House of Lords in Airedale (supra), it becomes manifest that
the determination of what constitutes the “best interests of the patient” must
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been able to do so. This is called the substituted judgment test, and it
generally involves a detailed inquiry into the patient's views and
preferences”
(Emphasis Supplied
166. Later, in the case of Re A (Male Sterilisation), reported in (2000) 1
FLR 549 560 F-H, the Court of Appeal developed the use of a “balance sheet
approach” in determining the best interest of an incompetent person.
According to this approach, a judge who is tasked with the responsibility to
make an evaluation of what is in the best interest of the patient who lacks
capacity should draw up a balance sheet. In such a balance sheet, the first
entry should be of any factor or factors of actual benefit. On the other side, a
judge or a decision-maker should write any counter-balancing disadvantages
to the patient. Then he should enter on each side the potential gains and
losses for each instance. At the end of that exercise, the judge or the decision
-maker should be better placed to strike a balance between the sum of
certain and possible gains against the sum of the certain and possible losses.
The account that has relatively significant credit will be the concluding factor
in deciding what is in the best interest of the patient. The relevant
observation is as under:
“Pending the enactment of a checklist or other statutory direction it
seems to me that the first instance judge with the responsibility to make
an evaluation of the best interests of a claimant lacking capacity should
draw up a balance sheet. The first entry should be of any factor or factors
of actual benefit. In the present case the instance would be the acquisition
of foolproof contraception. Then on the other sheet the judge should write
any counterbalancing disbenefits to the applicant. An obvious instance in
this case would be the apprehension, the risk and the discomfort inherent
in the operation. Then the judge should enter on each sheet the potential
gains and losses in each instance making some estimate of the extent of
the possibility that the gain or loss might accrue. At the end of that
exercise the judge should be better placed to strike a balance between the
sum of the certain and possible gains against the sum of the certain and
possible losses. Obviously, only if the account is in relatively significant
credit will the judge conclude that the application is likely to advance the
best interests of the claimant.”
(Emphasis Supplied)
167. In drawing up this balance sheet, the court is not concerned solely
with medical issues, but also takes into account wider factors concerning the
patient. Therefore, in Re A (Male Sterilisation) (supra), the Court of Appeal
had observed that the best interests of the patient are not limited to best
medical interests. In fact, the best interests of the patient should encompass
medical, emotional and any other welfare issues as well. The relevant
observation is as under:
“In re MB (Medical Treatment) (1997) 2 FLR 426 I said at page 439:
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(2) The person making the determination must consider all the relevant
circumstances and, in particular, take the following steps.
(3) He must consider (a) whether it is likely that the person will at some
time have the capacity in relation to the matter in question, and (b) if it
appears likely that he will, when that is likely to be.
(4) He must, so far as reasonably practicable, permit and encourage the
person to participate, or improve his ability to participate, as fully as
possible in any act done for him and any decision affecting him.
(5) Where the determination relates to life-sustaining treatment, he must
not, in considering whether the treatment is in the best interests of the
person concerned, be motivated by a desire to bring about his death.
(6) He must consider, so far as is reasonably ascertainable, (a) the
person's past and present wishes and feelings (and, in particular, any
relevant written statement made by him when he had capacity); (b) the
beliefs and values that would be likely to influence his decision if he had
capacity, and (c) the other factors that he would be likely to consider if
he were able to do so.
(7) He must take into account, if it is practicable and appropriate to
consult them, the views of (a) anyone named by the person as someone
to be consulted on the matter in question or on matters of that kind; (b)
anyone engaged in caring for the person or interested in his welfare; (c)
any donee of a lasting power of attorney granted by the person, and (d)
any deputy appointed by the court
xxx xxx xxx
(11) “Relevant circumstances” are those - (a) of which the person
making the determination is aware, and (b) which it would be
reasonable to regard as relevant.”
(Emphasis Supplied)
173. In a nutshell, the MCA did not provide a straight-jacketed one size fit
for all standard in determining what is in the best interest. Instead, it
delineated a set of guiding considerations, upon due evaluation of which the
best interests of the patient are to be ascertained. The most notable addition
to the position of law in the UK was Section 4(6) of MCA, wherein due
consideration was given to the wishes, feelings, beliefs, and values of the
patient while determining his best interest. The person or body making such a
determination has been defined as a decision-maker.
174. The noticeable determinants under the MCA are as follows: (i) the
determination must not rest merely upon the patient's age, appearance, or
any medical condition or behavioural aspect that might give rise to unjustified
assumptions; (ii) the decision-maker must consider all the relevant
circumstances of which he is aware, and which would be reasonable to be
regarded as relevant; (iii) due regard must be had to the likelihood of the
patient regaining decision-making capacity and, if so, the probable timeframe
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consider past and current wishes and feelings, beliefs and values alongside all
other factors, but the final decision must be based entirely on what is in the
person's best interests. The relevant portions of these provisions are as
under:
“5.7 When working out what is in the best interests of the person who
lacks capacity to make a decision or act for themselves, decision-makers
must take into account all relevant factors that it would be reasonable to
consider, not just those that they think are important. They must not act or
make a decision based on what they would want to do if they were the
person who lacked capacity.
xxx xxx xxx
5.19 The relevant circumstances will of course vary from case to case.
For example, when making a decision about major medical treatment, a
doctor would need to consider the clinical needs of the patient, the
potential benefits and burdens of the treatment on the person's health and
life expectancy and any other factors relevant to making a professional
judgment […]
xxx xxx xxx
5.31 All reasonable steps which are in the person's best interests should
be taken to prolong their life. There will be a limited number of cases
where treatment is futile, overly burdensome to the patient or where there
is no prospect of recovery. In circumstances such as these, it may be that
an assessment of best interests leads to the conclusion that it would be in
the best interests of the patient to withdraw or withhold life-sustaining
treatment, even if this may result in the person's death. The decision-
maker must make a decision based on the best interests of the person who
lacks capacity. They must not be motivated by a desire to bring about the
person's death for whatever reason, even if this is from a sense of
compassion. Healthcare and social care staff should also refer to relevant
professional guidance when making decisions regarding life-sustaining
treatment.
xxx xxx xxx
5.33 Importantly, section 4(5) cannot be interpreted to mean that
doctors are under an obligation to provide, or to continue to provide, life-
sustaining treatment where that treatment is not in the best interests of
the person, even where the person's death is foreseen […]
xxx xxx xxx
5.38 In setting out the requirements for working out a person's ‘best
interests’, section 4 of the Act puts the person who lacks capacity at the
centre of the decision to be made. Even if they cannot make the decision,
their wishes and feelings, beliefs and values should be taken fully into
account - whether expressed in the past or now. But their wishes and
feelings, beliefs and values will not necessarily be the deciding factor in
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working out their best interests. Any such assessment must consider past
and current wishes and feelings, beliefs and values alongside all other
factors, but the final decision must be based entirely on what is in the
person's best interests.”
(Emphasis Supplied)
177. Upon the introduction of the MCA, the Court of Protection in the case
of W v. M, [2011] EWHC 2443 (Fam), was called upon to consider a matter
involving a patient, named ‘M’, who was diagnosed with a state of mind called
Minimally Conscious State (MCS). In such a state, a patient is not in PVS.
Rather, in MCS, a patient is considered to be above the vegetative state and
is aware to some extent of herself and her environment, but does not have
full consciousness. The issue before the court was whether it is in M's best
interests that all life-sustaining treatment, including CANH, is withdrawn and
withheld and, secondly, if it is in M's best interests to continue life-sustaining
treatment, including CANH, then what future management would be in her
best interests. In such circumstances, Justice Baker was of the opinion that
the reasoning adopted in Airedale (supra) more particularly that a balance
sheet approach need not be undertaken in cases involving PVS patients,
cannot directly be imported to cases involving MCS patients. On this basis,
the Court of Protection adopted the balance sheet approach to the MCS
patient in weighing the benefits of withdrawal of CANH against the
disadvantages of continuing with the same. On the aspect of the substituted
judgment standard, the court also observed that M's past and present wishes
and feelings, so far as reasonably ascertainable, had to be given significant
weight when deciding whether CANH should be withdrawn or not. The
relevant observations of the Court of Protection are as under:
“4. Any decision made under the Mental Capacity Act for a person who
lacks capacity must be made in her best interests. The law requires the
court to identify those factors which are relevant to the person's best
interests and carry out a balancing exercise weighing up the factors on
each side of the issue. This approach is well established in cases involving
medical treatment. This is, however, the first time in this country that a
court has been asked to authorise the withdrawal of artificial nutrition and
hydration from a patient in a minimally conscious state.
xxx xxx xxx
“81. It is important to note that, while any decision maker, including a
judge, is under an obligation to consider P's wishes and feelings, and the
beliefs, values and other factors that he would have taken into account if
he had capacity, the decision must be based on P's best interests and not
on what P would have decided if he had capacity. Like Lewison J (as he
then was) in Re P (Statutory Wills) [2009] EWHC 163 (Ch) [2010] Ch. 33,
I agree with the observation in the explanatory notes to the original Mental
Capacity Bill (which in turn echoed the observation of Lord Goff in the
Bland case cited above) that “best interests is not a test of ‘substituted
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judgment’ (what the person would have wanted), but rather it requires a
determination to be made by applying an objective test as to what would
be in the person's best interests.” This is confirmed by the Code of Practice
at paragraph 5.38:”
xxx xxx xxx
99. On behalf of the Official Solicitor, Miss Harry Thomas and Miss Apps
argue that the balance sheet approach should not be adopted in cases
where the patient is otherwise clinically stable. They argue that the balance
sheet analysis cannot apply in such circumstances as it can never be in P's
best interests to withhold or withdraw life-sustaining treatment. They
submit that the House of Lords in Bland specifically rejected the weighing
up the benefits and disadvantages of treatment in PVS cases and that the
balance sheet approach has been confined in other cases to circumstances
where the patient is very seriously ill or is at the end of their life […]
100. This submission is opposed not only by the Applicant but also by
the Primary Care Trust. On behalf of the PCT, Miss Dolan submits that the
balance sheet approach is to be applied in all cases save for those involving
PVS. She submits that a clear reading of the speeches in Bland
demonstrates that the House envisaged that weighing up the patient's
best interests should be conducted in every case save where the patient
was in a PVS where the futility of treatment means that treatment had no
benefit at all […]
101. Miss Dolan submits that, whilst it is clear that the benefit of
preserving of life will always weigh extremely heavily in the balance, it
cannot be assumed that there will always be no relevant dis-benefit to
weigh against it. Even in a clinically stable patient there must be room for
any relevant psychological and emotional aspects of their position to be
taken into account as part of the balancing exercise. She further argues
that the fact that the balance is most likely to come down in favour of
preserving life in a MCS patient whose only medical treatment need is for
ANH is not grounds for saying that a balance between factors in support of
and against providing such treatment need not be struck in such cases. To
do away with the balancing exercise and balance sheet would be to
disregard the requirement of s. 4(2) MCA that consideration be given to
“all of the relevant circumstances” and would also disregard s. 4(6) MCA
which requires consideration of those matters of import to P or that P
would be likely to consider if he could do so, when coming to any best
interests decision […]
102. On this point I am wholly unpersuaded by the Official Solicitor's
argument and fully accept the submissions advanced by Miss Dolan on
behalf of the PCT. There is, in my judgment, no rationale for extending the
approach adopted by the House of Lords in Bland to non-VS cases. Lord
Goff specifically distinguished between cases in which, having regard to all
the circumstances, it may not be in the patient's best interests to continue
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previous quality of life, yet he found great enjoyment in seeing his family and
close friends.
179. In such circumstances, the trial judge approached the question of
best interests by adopting a patient-centred evaluation, wherein medical
considerations were treated as only one component of the inquiry. He held
that the concept of “futility” must be understood as treatment being
ineffective or of no benefit to the patient, rather than treatment being
incapable of curing the underlying disease. He further held that “recovery”
does not signify restoration to full health, but rather the resumption of a
quality of life which the patient himself would regard as worthwhile. The
judge emphasised that the burdens of treatment must be weighed against
the benefits of continued existence and that due weight must be accorded to
the patient's family life, emotional welfare, and dignity. Here, the reference to
a patient's family life does not entail an assessment of the lives, interests, or
emotional needs of the family members themselves, rather, it requires
consideration of the life of the patient as lived in and through his or her
relationship with the family, and the value that such family life holds for the
patient in assessing what constitutes his or her best interests.
180. The Court of Appeal, however, adopted a materially different
approach. Sir Alan Ward held that futility must be assessed against the
therapeutic goal sought to be achieved, namely, whether the treatment had a
real prospect of curing or at least palliating the life-threatening illness. He
further held that recovery must be understood as the restoration of such a
state of good health as would avert the impending prospect of death. Sir Alan
Ward of the Court of Appeal further held that while best interests
encompassed more than medical factors, the patient's wishes must yield to
medical imperatives where treatment was futile, overly burdensome, and
incapable of restoring health. Arden LJ of the Court of Appeal, while reaching
the same result, applied a different reasoning, holding that in the case of
uncertainty regarding the patient's wishes, the court should proceed on the
basis of what a reasonable person would choose.
181. Due to contrary views taken by both the trial judge and the Court of
Appeal, the UK Supreme Court undertook a detailed review of the legal
principles governing best interests and disagreed with several propositions
advanced by the Court of Appeal while also substantially endorsing the
approach of the trial judge. First, the Supreme Court rejected the Court of
Appeal's formulation that the futility of a treatment can be considered only if
it has a real prospect of curing or palliating the disease. The court held that
such a formulation sets the bar too high and is inconsistent with the view
flowing from Airedale (supra), clarifying that futility must be understood in
the sense of treatment being useless or pointless, i.e., conferring no benefit
at all upon the patient. Secondly, the Supreme Court rejected the Court of
Appeal's formulation of recovery as restoration to such good health as would
avert death. The Court held that, particularly in cases involving incurable
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time, decision-makers must look at his welfare in the widest sense, not just
medical but social and psychological; they must consider the nature of the
medical treatment in question, what it involves and its prospects of success;
they must consider what the outcome of that treatment for the patient is
likely to be; they must try and put themselves in the place of the individual
patient and ask what his attitude to the treatment is or would be likely to be;
and they must consult others who are looking after him or interested in his
welfare, in particular for their view of what his attitude would be. The relevant
observation is as under:
“24. […] The advantage of a best interests test was that it focused upon
the patient as an individual, rather than the conduct of the doctor, and
took all the circumstances, both medical and non-medical, into account
(paras 3.26, 3.27). But the best interests test should also contain “a strong
element of ‘substituted judgment’” (para 3.25), taking into account both
the past and present wishes and feelings of patient as an individual, and
also the factors which he would consider if able to do so (para 3.28). This
might include “altruistic sentiments and concern for others” (para 3.31).
The Act has helpfully added a reference to the beliefs and values which
would be likely to influence his decision if he had capacity. Both provide for
consultation with carers and others interested in the patient's welfare as to
what would be in his best interests and in particular, what his own views
would have been. This is, as the Explanatory Notes to the Bill made clear,
still a “best interests” rather than a “substituted judgment” test, but one
which accepts that the preferences of the person concerned are an
important component in deciding where his best interests lie […]
xxx xxx xxx
39. The most that can be said, therefore, is that in considering the best
interests of this particular patient at this particular time, decision-makers
must look at his welfare in the widest sense, not just medical but social
and psychological; they must consider the nature of the medical treatment
in question, what it involves and its prospects of success; they must
consider what the outcome of that treatment for the patient is likely to be;
they must try and put themselves in the place of the individual patient and
ask what his attitude to the treatment is or would be likely to be; and they
must consult others who are looking after him or interested in his welfare,
in particular for their view of what his attitude would be.”
(Emphasis Supplied)
183. In short, the decision of the UK Supreme Court in Aintree (supra)
clarifies that the governing standard in cases of medical decision-making for
incapacitated patients is that of the patient's best interests. While substituted
judgment forms an integral component of this inquiry, it does not supplant
the best interests test, but instead informs it by incorporating the patient's
past and present wishes, feelings, beliefs, and values. This means that
though the substituted judgment standard is a component of the best
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interest principle, it is the latter that would still remain as a governing test.
With respect to futility, the court further held that medical futility is to be
understood not in terms of the inability of treatment to cure the underlying
disease but in the absence of any benefit being conferred to the patient.
Likewise, recovery does not connote restoration to full health or avoidance of
death but rather the resumption of a quality of life which the patient himself
would regard as worthwhile.
184. In another case, M v. Mrs. N (supra), the patient, a 68-year-old
woman was diagnosed as being in an MCS. Her condition was profoundly
impaired, both physically and cognitively, as a consequence of the
progressive degenerative nature of the disease. Her family sought a
declaration permitting the withdrawal of CANH. While determining the
patient's best interests, the court held that where the wishes, views, and
feelings of the patient can be ascertained with reasonable confidence, they
must invariably be accorded great respect. At the same time, the court
observed that such wishes, views, and feelings would rarely, if ever, be
exclusively determinative of a patient's best interests. The court emphasised
that the assessment of best interests involves an intensely complex and fact-
sensitive exercise, in which numerous factors fall to be considered, including
the nature of the proposed treatment, its degree of intrusiveness, and, most
importantly, the likely outcome of such treatment for the individual patient.
Within this multifaceted matrix, the weight to be attached to the patient's
wishes may vary from case to case. A broader evaluative exercise may,
therefore, require consideration of the patient's past conduct and life choices,
insofar as they illuminate the strength and content of her views on the
contemplated treatment. In the facts of the case, all medical experts
concurred that, if CANH were withdrawn pursuant to a structured palliative
care plan, the patient would not experience pain or distress. Upon an overall
assessment of the material on record, the court was satisfied that there
existed no realistic prospect of the patient attaining a life that she would
regard as meaningful, worthwhile, or dignified, and consequently held that it
was lawful and in her best interests to permit the withdrawal of CANH. The
relevant observations are as under:
“28. I have given both these passages very considerable thought. I draw
from them only this: where the wishes, views and feelings of P can be
ascertained with reasonable confidence, they are always to be afforded
great respect. That said, they will rarely, if ever, be determinative of P's
‘best interest's’. Respecting individual autonomy does not always require
P's wishes to be afforded predominant weight. Sometimes it will be right to
do so, sometimes it will not. The factors that fall to be considered in this
intensely complex process are infinitely variable e.g. the nature of the
contemplated treatment, how intrusive such treatment might be and
crucially what the outcome of that treatment maybe for the individual
patient. Into that complex matrix the appropriate weight to be given to P's
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who consistently stated that Mr. Briggs would not have consented to the
continuation of CANH had he retained capacity and that he would have
regarded his condition as intolerable and one which he would not have wished
to endure. While permitting the discontinuation of CANH, the court, however,
reiterated that a conclusion as to what the patient would have done is not, in
itself, decisive. The governing test remains that of best interests, which
requires the decision-maker to undertake a careful weighing and balancing
exercise among a range of divergent and competing considerations. The
relevant observations are as follows:
“44. The test is now a statutory test and the factors in s. 4 of the MCA
are not given any priority. Of key importance in this case is s. 4(6) and so
the weight to be given (with my emphasis on parts of the language) so far
as is reasonably ascertainable to:
i) Mr Briggs’ past and present wishes and feelings (and, in particular,
any relevant written statement made by him when he had capacity),
ii) Mr Briggs’ beliefs and values that would be likely to influence his
decision if he had capacity, and
iii) the other factors that Mr. Briggs would be likely to consider if he
were able to do so.
45. Before any of these matters can be taken into account they must be
“reasonably ascertainable” and the influence of Mr. Briggs’ beliefs and
values is to be assessed on the premise that he had capacity now and, in
my view, the influence of the other factors he would be likely to consider is
assessed if he were able to do so now, and so on the same basis.
46. The sub-section clearly introduces a number of “what if” issues and
assessments. An obvious problem set by s. 4(6) is how the decision maker
is to determine the existence of, and then the weight to be given to, the
past and present matters it refers to at a time when P cannot (or cannot
clearly) communicate and explain either:
i) what he or she used to wish and feel and how they would have
applied their beliefs, values and other factors they thought were
relevant,
ii) what he or she now wishes and feels or how they would now take
their past beliefs and values and other relevant factors into account if
they were able to do so.
47. As to the past a decision maker can gather and consider evidence of
what the relevant person has said and done when he or she had capacity
and was able to make their own decisions.
48. A court can if necessary make binding findings of fact and it carries
out the weighing exercise required by the MCA with the benefit of hearing
evidence that is tested and argument. As a consequence, it is likely to be
in a better position to determine the existence of, and the weight to be
given to, the matters set out in s. 4(6) of the MCA that are based on the
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past when P had capacity than, for example, treating doctors are. So, if P's
family are asserting that they favour a different conclusion to that reached
by the medical team, it is likely that in many cases to be reasonable if not
inevitable for doctors to give great and probably determinative weight to
medical and ethical issues in their exercise of the MCA best interests test
pending the resolution of the existence of the matters in s. 4(6) and the
weight to be given to them by a court.
xxx xxx xxx
100. Mr Briggs’ wife is sure that her husband and the father of their
young child would not consent to his CANH treatment being continued and
made it clear that she is pursuing this painful litigation to try to achieve
the result for her husband that she is sure he would have wanted and
chosen if he was able to do so. All his close family support that position.
xxx xxx xxx
108. Mr Briggs’ experience of witnessing death and the consequences of
serious accidents informs and probably explains the number of
conversations, views and discussions reported in the evidence before me
about death and injury. The one closest to home relates to his mother-
inlaw and her refusal of PEG feeding and nutrition when she was terminally
ill with cancer. His wife reports that he fully supported her and her mother
in this decision and told her that he would never want a feeding tube. This
provides a clear indication that Mr. Briggs did not consider it was sensible
to prolong life at all costs and thought it was right that the suffering of his
mother-in-law was not prolonged. Indeed his wife reports that he used to
ask why there was not something legal that could be done to end her
mother's suffering […]
xxx xxx xxx
111. Members of the family told me that in their view Mr. Briggs would
regard his present situation as horrible and one that he would not wish to
continue. Included within the reasons given are that a life in which he did
not have the ability to communicate with his wife and child is not one that
he would be willing to have […]
xxx xxx xxx
129. I have concluded that as I am sure that if Mr. Briggs had been
sitting in my chair and heard all the evidence and argument he would, in
exercise of his right of self-determination, not have consented to further
CANH treatment that his best interests are best promoted by the court not
giving that consent on his behalf.”
(Emphasis Supplied)
187. In the case of In re M (Incapacitated Person: Withdrawal of
Treatment), [2018] 1 WLR 465, the Court of Protection was seized of the case
of M, whose condition had deteriorated to an MCS. M's mother and litigation
friend, supported by her immediate family, treating clinicians, and an
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intervening), [2019] A.C. 978, the UK Supreme Court construed and affirmed
the observations as more particularly discussed above.
189. From a cumulative reading of the decisions of the Court of Appeals,
House of Lords and the UK Supreme Court respectively, together with the
statutory framework of the MCA and the Code of Practice framed thereunder,
it appears to us that the principle of the best interests of the patient
constitutes the governing standard for decision-making concerning the
withdrawal or withholding of medical treatment of persons lacking capacity in
the UK. The said principle appears to be neither a narrow test nor a rigid,
straight-jacketed formula, but a holistic evaluative assessment requiring due
consideration of all relevant circumstances bearing upon the patient's welfare
in the widest sense. This is evident from the observation of Lord Hedley in
Portsmouth (supra) wherein he had observed that “the infinite variety of the
human condition never ceases to surprise, and it is that fact that defeats any
attempt to be more precise in a definition of best interests”. Similarly, in R
(Burke) (supra), Lord Phillips reiterated that “it is not possible to attempt to
define what is in the best interests of a patient by a single test”, affirming
that the doctrine resists any rigid formulation and must operate through a
holistic assessment of all relevant circumstances.
190. At the foundational level, the best interests inquiry is anchored in a
strong presumption in favour of the preservation of life, reflecting the sanctity
of life. However, as consistently emphasised in Airedale (supra) and
reaffirmed in Aintree (supra), this presumption is not absolute and may be
displaced where continuation of medical treatment ceases to serve any
therapeutic purpose, i.e., becomes futile, merely prolongs the suffering
without the hope of recovery or causes indignity to the life of the patient. In
such circumstances, the preservation of biological existence alone does not
constitute a determinative good, and the legal inquiry must shift towards an
assessment of whether continued treatment truly advances the patient's
overall welfare.
191. The position of law in the UK further clarifies that the formulation of
the legal question itself is of decisive importance in cases concerning
withdrawal or withholding of life-sustaining treatment. As held in Airedale
(supra) and later followed by the UK Supreme Court in Aintree (supra) and in
other cases, as more particularly discussed above, the inquiry must not be
whether it is in the patient's best interests that he should die, nor whether
the proposed course would hasten or cause death. Rather, the correct
question should be whether it is in the patient's best interests that life should
be prolonged by the continuance of the particular medical treatment in
question.
192. In cases involving patients in a PVS, the House of Lords in Airedale
(supra) held that existence devoid of consciousness, cognition, or awareness
of the external world cannot be regarded as conferring any benefit upon the
patient. Where medical opinion establishes that such a condition is
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195. The courts in the UK have further recognised that the burdensome
and intrusive nature of medical treatment, the indignity inherent in artificial
prolongation of life, and prolongation of physical and psychological suffering
constitute a significant factor within the best interests principle. Treatment
that subjects a patient to invasive interventions, loss of bodily integrity, and
prolonged distress, without corresponding therapeutic gain, cannot ordinarily
be justified as advancing the patient's welfare. Thus, dignity and experiential
quality of life are treated as intrinsic components of the best interests
standard.
196. Another component of the best interests principle is the patient's own
wishes, feelings, beliefs, and values, as statutorily mandated under Section 4
(6) of MCA and elaborated in cases above. These factors are to be considered
so far as reasonably ascertainable and must be accorded great respect.
However, the courts have consistently clarified that such wishes, whether past
or present, are not determinative in themselves. While they constitute a
strong element and an often weighty component of the inquiry, they do not
displace the overarching obligation to act in the patient's best interests,
which requires a holistic evaluation of all relevant circumstances. The reason
that the substituted judgment standard does not override the best interest
principle in the UK is that while applying the substituted judgment standard,
the family of the patient makes reasonable endeavours to ascertain what the
patient would have wanted had he possessed the capacity, but such an
endeavour at its heart is a surmise at best and cannot in itself be a
determinative factor to decide withdrawal or withholding of medical
treatment. Therefore, other relevant factors are also to be looked at under the
best interest principle. As explained in Aintree (supra) and later followed in
Lindsey Briggs (supra), the best interests principle incorporates a strong
element of the substituted judgment standard, requiring the decision maker
to place himself, so far as possible, in the position of the patient and to
consider what the patient would have wanted if he had capacity. This enables
the doctors and the court to do for the patient what he would have done for
himself. However, substituted judgment does not operate autonomously or in
an overriding manner. The ultimate inquiry remains what course of action
would serve the patient's best interest, even where that conclusion diverges
from a reconstructed preference of the patient.
(c) Best interest of the patient in Ireland
197. In In the matter of a Ward of Court (No. 2), [1996] 2 IR 79, the
Supreme Court of Ireland was concerned with a case involving a 22-year-old
woman who had suffered three cardiac arrests, resulting in profound anoxic
brain damage. For more than two decades thereafter, she remained in a near
PVS, being spastic, incontinent, bedridden, incapable of speech or meaningful
communication, and possessing only the most minimal cognitive capacity.
She was initially sustained by nasogastric feeding and subsequently by a PEG
tube. An application was made to the High Court seeking authorisation for the
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withdrawal of CANH. The High Court granted the application, holding that
such withdrawal was lawful and in the patient's best interests. Lynch J. found
that although the patient did not strictly satisfy the clinical definition of a
PVS, yet she was very nearly so, that any cognitive capacity she retained was
negligible, and that there was no prospect of improvement in her condition.
Applying the best interests principle, Lynch J. framed the inquiry as whether
it was in the patient's best interests that her life should be prolonged by the
continuation of artificial means of nourishment, and held that the court was
entitled, as part of that inquiry, to take into account what the ward's own
wishes would likely have been had she been able to express them i.e.,
substituted judgment. Thus, the Supreme Court of Ireland acknowledged the
existence of the substituted judgment standard as a component of best
interests in its jurisdiction. On a consideration of the evidence, the withdrawal
of CANH was authorised and declared lawful. On appeal, the Supreme Court
affirmed the High Court's decision, endorsing the application of the best
interests test and the conclusion that continued artificial nourishment served
no meaningful benefit to the patient. The relevant observations are as under:
“I take the view that the proper and most satisfactory test to be applied
by the Court in this case is the best interests test, i.e., whether it is in the
best interests of the ward that her life, such as it is at present, should be
prolonged by the continuation of the abnormal artificial means of
nourishment, […]
I am of opinion that it is or it is not in the best interests of the ward that
her life should be prolonged by the continuance of the abnormal artificial
means of nourishment, whether by nasogastric or gastrostomy tube. Whilst
the best interests of the ward is the acid test, I think that I can take into
account what would be her own wishes if she could be granted a
momentary lucid and articulate period in which to express them and if,
despite what I have already said, I can form a view on the matter. I think
that it is highly probable, and I find the evidence of the family on this
aspect of the case to be clear and convincing, that the ward would choose
to refuse the continuance of the present regime to which she is subjected
involving abnormal artificial feeding and total nursing care with all the
indignities inherent in such care and would instead choose the withdrawal
of such abnormal artificial feeding resulting in an immediate reduction of
bodily functions and their attendant indignities and a peaceful death in
accordance with nature within two weeks or so.”
(Emphasis Supplied)
198. From the above, it is clear that the Supreme Court of Ireland also
rightly framed the question as proposed in Airedale (supra) i.e., whether it
was in the patient's best interests that her life should be prolonged by the
continuation of artificial means of nourishment. The court also took into
account what the ward's own wishes would likely have been had she been
able to express them under the substituted judgment standard. Further, the
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presupposition does not exist, the judge must deny the authorization, with
unconditional prevalence having then to be given to the right to life,
independently of the degree of health, autonomy and capacity to
understand and to express the will of the interested subject and from the
perception, that others are able to have, of the quality of life itself.”
(Emphasis Supplied)
(e) Best interest of the patient in Australia
201. The position of law in Australia on this issue was considered by the
Supreme Court of Victoria in Re BWV (supra). In this case, the patient was a
68-year-old woman suffering from a progressive and fatal form of dementia,
who was being kept alive through CANH administered via a PEG tube. Medical
reports confirmed that there was no prospect of recovery or improvement in
her condition. The public advocate, appointed as the patient's guardian,
approached the Supreme Court of Victoria seeking a determination as to
whether the PEG tube feeding constituted medical treatment that could
lawfully be discontinued. The evidence of three medical practitioners, who had
examined the patient, was unanimous in concluding that the provision of
nutrition and hydration through the PEG tube was futile, and that it had no
prospect whatsoever of improving the patient's condition, and that, in
accordance with good medical practice and principles of palliative care, the
PEG tube ought to be removed. The patient's family also shared the view that
continued provision of nutrition and hydration was unwarranted and
unreasonable in the best interest of the patient. The court, while holding that
CANH administered through a PEG tube constituted medical treatment,
permitted its withdrawal, observing that where death has become inevitable,
the patient's best interests are better served by treatment directed towards
relief and comfort, rather than by futile attempts to cure. The relevant
observations are as under:
“80. Various explanations are given of the nature of palliative care. The
report quotes various submissions, including a submission from Right to
Life Victoria, which emphasises that when death has become inevitable,
treatment should be adjusted, since the patient's best interest would then
be served by treatment that emphasised relief, rather than futile attempts
to cure.
81. I find that the administration of artificial nutrition and hydration, via
a PEG, cannot be regarded as palliative care, where that expression is used
in its natural sense. Such a procedure is, in essence, a procedure to sustain
life; it is not a procedure to manage the dying process, so that it results in
as little pain and suffering as possible.”
(Emphasis Supplied)
202. Thereafter, in Messiha v. South East Health, [2004] NSWSC 1061,
the Supreme Court of New South Wales was seized of a case concerning a 75-
year-old patient who had suffered a cardiac arrest resulting in severe hypoxic
brain damage, leaving him in a deep coma with no realistic prospect of
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neurological recovery. The treating doctors concluded that any further medical
treatment had become futile and proposed the withdrawal of mechanical
ventilation and artificial nutrition so as to permit the patient to die naturally.
The patient's family opposed this course, contending that he had exhibited
certain signs of life, such as opening his eyes, and sought an injunction
compelling the hospital to continue treatment. The court dismissed the
family's application and authorised the withdrawal of treatment. The court
observed that, in applications of this nature, the paramount consideration is
the health, welfare, and best interests of the patient. The court further
clarified that such an approach does not entail any value judgment on the
intrinsic worth of the patient's life in his existing condition, nor does it
disregard the family's sincerely held hopes and beliefs. Rather, it reflects a
recognition of the reality that, where the court is satisfied that treatment
decisions are being taken in the welfare and best interests of the patient,
such determinations primarily fall within the domain of professional medical
expertise. On the facts, the court was satisfied that the continuation of
medical treatment, including CANH, would serve no purpose beyond
prolonging life for a brief period and would be futile, burdensome, and
intrusive upon the patient. The relevant observations are as under:
“25. I appreciate that the Court on such an application as the present is
concerned with the best interest of the health and welfare of the patient:
Northridge at [22] and it is not bound to give effect to the medical opinion,
even where, as here, it is unanimous. However, it seems to me that it
would be an unusual case where the Court would act against what is
unanimously held by medical experts as an appropriate treatment regime
for the patient in order to preserve the life of a terminally ill patient in a
deep coma where there is no real prospect of recovery to any significant
degree. This is not to make any value judgment of the life of the patient in
his present situation or to disregard the wishes of the family and the
beliefs that they genuinely hold for his recovery. But it is simply an
acceptance of the fact that the treatment of the patient, where, as here,
the Court is satisfied that decision as to the appropriate treatment is being
made in the welfare and interest of the patient, is principally a matter for
the expertise of professional medical practitioners: Northridge at [24].
xxx xxx xxx
28. Apart from extending the patient's life for some relatively brief
period, the current treatment is futile. I believe that it is also burdensome
and will be intrusive to a degree. I am not satisfied that this Court's
jurisdiction has been enlivened by the evidence before me from the family
members. The Court is in no better position to make a determination of
future treatment than are those who are principally under the duty to make
such a decision. The withdrawal of treatment may put his life in jeopardy
but only to the extent of bringing forward what I believe to be the
inevitable in the short term. I am not satisfied that the withdrawal of his
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his wishes, must be qualified by the obvious conclusion that those wishes
are irrational and based on a delusional set of assumptions arising from his
mental illness.
xxx xxx xxx
33. In the present case the provision of nutrition and hydration will
provide a benefit, in the sense that life will be maintained, albeit, that it
will to an extent derogate from the patient's dignity.
(Emphasis Supplied)
204. From the above, it appears that Australian courts have construed the
determination of whether medical treatment ought to be continued or
withdrawn as one governed primarily by an assessment of the patient's best
interests, grounded in clinical medical assessment, rather than by a
determinative factor under the substituted judgment standard. In Re BWV
(supra), the Supreme Court of Victoria treated CANH as medical treatment
and held that where death has become inevitable, and treatment serves no
therapeutic purpose, the patient's best interests are no longer advanced by
sustaining biological life through artificial means. A similar approach is
evident in Messiha (supra), where the court reiterated that the paramount
consideration is the health, welfare, and best interests of the patient.
Importantly, the court clarified that authorising withdrawal of treatment in
such circumstances does not involve a value judgment on the worth of the
patient's life, nor a rejection of the family's sincerely held beliefs, but rather
an acceptance that decisions concerning futile treatment lie principally within
the expertise of medical practitioners, provided they are taken in good faith
and in the patient's welfare. The decision in the Australian Capital Territory
(supra) further clarifies the Australian position by delineating the limits of the
patient's wishes in the best interests inquiry. Unlike cases involving terminal
illness or irreversible injury, the court held that where treatment is effective
in sustaining life, and the patient is not otherwise dying from an irreversible
condition, such treatment cannot be characterised as futile. The court
expressly declined to give effect to the patient's stated wishes, as they were
found to be the product of delusional and irrational beliefs arising from severe
mental illness.
(f) Best interest of the patient in New Zealand
205. The position of law in New Zealand on this issue was considered by
the High Court of New Zealand in Auckland Area Health Board (supra). The
case concerned a 59-year-old patient suffering from an extreme form of
Guillain-Barré Syndrome, resulting in total paralysis and complete inability to
communicate, who was being kept alive solely by artificial ventilation. The
medical consensus was that there existed no prospect of recovery and that
continued ventilation of the patient served no therapeutic purpose. The court
held that a doctor acting in good faith and in accordance with good medical
practice is under no legal duty to administer life support when, in his or her
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consultation with the patient's wife and, subsequently, with his parents, half-
brother, and sister. While the patient's wife supported the decision, his
parents, half-brother, and sister opposed the withdrawal of CANH. In light of
these circumstances, the Conseil d’État was of the view that withdrawal of
CANH must be permitted. The Conseil d’État observed that where a patient is
unable to express his wishes due to incapacity, it is for the treating doctor,
acting within a collective decision-making process involving relevant
healthcare professionals, to take a clinical decision guided by the patient's
best interests. In doing so, the doctor must take into account all relevant
elements, including consultation with family members, close friends, any
designated person of trust, and any previously expressed wishes of the
patient. The Conseil d’État further observed that withdrawal of treatment is
subject to additional conditions, including the presence of serious and
irreversible medical consequences, the absence of any continuing benefit to
the patient, medical futility, and, where required, a sufficiently prolonged
observation phase and review of the patient's condition. The relevant
observations are as under:
“64. Other persons involved in the decision-making process may include
the patient's legal representative or a person granted a power of attorney,
family members and close friends, and the carers. The Guide stresses that
doctors have a vital, not to say primary, role because of their ability to
appraise the patient's situation from a medical viewpoint. Where patients
are not, or are no longer, able to express their wishes, doctors are the
people who, in the context of the collective decision-making process,
having involved all the health-care professionals concerned, will take the
clinical decision guided by the best interests of the patient. To this end,
they will have taken note of all the relevant elements (consultation of
family members, close friends, the person of trust, and so on) and taken
into account any previously expressed wishes. In some systems the
decision is taken by a third party, but in all cases doctors are the ones to
ensure that the decision-making process is properly conducted.
xxx xxx xxx
76. In addition to the requirement to seek the patient's consent, the
withdrawal of treatment is also subject to other conditions. Depending on
the country, the patient must be dying or be suffering from a condition
with serious and irreversible medical consequences, the treatment must no
longer be in the patient's best interests, it must be futile, or withdrawal
must be preceded by an observation phase of sufficient duration and by a
review of the patient's condition.”
(Emphasis Supplied)
(h) Best interest of the patient in India
209. It is often suggested, in a rigid and oversimplified manner, that
courts in the USA proceed primarily on the subjective standard of substituted
judgment, whereas courts in the UK apply an objective standard under the
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rubric of the best interests of the patient. In our considered view, such a
binary characterisation emerges only when these tests are examined at the
surface. A closer, multi-jurisdictional reading of the authorities we discussed
above shows that neither standard operates in isolation or in absolute terms.
In the USA, substituted judgment is not applied as a free-standing exercise of
personal preference. It is invariably conditioned by objective medical findings,
considerations of the futility of treatment, proportionality of treatment,
dignity of the patient, and the patient's present welfare. Where the patient's
wishes cannot be reliably ascertained, courts explicitly abandon substituted
judgment in favour of a best interests analysis. Conversely, in the UK, while
best interests remains the governing test, it is neither purely objective nor
indifferent to the patient's individuality, but incorporates a strong subjective
element through a consideration of the patient's past and present wishes,
values, beliefs, and conception of dignity.
210. A similar convergence is evident in other jurisdictions as well. In
Italy, the best interests inquiry is structured through a dual threshold: (i) a
clinical determination of irreversible vegetative state and medical futility, (ii)
coupled with a faithful reconstruction of the patient's presumed will,
grounded in clear and convincing evidence of values and conception of
dignity. In Australia and New Zealand, courts have consistently treated best
interests as the controlling standard, yet it is required to be informed by good
medical practice, futility, proportionality, and the likely wishes of the patient,
without elevating the substituted judgment standard into an autonomous
rule. In the EU, the emphasis has been placed on a procedurally robust,
collective decision-making process guided by medical proportionality, absence
of unreasonable obstinacy, and respect for human dignity, with prior wishes
operating as an important but not decisive consideration.
211. When examined in this manner, the two approaches, i.e., the best
interest principle and the substituted judgment standard, cease to conform to
a stark day and night distinction. Instead, they converge at twilight where
subjective autonomy and objective welfare intersect, each informing and
tempering the other, in order to reach a decision that accords with what is
overall in the best interest of the patient in the facts and circumstances. It is
worth mentioning here that though the substituted judgment standard in the
USA may be heavily rooted in privacy and personal choice of the patient, it is
our endeavour, keeping in mind the vision of the Constitution Bench in
Common Cause 2018 (supra), to further this substituted judgment standard
from the lens of dignity.
212. At this juncture, it becomes imperative for us to also refer to
Common Cause 2018 (supra) to weave a comprehensive thread of consensus
upon the meaning and scope of the best interest principle. However, before
delving into that exercise, we must reiterate that a competent person has the
right to refuse medical treatment within their right to self-determination
under Article 21 of the Constitution of India. It is also clear that the
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st
Patients and Medical Practitioners)” as well as in its 241 Report titled
“Passive Euthanasia - A relook” was also of the view that the best interest
principle must not only include the medical interest of the patient but also
certain non-medical considerations such as ethical, social, moral, emotional,
and other welfare considerations.
220. A similar approach can also be gauged from this court's decision in
Common Cause 2018 (supra) wherein it was noted that the application of the
best interest principle entails taking into account both medical and non-
medical considerations. We shall now discuss below the aspects that, as per
Common Cause 2018 (supra), form part of such medical and non-medical
considerations.
(i) Medical considerations under the best interest principle
221. Common Cause 2018 (supra) places great significance on factors
such as the futility of treatment, no hope of recovery or cure, and the
indignity of the patient, all of which forms a part of medical considerations.
222. On the aspect of futility, Para 198.4.1 of the guidelines uses the
phrase “no cure of ailment”, and Para 199.1 of the guidelines uses the phrase
“incurable”. In addition to this, Ashok Bhushan, J., in his opinion, also
supported the view that the decision to withdraw or withhold medical
treatment is not the act of causing a good death, but rather it is a decision
one takes when treatment becomes futile. Further, Dipak Misra, CJ., also
supports the idea that the words “no cure” have to be understood to convey
that the patient remains in the same state of pain and suffering and only the
dying process is delayed by means of taking recourse to modern medical
technology. However, we must also reflect upon what the UK Supreme Court
in Aintree (supra) had observed i.e., that the concept of futility must not be
understood on the mere basis of the treatment being incapable of curing the
underlying disease of the patient, rather futility must be understood as the
treatment being ineffective on the patient or of no benefit to the patient or
useless in that particular case of the patient. Thus, futility must be
understood by the doctors in the sense of the treatment being useless or
pointless on an individual case to case basis, i.e., conferring no benefit at all
upon the patient in question. However, this futility must only be conclusive
when all possible means to cure the ailment have been exhausted, and the
particular medical treatment has become so prolonged so as to render it
futile. This means that there must be an aspect of prolongation which is
attached to futility. This also necessarily means that calling a condition
incurable at the threshold without attaching the aspect of prolongation of
medical treatment to it, or in other terms, without exploring all possible
means to cure the condition, cannot be considered sufficient for allowing the
withdrawal or withholding of medical treatment.
223. On the aspect of recovery, Para 198.4.1 of the guidelines uses the
phrase “no hope of recovery”, and Para 199.1 of the guidelines uses the
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phrase “no hope of being cured”. In this context, Aintree (supra) observes
that the concept of recovery does not signify restoration to full health, but
rather the resumption of a quality of life which the patient himself would
regard as worthwhile. This emphasises that the burdens of treatment must be
weighed against the benefits of continued existence and that due weight
must be accorded to other non-medical considerations as well.
224. The dimension of dignity occupies a significant place in the
constitutional reasoning of Common Cause 2018 (supra). On the aspect of
indignity, Dipak Misra, CJ., was of the view that if a man is allowed to or, for
that matter, forced to undergo pain, suffering and a state of indignity because
of unwarranted medical support, the meaning of dignity is lost, and the
search for the meaning of life is in vain. Similarly, D.Y. Chandrachud, J., in his
opinion, was of the view that the decision to withhold medical treatment is
not intended to cause death but to prevent pain, suffering and indignity to a
human being who is in the end stage of a terminal illness or of a vegetative
state with no reasonable prospect of cure. He also observes that the law must
protect a decision which has been made in good faith by a medical
professional not to prolong the indignity of a life placed on artificial support in
a situation where medical knowledge indicates a point of no return. He was of
the further opinion that the court has a duty to interpret Article 21 of the
Constitution of India in a further dynamic manner in such a manner that the
right to life with dignity must include the smoothening of the process of dying
when the person is in a vegetative state or is living exclusively by the
administration of artificial aid that prolongs life by arresting the dignified and
inevitable process of dying. In a similar fashion, A.K. Sikri, J., also observed
that the indefinite continuation of futile physical life is regarded as
undignified.
(ii) Non-medical considerations under the best interest principle
225. At this juncture, it is also pertinent to note that, as per Para 199.2 of
the Common Cause Guidelines, the primary medical board is required to
discuss with the patient's next of kin/next friend/guardian, the pros and cons
of withdrawal or withholding and also obtain their consent in writing before
certifying or opposing such withdrawal or withholding. It is in this process of
obtaining consent that the non-medical considerations, alongside the relevant
medical considerations as described above, form the basis for determining
whether or not medical treatment should be withdrawn or withheld.
226. It is also pertinent to mention that this Court in Common Cause 2018
(supra) had looked into the observations made in Aruna Shanbaug (supra),
wherein it was held that the autonomy of the patient means his right to self-
determination and that, therefore, a competent patient, equipped with
informed decision-making, has the right to choose the manner of his
treatment. In the event that he is incompetent to make such choices, his
wishes expressed in advance, in the form of a living will, or the wishes of the
surrogates acting on his behalf under the substituted judgment standard, are
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beliefs, values, and any other factor that would be likely to influence the
patient's decision, or which the patient himself would have taken into
account, had he retained the capacity to decide. While saying so, we
understand that athough the substituted judgment standard would be a
component of the best interest principle, yet it is the latter that would still
remain as a governing test to decide the questions concerning withdrawal or
withholding of medical treatment.
232. Once the relevant medical and non-medical considerations are
discernible, the next step would be to undertake a weighing exercise of both
these considerations as per the balance sheet approach. This approach was
developed in the case of Re A (Male Sterilisation), by following the opinions of
the law lords in Airedale (supra), which was later adopted in W v. M (supra),
Aintree (supra), Lindsey Briggs (supra), and so on. This balance sheet
approach involves weighing the potential benefits of continued treatment
against its burdens, including physical suffering, invasiveness, indignity,
psychological distress, wishes and welfare of the patient, the impact upon the
patient's lived experience and family life, and similar considerations. For the
sake of reiteration, the reference to a patient's family life does not entail an
assessment of the lives, interests, or emotional needs of the family members
themselves, rather, it requires a consideration of the life of the patient as
lived in and through his or her relationship with the family, and the value that
such family life holds for the patient.
233. As discussed earlier, the best interest principle cannot be defined by
a single, straight-jacketed test that would fit across all facts and
circumstances. Therefore, we have endeavoured to cull out the contours of
this principle as far as possible from across the jurisdictions as examined
above. From our discussion, we are of the opinion that the principle of “best
interest of the patient” may include, but not be limited to, the following
considerations:
1. While deciding upon the withdrawal or withholding of medical
treatment, the correct question should be whether it is in the patient's
best interests that life should be prolonged by the continuance of the
particular medical treatment in question.
2. While answering such a question, the best interest principle cannot be
construed in a narrow, rigid, straight-jacketed single test. The
determination of the same requires due evaluation of all relevant
circumstances and considerations, both medical and non-medical.
3. At the foundational level, the best interests inquiry is anchored in a
strong presumption in favour of preserving life, reflecting the sanctity of
life. This presumption is not absolute and may be displaced where
continuation of medical treatment ceases to serve any therapeutic
purpose, i.e., becomes futile, merely prolongs the suffering without the
hope of recovery or causes indignity to the life of the patient.
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limbs;
(e) He has spasticity all over the body;
(f) The prospects of the patient's recovery from this state are negligible.
236. The opinion of the secondary medical board reported the following
conditions:
(a) He is bedbound and cachexic with evident muscle wasting; He
maintains a generalized flexed posture;
(b) His body is lean with a tracheostomy tube, urinary catheter and PEG in
situ;
(c) He is afebrile to touch;
(d) Pulse rate of 90/minute, regular and normovolemic. Blood pressure was
noted at 130/80 mm Hg and respiratory rate at 16/minute;
(e) Shows no signs of respiratory distress;
(f) Although the skin is normal, there was a healing bed sore over the
lower back;
(g) He has contractures in both upper and lower limbs;
(h) His eyes were open with normal blinks with no purposeful movement or
response to auditory, verbal, tactile, or painful stimulus;
(i) The pupils were bilaterally normal and reacting. There were no eye
tracking movement to light or auditory stimuli;
(j) There were flexion contractures of all limbs and attempts for passive
movement did not elicit any facial grimace or voluntary resistance;
(k) Spontaneous, but non-purposive eye opening;
(l) No vocalization (or attempt thereof, since the patient is
tracheostomised);
(m) No auditory awareness as reflected by no response to sudden noise or
meaningful noise stimuli;
(n) Pupils reacting to bright light indicates intact anterior visual pathway,
but no eye tracking to moving object or response to visual threat
indicates that the primary visual pathway may be affected;
(o) No spontaneous or responsive response to stimuli, indicates higher
level moto pathways affected;
(p) Fulfils the diagnostic criteria of PVS;
(q) He has non-progressive, irreversible brain damage, and he has been in
PVS for the last 13 years;
(r) The continued administration of CANH is required for the sustenance of
his survival. However, the same may not aid in improving his condition
or repairing his underlying brain damage.
237. The patient's next of kins/next friends/guardians, after being
informed of medical considerations by the doctors, have stated the following:
(a) The applicant was extremely energetic, physically active, and deeply
interested in gymming and playing football;
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(b) They have done everything with the hope that their son may recover
but there has been no improvement in his condition;
(c) Their son no longer has a voice of his own and therefore, they feel it is
their moral responsibility to speak for him in his best interest;
(d) Their decision to initiate the process under Common Cause Guidelines
has been taken not out of despair or pressure but after prolonged
thought, years of care, and acceptance that in medical consensus, there
is hope of recovery of their son;
(e) That continuing the medical treatment no longer serves any meaningful
purpose for the applicant and only prolongs his agony, which is causing
an undignified life for the applicant;
(f) The applicant has bed sores, and his position has to be changed every
two hours;
(g) That in such circumstances a decision has to be taken in the best
interest and dignity of the applicant.
238. Further, the patient's next of kin/next friend/guardian, the primary
medical board and the secondary medical board after considering medical as
well as non-medical considerations as mentioned above are of the opinion
that the medical treatment should be discontinued as the continuation of the
same is not in the best interest of the applicant, and that, in the given
circumstances, nature should be allowed to take its own course. They are also
of the opinion that the applicant would remain in PVS for years to come, with
the tubes inserted all over his body. However, he would never be able to
recover from such a condition.
239. The medical considerations in the present case admit of no
ambiguity. The treatment being administered to the applicant has become
prolonged, futile, and offers no hope of recovery. The applicant has remained
in a PVS for over 13 years, with irreversible and non-progressive brain
damage, and the continuation of CANH serves only to sustain biological
existence without any prospect of cognitive recovery or improvement in
condition. While there is no material on record evidencing any prior expressed
wishes of the applicant, the non-medical considerations placed before us,
such as the applicant's life prior to the injury, where he was physically active,
energetic, and deeply engaged in activities such as gymming and football,
provide a relevant lens through which his likely values and preferences may
be assessed. In conjunction with the unanimous medical opinion and the
considered stand of the applicant's next of kin/next friend/guardian, who
have cared for him for years and have taken this decision after prolonged
reflection, we acknowledge that had the applicant been competent today, he
would not have chosen to continue CANH in these circumstances. The
conclusion reached by the medical boards that withdrawal of CANH is in the
applicant's best interests is, therefore, both medically sound and consistent
with a patient-centric assessment of dignity, values, and welfare.
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medical treatment is not a single, abrupt act. Once the decision has been
taken to withdraw or withhold a medical treatment in accordance with the
law, the obligation of medically caring for the patient does not stop. In other
words, the withdrawal or withholding of a medical treatment is not the
termination of the doctor-patient relationship altogether, but merely a
purposeful reorientation of medical goals. The withdrawal or withholding of a
medical treatment cannot result in a vacuum of care or medical supervision.
The process of withdrawal or withholding of a medical treatment necessarily
entails a structured, step-wise process, anchored in a clearly articulated
withdrawal plan as part of an appropriate palliative and EOL care framework.
The importance of such a plan lies in ensuring that the decision to withdraw
or withhold a medical treatment, which has been taken in the best interests
of the patient, gets translated into clinical practice in a manner that
minimises pain, distress, and affords him maximum dignity.
244. In this context, we express our strong disapproval of the practice of
“discharge against medical advice” (also known as “leaving against medical
advice” or “discharge at own risk”) that is routinely misused in cases where
the medical treatment of a patient stands discontinued. Such a course of
action, when resorted to in substitution of a structured palliative and EOL care
plan, risks amounting to an abdication of the doctor's responsibility and
undermines the very rationale of treatment limitation being founded on the
patient's best interest. The choice to withdraw or withhold a medical
treatment cannot amount to a forfeiture of the patient's right to a medically
supervised care. We would like to clarify that it is not always mandatory that
palliative and EOL care is provided in a hospital or any other institutional
setting. It is permissible that the palliative care is given at home or at any
place of choice of the patient or his/her family, as long as a palliative and EOL
care plan has been prescribed at the time of discharge, so that the patient is
not deprived of structured medical support in the most vulnerable phase of
life.
245. As emphasised by the Court of Protection, United Kingdom, in
Hillingdon Hospitals (supra), the withdrawal of CANH must be carried out
strictly in accordance with a step-by-step withdrawal plan, so that the
burdens of a medical treatment are not merely discontinued in principle, but
are meted out in practice. The same principle applies with equal force to the
withdrawal of all forms of medical treatment and medical devices, i.e. such
withdrawal or withholding can only be undertaken pursuant to a carefully
calibrated palliative and EOL care plan. The following extract from the
observations of Poole J., in Hillingdon Hospitals (supra), underscores that the
law does not merely permit the withdrawal of a medical treatment, but
mandates that it be carried out through a plan that balances the cessation of
burdensome interventions with the assurance that the patient will not be
subjected to further avoidable pain or distress, and will continue to receive
palliative and EOL care for as long as life continues:
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“42. I have sought to step back and to consider IN's best interests in
the widest sense. In doing so I conclude that it is not in his best interests
to continue to receive CANH. Accordingly, the withdrawal of CANH in
accordance with the step by step withdrawal of care plan is in his best
interests and is lawful. Putting it plainly, he has no prospect of recovery
and the provision of CANH will only prolong his burdens and give him no
benefit. Even though his life expectancy with continued CANH is relatively
short, for so long as he is given CANH, his burdens are continued.
43. The current plan is to leave IN's tracheostomy in situ. Although that
may have the effect of prolonging his life by some days, I do think it is in
his best interests to keep the tracheostomy in place - IN's values are such
that he would not have wanted his family or staff to witness his struggling
for breath for a period that might last for a week or more were the
tracheostomy removed. That is what I believe would have been in
accordance with his values as relayed to the court by his family. Whilst he
will continue to suffer the burdens of his condition and interventions
including the tracheostomy for as long as he is alive, he will receive
palliative care and so the Court can be as sure as it is possible to be, that
IN will not experience pain or distress whilst the plan is implemented. On
balance I consider that the plan to maintain his tracheostomy is in his best
interests.”
(Emphasis Supplied)
246. Having thus emphasised that the withdrawal or withholding of
medical treatment must be effected through a structured and humane
process, accompanied by a palliative and EOL care plan, it becomes necessary
to examine the contours of palliative care as recognised within the Indian
medical and regulatory framework. Such an examination is essential not only
to demonstrate that the obligation to provide palliative and EOL care is
grounded in established medical ethics and policy, but also to ensure that the
transition from curative treatment to pain-relieving symptom management
care is informed by nationally accepted standards and guidance. It is in this
context that reference to the guidance issued by expert medical bodies in
India assumes significance.
247. The Indian Council of Medical Research (ICMR) document titled
“Definition of terms used in limitation of treatment and providing palliative
care at end of life” (“ICMR Palliative & EOL Care Primer”), published under
the authority of the Secretary, Department of Health Research (DHR),
MoHFW, Government of India provides a cursory guidance on the duty of a
health care provider to mitigate suffering and improve the quality of life
throughout one's life, including the dying phase.52 Although the Palliative &
EOL Care Primer is a document that predates this Court's decision in Common
Cause 2018 (supra), the primary discussion in the document is not in conflict
with it, and we find it apposite to refer to the same. It pragmatically
addresses how the inevitability of death must be recognised as a natural
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culmination of life, and that in this phase, curative intent would have to give
way to pain relief and symptom management, so as to improve the patient's
quality of life for the remaining duration of his life.
248. The ICMR Palliative & EOL Care Primer defines the term ‘Palliative
Care’ as “a holistic approach to treatment that improves the quality of life of
patients and their families facing the problems associated with life-
threatening illness, through the prevention and relief of suffering.” Palliative
care affirms life by supporting the patient and the family's goals for the
future, as well as their hopes for peace and dignity throughout the course of
illness, the dying process, and death. It creates an environment in which the
needs of the patients and their families are comprehensively assessed, so that
the physical, psychological, social, practical, and spiritual needs of patients
and their families are endeavoured to be met, and the patient is afforded the
maximum dignity possible. Endeavours in palliative care must ensure that the
medical palliative care team collaborates with professional and informal
caregivers to ensure coordination, communication, and continuity of palliative
care across hospital and home settings. The ICMR Palliative and EOL Care
Document defines ‘End of Life Care’ as ‘an approach to a terminally ill patient
that shifts the focus of care to symptom control, comfort, dignity, quality of
life and quality of dying rather than treatments aimed at cure or prolongation
of life.”
249. According to the Operational Guidelines, 2017 (“Palliative Care
Operational Guidelines 2017”) issued under the National Programme for
Palliative Care, by the Directorate General of Health Sciences (DGHS),
MoHFW, Government of India, ‘Palliative Care is an approach that improves
the quality of life of patients and families who face life-threatening illness by
providing pain and symptom relief, spiritual and psychosocial support from
diagnosis to end of life and bereavement.” The Palliative Care Operational
Guidelines 2017 identify the goals of palliative care as providing relief from
pain and other distressing symptoms, but it does not intend to hasten or
postpone death. The Palliative Care Operational Guidelines 2017 stresses the
ethical responsibility of the health system and the health care professionals
respectively, to alleviate pain and suffering, whether physical, psychological
or spiritual, irrespective of whether the disease or condition can be cured. It
states that palliative care integrates the psychological and spiritual aspects of
patient care and offers a support system to help the patients’ families cope
during the patients’ illness and their own bereavement through spiritual
support and bereavement counselling.
250. The position statement by the Indian Society of Critical Care Medicine
and the Indian Association of Palliative Care, published in February, 2024
(“ISCCM & IAPC Position Statement”), identifies that in India, barriers to
EOL Care include a lack of attention to the needs of the dying, reluctance to
discuss anticipated death or make ethically challenging decisions, physician
and organizational concerns over the legality of withdrawal or withholding of a
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256. A bare reading of Para 199.1 of the Common Cause Guidelines clearly
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indicates that the treating physician, upon being satisfied that the threshold
conditions/medical parameters are fulfilled, sets the process into motion by
informing the hospital to constitute the primary medical board. The treating
physician has been entrusted with this responsibility as he is best positioned
to know, assess, and evaluate the antecedents and present health condition
of the patient at the threshold stage. It is for this reason that the treating
physician is also required to be a member of the primary medical board along
with at least two subject experts of the concerned speciality, each having a
minimum of five years' experience.
I. Safeguarding Checkpoints that remove any hesitation amongst
doctors
257. The practical difficulties in implementing the Common Cause
Guidelines, more particularly, the potential hesitation of doctor(s) to initiate
and carry forward the process, could not be said to have escaped the
attention of the Constitution Bench in Common Cause 2018 (supra). It is for
this reason that they have inserted some safeguarding checkpoints, which
exist at each stage of the implementation process.
258. At the very first stage, it is required that (i) the pros and cons of
withdrawal or withholding of medical treatment be discussed by the primary
medical board with the patient's next of kin/next friend/guardian and that (ii)
their consent in writing is obtained prior to certifying or opposing such
withdrawal or withholding.
259. At the second stage, in the event of the primary medical board
opposes the withdrawal or withholding of medical treatment, even after
receiving such consent in writing, (i) the nominee of the patient, or the family
member and/or the patient's next of kin/next friend/guardian, or treating
physician, or the hospital staff would have the option to approach the High
Court under Article 226 of the Constitution. Conversely, in the event the
primary medical board certifies the withdrawal or withholding of medical
treatment after receiving the written consent of the patient's next of kin/next
friend/guardian, (ii) the constitution of a secondary medical board consisting
of one registered medical practitioner nominated by the Chief Medical Officer
of the district (hereinafter referred to as “CMO”) and at least two subject
experts of the concerned speciality, each having a minimum of five years'
experience, is triggered. Here, it is ensured that no member of the primary
medical board forms part of the secondary medical board. The inclusion of a
registered medical practitioner nominated by the CMO in the secondary
medical board also serves to infuse some neutrality into the decision-making
process.
260. At the third final stage, in the event that the secondary medical
board does not concur with the opinion of the primary medical board, (i) the
patient's next of kin/next friend/guardian, the treating physician, or the
hospital staff again have the option to approach the High Court under Article
226 of the Constitution of India. Where the secondary medical board concurs
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III. Bridging the procedural gap for patients who are undertaking
medical treatment in a home-setting
265. In a lot of cases such as the present one, there might be patients
who are undertaking prolonged medical treatment in a home-setting. The
guidelines as laid down in Common Cause (supra) must not be read in a
pedantic manner that unreasonably excludes such patients from taking
recourse to the procedure that it has delineated for the withdrawal or
withholding of medical treatment. However, if some careful attention is paid
to the guidelines as laid down in Common Cause (supra), it can be seen that
the duty to constitute the primary medical board is fastened on the hospital
in which the patient is admitted.
266. Therefore, we clarify that, in such a scenario, the next of kin/next
friend/guardian of the patient who is undertaking medical treatment
predominantly in a home setting would have the option to admit the patient
in any hospital of their choice. It would then be the mandatory duty of this
hospital and the primary treating physician therein to perform the
responsibilities laid down under the guidelines as laid down in Common Cause
(supra). In cases where it is not feasible for the patient's next of kin/next
friend/guardian to facilitate such an institutionalised admission, they may
choose to approach any hospital for the limited purpose of designating a
primary treating physician, who would then fully apprise himself of the
patient's medical condition and initiate the process.
267. In both scenarios, we would strongly urge that the medical
practitioners and the hospitals, respectively, do not hesitate to cater to the
needs of such patients. Any such behaviour would further defeat the very
right to die with dignity which Common Cause 2018 (supra) has set out to
secure.
IV. Nomination of registered medical practitioner by CMO
268. Para 199.2 of the guidelines provides that in the event the primary
medical board certifies the option of withdrawal or withholding of further
medical treatment, the hospital shall then constitute a secondary medical
board. The details of the composition of the secondary medical board is given
under Para 198.4.5 of the guidelines, which states that the secondary medical
board shall be comprised of one registered medical practitioner nominated by
the CMO.
269. We have been apprised that this requirement of nomination of a
registered medical practitioner by the CMO infuses extensive delay in the
process of constitution of the secondary medical board owing directly to the
failure of the CMOs of various districts to timely make such nominations.
Expediency is one of the cornerstones of the procedure envisaged by the
guidelines as laid down in Common Cause (supra) because the absence of
same would prolong the suffering and indignity of the patient, thereby
directly infringing the rights of the patient guaranteed under Article 21 of the
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Constitution of India.
270. It is for this reason that this Court, in Common Cause 2023 (supra)
modified the original guidelines by incorporating a requirement that both the
primary medical board and the secondary medical board certify the further
course of action, “preferably within a period of 48 hours” from the referral of
the case to them. This Court further envisioned that upon the primary medical
board certifying the withdrawal or withholding of medical treatment, the
hospital would “immediately” proceed to constitute the secondary medical
board.
271. We wish to clarify one other aspect. Any interpretation that permits
the hospital to retain discretion over the choice of the CMO-nominated
practitioner would defeat the very object underlying the introduction of an
external and neutral layer of scrutiny, which this Court had consciously
embedded into the decision-making process governing withdrawal or
withholding of medical treatment. This would strictly imply that the authority
to nominate one registered medical practitioner vests exclusively with the
CMO, while the role of the hospital would be to perform the administrative act
of forming the secondary medical board in accordance with such nomination.
This, however, does not curtail the hospital's discretion in placing the
remaining members of the secondary medical board, as contemplated under
the guidelines as laid down in Common Cause (supra).
272. Accordingly, we are of the view that the CMOs of all concerned
districts across the country must prepare and maintain a panel consisting of
registered medical practitioners possessing qualifications in accordance with
the guidelines as laid down in Common Cause (supra), for the purpose of
nomination to the secondary medical board. Upon receipt of a request from a
hospital seeking nomination of one registered medical practitioner for the
constitution of the secondary medical board, the CMO also shall, preferably
within a period of 48 hours from the receipt of the request, nominate one
such practitioner from the said panel on a case to case basis. The panel so
prepared must also be periodically reviewed and updated by the CMO at
intervals not exceeding twelve months, so as to ensure availability, suitability,
and continued compliance with the requirements under the guidelines as laid
down in Common Cause (supra).
V. Reconsideration Period
273. We have already noted that the role of the patient's next of kin/next
friend/guardian has been given due importance in the envisaged procedure. A
duty is placed upon the primary medical board to also reasonably ensure that
all the caregivers are identified and their concurrence is secured before it
certifies the withdrawal or withholding of medical treatment. However, we
cannot discount the possibility of any third person claiming to be the patient's
next of kin/next friend/guardian assailing the legitimacy of the whole process
once it has been completed, alleging that they were not consulted with. We
are cognisant that this would occur in the rarest of rare occasions.
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274. Moreover, there may also arise situations wherein one of the persons
forming the group of the patient's next of kin/next friend/guardian revisits
their initial consent due to some validly changed or pressing circumstances. It
would not be possible for us to exhaustively outline what reasons could
underlie such a change of stance. However, we are sure that there must be
something cogent that reveals that the retraction of consent is grounded on
what the patient would have wanted for himself and not merely reflect the
altered morals/motivations of the patient's next of kin/next friend/guardian.
Having said so, some recourse must exist to address scenarios like these as
well. It is keeping such outliers in mind that that Ashok Bhushan, J., in his
opinion, observed that in cases of incompetent patients who are unable to
take an informed decision, the decision to withdraw or withhold medical
treatment should be taken by competent medical experts applying the
principle of best interest and should be implemented only after providing a
period of 30 days (hereinafter referred to as the “Reconsideration Period”),
so as to enable an aggrieved person to approach a court of law. The relevant
observation is as follows:
“629.9. We are also of the opinion that in cases of incompetent patients
who are unable to take an informed decision, “the best interests principle”
be applied and such decision be taken by specified competent medical
experts and be implemented after providing a cooling period to enable
aggrieved person to approach the court of law.
xxx xxx xxx
612. Various learned counsel appearing before us have submitted that
seeking declaration from the High Court in cases where medical treatment
is needed to be withdrawn is time taking and does not advance the object
nor is in the interest of terminally-ill patient. It is submitted that to keep
check on such decisions, the State should constitute competent authorities
consisting of predominantly experienced medical practitioners whose
decision may be followed by all concerned with a rider that after taking of
decision by competent body a cooling period should be provided to enable
anyone aggrieved from the decision to approach a court of law. We also are
of the opinion that in cases of incompetent patients who are unable to take
an informed decision, it is in the best interests of the patient that the
decision be taken by the competent medical experts and that such decision
be implemented after providing a cooling period at least of one month to
enable aggrieved person to approach the court of law […]”
(Emphasis Supplied)
275. We resonate with the above view delivered by Ashok Bhushan, J.
However, it must be strictly borne in mind that in such cases, the aggrieved
person shall be sufficiently required to establish his or her locus. The court
must also tread with caution and not be quick to upend the entire process
that has already been culminated, especially a process wherein due and
careful attention to the best interest of the patient was paid.
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panel of medical experts. No concrete subsequent action was taken, and the
recommendations mentioned therein failed to be converted into a tangible
statutory framework.
284. Further, a question was put by a member of the Rajya Sabha seeking
information from the MoHFW regarding the steps taken by the Government
pursuant to the guidelines laid down in Aruna Shanbaug (supra) to enact a
comprehensive law on end-of-life care. In reply to the aforesaid question, the
Minister of Health and Family Welfare stated that since the Constitutional
Bench of this Court has already laid down the guidelines, the same should be
followed and treated as law. The Minister stated that “at present, there is no
proposal to enact a legislation on this subject and the judgment of the
Hon'ble Supreme Court is binding on all”.
285. Nevertheless, in 2016, the MoHFW published a draft bill, namely, the
Medical Treatment of Terminally-Ill Patients (Protection of Patients and
Medical Practitioners Bill, 2016, inviting public comments. However, following
the consultative stage, no further steps were taken. The bill was neither
finalised nor introduced for deliberation before the Parliament.
IV. The decision of Common Cause 2018
286. In Common Cause 2018 (supra), this Court formulated fresh
guidelines on this issue by exercising its powers under Article 142 of the
Constitution of India. However, the need to lay down such guidelines arose
solely because there was no law in place. It is in this context that Dipak
Misra, CJ., clarified that the Court was not seeking to supplant the legislature,
but was merely enabling the exercise of the recognised rights until legislation
regarding the same was enacted. Further, in his concluding remarks, A.K.
Sikri, J., expressed a “pious hope” that the legislature would intervene and
enact an appropriate law to establish a coherent and comprehensive
regulatory framework governing the subject.
287. In our view, this “pious hope” has now become an imminent
necessity as nearly eight years have passed since the decision of this Court in
Common Cause 2018 (supra), yet the legislative void remains.
V. Draft Guidelines of 2024
288. Post Common Cause 2023 (supra), the Directorate General of Health
Services, MoHFW, released Draft Guidelines (namely Guidelines for
Withdrawal of Life Support in Terminally Ill Patients, 2024) for public
consultation in June 2024. However, no fruitful conclusion has been reached
to date, even on these guidelines.
289. It must be emphasised that the cumulative effect of prolonged
legislative inaction is leaving citizens, particularly those situated at the most
vulnerable threshold of life, exposed to serious and systemic risk. In the
absence of a clear and comprehensive legislation, end-of-life decisions stand
imperilled by the possibility that considerations wholly extraneous to medical
science or the patient's autonomy, most notably financial distress, lack of
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310. Our analysis shows that the correct inquiry is not whether it is in the
best interests of the patient that he should die, but rather whether it is in the
best interests of the patient that his life should be prolonged by the
continuance of such forms of medical treatment.
311. While answering this inquiry, the best interest principle cannot be
construed as a narrow, rigid, formulaic and straight-jacketed single test. A
true and holistic application of this principle would require the evaluation of
all relevant circumstances and considerations, both medical and non-medical.
312. Further, at an initial and foundational level, the best interest of any
patient would be anchored upon a strong presumption in favour of preserving
his life. However, this presumption is not absolute, and the same may be
displaced where both medical and non-medical considerations warrant the
discontinuation of a particular medical treatment.
313. The medical considerations may entail a determination of whether a
particular treatment has ceased to serve any therapeutic purpose, i.e.,
becomes futile, merely prolongs the suffering without the hope of recovery or
causes indignity to the life of the patient.
314. The non-medical considerations may entail a determination of what
the patient would have wanted for himself had he possessed the decision
making capacity. In this context, decision-makers must try to put themselves
in the place of the individual patient and ask what his wishes and attitude to
the treatment are or would be likely to be. They must not factor in their own
wishes, feelings, beliefs, values etc.; and they must consult others who are
looking after him or are interested in his well-being, in particular for their
view of what the patient would have wanted. It is to be borne in mind that
this does not entail the application of the caregiver's standard which is
centred on what a reasonable person would do in such circumstances. Rather,
it involves the application of the substituted judgment standard wherein the
determination is based upon what decision the patient himself would have
made had he possessed the competence to do so.
315. The best interests principle must incorporate a strong element of the
non-medical considerations under the substituted judgment standard as
aforesaid, requiring the decision-maker to consider, in a patient-centric
manner, what that patient would have wanted if he possessed the requisite
capacity. However, this substituted judgment standard would not operate
autonomously or in an overriding manner. The ultimate governing test or
question would, nevertheless, be - what course of action serves the patient's
best interest.
316. Lastly, after ascertaining both medical and non-medical
considerations, the decision-makers must draw a balance sheet which would
involve weighing the potential benefits of continued treatment against its
burdens. The decision-makers must make entries of medical and non-medical
considerations on such a balance sheet.
317. In facts of the present case, the patient's next of kin/next
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friend/guardian, the primary medical board and the secondary medical board
respectively, after considering the medical as well as non-medical
considerations, have reached the opinion that the CANH being administered
to the applicant, should be discontinued as the continuation of the same is
not in his best interests. In the given circumstances, they are of the view that
nature should be allowed to take its own course.
318. In the present matter, the decision to withdraw or withhold medical
treatment of the applicant could have been put into effect automatically upon
the submission of the secondary medical board's opinion, since it was in
concurrence with the primary medical board's opinion. Both the primary
medical board and the secondary medical board have unequivocally certified
that the withdrawal of CANH from the applicant would be in his best interest.
In other words, we would like to reiterate that if both the primary medical
board and secondary medical board certify the withdrawal or withholding of
medical treatment, there is no further requirement for Court intervention.
However, given that this is the first case that has reached this Court wherein
the Common Cause Guidelines are being applied in their full measure, we
deemed it necessary to further delve and expound on issues relating to the
legal framework surrounding the withdrawal and withholding of medical
treatment.
(d) Palliative and EOL Care
319. Once a decision to withdraw or withhold medical treatment is taken in
accordance with the guidelines as laid down in Common Cause (supra), its
implementation must be humane and reflective of a responsible and sensitive
discharge of the doctor's continuing duty of care towards the patient. The
withdrawal or withholding of treatment must not, in effect or execution, result
in the abandonment of the patient. Rather, it must signify a transition from
curative intervention to a carefully structured and medically supervised
palliative and EOL care plan, directed towards the alleviation of pain and
distress, management of symptoms, and preservation of the patient's dignity.
The palliative and EOL care plan must ensure that a decision taken in the
patient's best interests is translated into clinical practice in a manner that
minimises suffering and upholds dignity.
320. In this regard, we strongly disapprove of the routine practice of
“discharge against medical advice” (also known as “leaving against medical
advice” or “discharge at own risk”) which is misused in situations where
medical treatment stands discontinued. Resorting to such a course of action
in substitution of a structured palliative and end-of-life care plan, risks
amounting to an abdication of medical responsibility and undermines the very
rationale of treatment limitation, which is founded upon the patient's best
interests. The choice to withdraw or withhold treatment does not entail a
forfeiture of the patient's right to medically supervised care.
321. We deem it necessary to further clarify that it is legally permissible
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Harish Rana.….Petitioner/Applicant
Versus
Union of India & Ors.….Respondents
JUDGMENT
K.V. VISWANATHAN, J.:—
BRIEF FACTS
WRIT PETITION BEFORE THE HIGH COURT
PROCEEDINGS BEFORE THIS COURT ON SPECIAL LEAVE
EVENTS SUBSEQUENT TO THIS COURT'S ORDER OF 08.11.2024
SALIENT FEATURES OF COMMON CAUSE (2018) 5 SCC 1
CONSTITUENTS OF THE PRIMARY MEDICAL BOARD AND SECONDARY
MEDICAL BOARD
CONSTITUTION OF THE PRIMARY AND SECONDARY MEDICAL BOARD
QUESTION FOR CONSIDERATION
ANALYSIS AND CONCLUSION
DIFFERENCE BETWEEN “ACTIVE AND PASSIVE EUTHANASIA”
ADVANCE DIRECTIVE AND CASES WITH NO ADVANCE DIRECTIVE
ESSENTIAL PREREQUISITES FOR CONSTITUION OF THE PRIMARY
MEDICAL BOARD AND CONSEQUENTLY THE SECONDARY MEDICAL BOARD
CLINICALLY ASSISTED NUTRITION AND HYDRATION (CANH) - DOES IT
QUALIFY AS MEDICAL TREATMENT?
BEST INTEREST OF THE PATIENT - SCOPE
APPLICATION TO THE FACTS OF THE PRESENT CASE
CONCLUSION
POSTSCRIPT
“The best interest of the patient is the only interest to be considered.”
Dr. William J. Mayo
1. I have had the benefit of reading the erudite judgment of my esteemed
Brother J.B. Pardiwala, J. While concurring with the said judgment,
considering the importance of the issue involved, I am penning my thoughts
and views independently.
BRIEF FACTS:—
2. A and N, deponents to this Application are parents of the petitioner-
Harish Rana (‘Harish’ for short). Harish was pursuing his [Link] from Punjab
University when he, unfortunately, fell down from the fourth floor of his
paying guest accommodation on 20.08.2013. He is in a permanent vegetative
state and has been suffering from quadriplegia for the last more than 12
years. In these proceedings, primarily the relief prayed for, as set out in the
application read with the written submissions, is as follows:—
“It is respectfully prayed that in view of the settled legal position laid
down by this Hon'ble Court in Common Cause v. Union of India (2018) as
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modified in 2023, the unanimous medical opinion of both the Primary and
Secondary Medical Boards confirming the Petitioner's irreversible
permanent vegetative state, the absence of any benefit from the continued
provision of clinically assisted nutrition and hydration, and the considered,
consistent and voluntary wishes of the Petitioner's parents and siblings
acting in his best interest, this Hon'ble Court may be pleased to permit the
withdrawal of clinically assisted nutrition and hydration to the Petitioner, in
accordance with an appropriate palliative care protocol and under medical
supervision at the Institute of Human Behaviour and Allied Sciences
(IHBAS), New Delhi, (Govt. of NCT of Delhi).”
Certain other reliefs consequential to the direction in Common Cause v.
Union of India1 have also been sought.
3. After the unfortunate fall, Harish was treated at the Postgraduate
Institute of Medical Education and Research, Chandigarh, from 21st to 27th
August, 2013, where he was managed conservatively, provided respiratory
support and underwent a tracheostomy (a surgically created hole through the
front of the neck and into the windpipe, through which a tube is placed to
provide a direct airway to the windpipe). He was advised feeding through a
Ryle's tube (nasogastric tube). Later, he received treatment at the Jai Prakash
Narayan Trauma Centre at the All India Institute of Medical Sciences, New
Delhi, as well as at the Dr. Ram Manohar Lohia Hospital, New Delhi and
Safdarjung Hospital, New Delhi between 2014 and 2017. For better nutrition,
a Percutaneous Endoscopic Gastrostomy tube (for short the “PEG tube”) was
also inserted.
4. It is undisputed that the petitioner suffered diffuse axonal injury
resulting in quadriplegia and is in a permanent vegetative state with 100%
permanent disability with complete sensorimotor dysfunction. The Application
states that Harish's condition is irreversible and incurable.
5. Harish has been entirely bedridden for the past over 12 years and has
undergone numerous hospitalizations including the last one being in May,
2025. He is unable to carry out any bodily functions on his own, is
catheterized and diapered.
6. Harish is artificially fed through a PEG tube, which is being replaced at a
hospital every two months. He suffers from bedsores which bleed
occasionally. Harish's hands make reflexive thrashing movements and, hence,
his hands have to be bound so that the PEG tube is not involuntarily removed.
He receives multiple medications, including anti-seizure drugs, on a regular
basis. Harish has no awareness of his surroundings.
WRIT PETITION BEFORE THE HIGH COURT:—
7. On 03.04.2024, on behalf of Harish, a Writ Petition was filed before the
High Court of Delhi, in substance, seeking a direction to constitute a Medical
Board to examine whether life support/life-sustaining treatment in the form of
PEG tube could be withdrawn. The prayer was based on the judgment of
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PEG tube and that a PEG tube is a form of a mechanical life support - CANH.
It is averred in the application that it is widely recognized, both medically and
legally, as a form of life-sustaining treatment. It is also submitted that in
Common Cause (supra), the Constitution Bench has recognized that feeding
tubes constitute a form of life support.
st
13. Reference was made to the 241 Report of the Law Commission of
India on passive euthanasia which recognized artificial feeding as a means of
life support. Reference was also made to the guidance for decision making on
CANH issued by the Royal College of Physicians in the United Kingdom to
reinforce the submission.
14. It is submitted that the High Court erred in reading the Common
Cause (supra) to hold that withdrawal of life sustaining treatment applied
only to terminally ill patients. Reference was made to Common Cause (supra)
to contend that the principle in Common Cause (supra) applies to individuals,
like Harish, who are in a permanent vegetative state. Reference was made to
the guidelines in Common Cause (supra), as modified in 2023, and the
procedure laid down for withholding and withdrawal of life-sustaining
treatment. Grievance was made that Primary and Secondary Medical Boards
in accordance with Common Cause (supra) guidelines have not been
implemented across most States. The requirement to nominate a medical
practitioner to the Secondary Medical Boards by the Chief Medical Officer has
not been complied with. It is averred that the Common Cause (supra)
guidelines required hospitals to intimate the Judicial Magistrate of the First
Class regarding the withholding and withdrawal of the life-sustaining
treatment but the Judicial Magistrates are not aware since no directions have
been received from the respective High Courts. It is in this background that
primarily a prayer for referring the petitioner for a Primary Medical Board was
made.
SALIENT FEATURES OF COMMON CAUSE (2018) 5 SCC 1:—
15. In Common Cause (supra), the Constitution Bench dealt with two
categories of cases - i) cases where an advance medical directive is left by the
patient; and ii) cases where there is no advance directive.
16. Admittedly, the case of Harish is a case where there is no advance
directive. It will be useful to extract the modified guidelines laid down in
Common Cause (supra) with regard to the category of cases where there is no
advance directive:—
Cases where there is No Advance Directive
Para 199.1 In cases where the patient is terminally ill and undergoing
prolonged treatment in respect of ailment which is incurable
or where there is no hope of being cured, the physician may
inform the hospital, which, in turn, shall constitute a
Primary Medical Board in the manner indicated earlier. The
Primary Medical Board shall discuss with the family
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and contractures were present in both lower limb and upper limb at
shoulder, elbow, wrist, fingers, knee, ankle and toes. His pupils were
normal in size but sluggish in reaction with no movement restriction. No
facial asymmetry present. Gag reflex present. He was having spasticity all
over both upper limb and lower limb with deep tendon exaggerated at
bicep, triceps, supinator, knee, ankle. Sensory and cerebellar examination
could not be accurately assessed due to his state. He had intact brainstem
function but due to his vegetative state he requires external support
for his feeding, bladder bowel and back. He needs constant
physiotherapy and tracheostomy tube care. The chances of his
recovery from this state is negligible.
Sd/- Sd/- Sd/- Sd/-
Neurologist Plastic Surgeon Anaesthesiologist Neuro Surgeon”
[Emphasis supplied]
21. When the matter came up for hearing on 11.12.2025, after noticing
report of the Primary Medical Board, this Court in accordance with the
judgment in Common Cause (supra), directed that a Secondary Medical Board
be constituted for the purpose of examination of Harish. In this regard, a
request was made to the Director, All India Institute of Medical Sciences, New
Delhi, to constitute a Secondary Medical Board, as referred to above, and
report by 17.12.2025.
22. At the hearing on 18.12.2025, after directing the report of the
Secondary Medical Board which had arrived since then to be given to the
counsel for the parties, this Court expressed a desire that the counsel for the
parties speak to the parents and other family members of Harish and give a
report. This Court also recorded that the Court would like to speak to the
parents personally.
23. In the Secondary Medical Report, the following conclusions were
recorded:—
“Based on the history and examination findings, the medical board is of
the following opinion: -
“a. Mr. Harish Rana has non-progressive, irreversible brain
damage following severe traumatic brain injury with diffuse
axonal injury. He fulfills the criteria of permanent vegetative
state (PVS) and has been in this state for the past 13 years.
b. The continued administration of clinically assisted nutrition
and hydration is required for the sustenance of his survival.
However, it may not aid in improving his medical condition or
repairing his underlying brain damage.”
[Emphasis supplied]
24. Pursuant to the order dated 18.12.2025, Ms. Aishwarya Bhati, learned
Additional Solicitor General, Ms. Rashmi Nandakumar, learned counsel for
Harish, met with the parents, brother, sister and brother-in-law of Harish.
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They submitted a Report. The relevant parts of the Report which are
comprehensive is set out hereinbelow:—
“3. At the beginning of our interaction, we requested the parents to
share their thoughts, wishes, and concerns in their own words. Mr. A, the
father of Mr. Harish Rana, told us that the family has been caring for their
son continuously for more than thirteen years and that they have done
everything within their human capacity during this period. He said that
their son no longer has a voice of his own, and therefore they feel it is their
moral responsibility to speak for him. He also expressed gratitude that
their concerns have been heard by this Hon'ble Court.
4. He told us that his son:
• Cannot speak, hear, see, recognise anyone, or eat on his own;
• Is entirely dependent on artificial life support, including a feeding
tube.
5. He shared his deep worry that both parents are now ageing, and
asked, with visible concern, who would take care of Mr. Harish if anything
were to happen to either of them. Mr. A expressed that their family's
earnest request is that the feeding tube/life sustaining medical support
may be withdrawn under proper medical supervision.
6. Mr. A also shared that while the Government authorities have
extended assistance over the years, the family has continuously faced
practical difficulties in day-to-day medical care, availability of skilled
personnel, and emergency medical support, despite their best efforts.
7. Mrs. N, the mother of Mr. Harish Rana, told us that they have tried
everything within their means for the last many years in the hope that
their son may recover, but there has been no improvement. She stated
that her son has not responded to touch or affection for the past 13 years.
8. She expressed that watching her son in this condition day and night
has become extremely painful, and that his continued existence in the
present condition causes him suffering which they are unable to alleviate.
She was clear in telling us that the decision being expressed is not
out of despair or pressure, but after prolonged thought, years of
care, and acceptance that there is no medical hope of recovery of
their son.
9. Upon being specifically asked whether she would feel regret or
emotional distress if her son were to pass away, she replied that
the greater distress is watching him suffer continuously in his
present state, and that she believes the family has done everything
possible.
Views of the Siblings of Mr. Harish Rana
10. The brother of Mr. Harish Rana - Mr. AR, told us that the family has
given more than their full capacity over the last 13 years, emotionally,
physically and financially. He shared that after exhaustive efforts and
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consultations, the family has reached this decision with great difficulty,
believing that continued medical intervention no longer serves any
meaningful purpose for his brother and only prolongs his agony.
11. Ms. BP, the sister of Mr. Harish Rana, told us that at the time of the
incident they were children, and today she herself is a mother. She shared
that the family has lived through years of hardship and that the
decision being taken is, in their belief, in the dignity and best
interests of their brother.
Observations
15. It is humbly submitted that throughout the interaction:
• The parents and family members appeared fully conscious,
coherent, and consistent in their statements;
• Their views were expressed calmly, repeatedly, and without any
sign of coercion, confusion, or external pressure;
• The decision articulated by them appears to be the result of long
contemplation over many years, and not a momentary or impulsive
reaction.”
[Emphasis supplied]
25. Further, as has been set out in the written submissions of Ms.
Aishwarya Bhati, learned Additional Solicitor General, a video conference was
conducted on 08.01.2026 and the meeting apart from the learned ASG was
attended by representatives of the Ministry of Health and Family Welfare, the
doctors who constituted the Secondary Medical Board Prof. (Dr.) DV, Prof.
(Dr.) NG, along with the concerned officials. During the course of the
meeting, the following points were deliberated upon:—
“(a) Present Medical Status of the Petitioner as per Clinical
Findings
(i) The petitioner has been in an irreversible permanent vegetative
state for the last 13 years;
(ii) There is no chance of improvement or repair of the medical
condition, rendering continued treatment futile;
(iii) There exists a clear, unequivocal and well-considered view of the
parents of the petitioner, who are also the primary caregivers, arrived
at after informed interaction and deliberation.”
26. In the order dated 13.01.2026, after interacting with the parents and
younger brother of Harish, the following observations were recorded:—
“6. All the three, i.e., the father, mother and younger brother, in one
voice and with lot of pain in their hearts, made a fervent appeal before us
to take necessary steps to ensure that Harish does not suffer any more.
What they tried to convey, in their own way, was that the medical
treatment imparted over a period of almost 12 years be discontinued and
nature be allowed to take its own course. According to them if the medical
treatment is not making any difference, then there is no point in
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continuing with such medical treatment and making Harish suffer for no
good reason.
7. They believe that Harish is suffering like anything, and he should be
relieved of all further pain and suffering.
8. They may not be aware of the legal nuances involved in this litigation.
However, they are very clear that in view of the two reports filed by the
Primary Board and the Secondary Board, respectively, there is no sign, or
rather no hope, for Harish to recover.
9. Ms. Bhati submitted that she had a talk with the team of doctors, i.e.,
the members of the Primary Board as well as the members of the
Secondary Board, and the doctors are of the opinion that the medical
treatment should be discontinued as the continuation of the same is not in
the best interest of Harish Rana, and that in the given circumstances,
nature should be allowed to take its own course. The doctors are also of the
opinion that Harish would remain in this permanent vegetative state (PVS)
for years to come, with the tubes inserted all over his body. However, he
would never be able to recover and live a normal life.
10. In such circumstances, referred to above, we should now hear the
matter further in the Court. We request the learned counsel appearing for
both parties to assist us on all issues.
11. Post the matter on Thursday, i.e., 15.1.2026, as the first item on the
Board.”
QUESTION FOR CONSIDERATION:
27. In view of the unanimous opinion of the Primary and Secondary
Medical Boards confirming Harish's irreversible permanent vegetative state;
the absence of any benefit from continued provision of CANH and keeping in
mind the non-medical considerations and after consultations with the family
members, what are the consequential directions that deserve to be made? In
answering this question, several incidental questions do arise which have
been discussed in the course of the judgment.
28. Heard Ms. Rashmi Nandakumar and Ms. Dhvani Mehta, ably assisted
by Ms. Shivani Mody, Ms. Anindita Mitra, Ms. Yashmita Pandey, Mr. Manish
Jain, Mr. Vikash Kumar Verma and Mr. Jugal Kishore Gupta, learned counsels
for the petitioner. Ms. Rashmi Nandakumar and her team, while reiterating
the averments in the application, have very ably presented the case for the
petitioner and filed detailed written submissions covering all aspects and have
referred to a large number of judgments, including judgments from other
countries.
29. Equally, Ms. Aishwarya Bhati, learned Additional Solicitor General,
conducted the case in a non-adversarial manner keeping in line with the
highest traditions of the office of the Additional Solicitor General. She was
ably assisted by Ms. Sushma Verma, Ms. Shreya Jain, Ms. Shivika Mehra, Mr.
B.L. Narasamma Shivani, Mr. Arun Kanwa, Mr. Sudarshan Lamba and Mr.
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35. This Court in Common Cause (supra) dealt with cases where patients
had made an advance medical directive and cases where there was no
advance medical directive. The present is a case where there is no advance
medical directive. Elaborate procedures were laid down, the essential parts of
which have been tabulated in the earlier part of this judgment. Para 198-199
of Common Cause (supra) which are crucial are set out herein below: -
“198. In our considered opinion, Advance Medical Directive would serve
as a fruitful means to facilitate the fructification of the sacrosanct right to
life with dignity. The said directive, we think, will dispel many a doubt at
the relevant time of need during the course of treatment of the patient.
That apart, it will strengthen the mind of the treating doctors as they will
be in a position to ensure, after being satisfied, that they are acting in a
lawful manner. We may hasten to add that Advance Medical Directive
cannot operate in abstraction. There has to be safeguards… …”
Safeguards and directions with regard to 1) Who can execute the Advance
Directive and how? 2) What should it contain? 3) Manner of recording and
preservation; 4) Persons who can give effect to? 5) Position when permission
is refused by the Medical Board; and 6) When Revocable and inapplicable
were all provided for.
“199. It is necessary to make it clear that there will be cases
where there is no Advance Directive. The said class of persons
cannot be alienated. In cases where there is no Advance Directive,
the procedure and safeguards are to be same as applied to cases
where Advance Directives are in existence and in addition there to,
the following procedure shall be followed…”
[Emphasis supplied]
The procedure set out has already been extracted hereinabove.
ESSENTIAL PREREQUISITES FOR CONSTITUION OF THE PRIMARY
MEDICAL BOARD AND CONSEQUENTLY THE SECONDARY MEDICAL
BOARD:—
36. The High Court, while dismissing the writ petition, clearly erred in
holding that Harish was not terminally ill and hence his case was not covered
by the four corners of the Common Cause (supra) judgment. Harish has been
in a vegetative state for the last more than 12 years and clinically assisted
nutrition and hydration is required for the sustenance of his survival. Even the
said life support/life-sustaining treatment would not aid in improving his
medical condition. This aspect now stands confirmed by the opinion of both
the Medical Boards.
37. Even though the case of Harish is a case of no advance medical
directive, however, while considering the correctness of the High Court finding
about the necessity of the patient being terminally ill, it will be useful to refer
to the relevant paragraphs from Common Cause (supra) which is said in the
context of persons with advance medical directive. Para 198.4.2 and 201.10
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42. Common Cause (supra) read with the modification order dated
24.01.2023, further holds that in the event the Primary Medical Board
certifies the option of withdrawal or refusal of further medical treatment, the
hospital shall then constitute a Secondary Medical Board. The Secondary
Medical Board should visit the hospital for physical examination of the patient
and after studying the medical papers may concur with the opinion of the
Primary Medical Board. In that event, intimation shall be given by the hospital
to the Judicial Magistrate First Class and the next of kin/next friend/guard of
the patient preferably within 48 hours of case being referred to it. In the case
of Harish, the Primary and the Secondary Medical Board have concurred with
each other.
43. Separate procedure has been set out where the Primary Medical Board
does not take a decision to the effect of withdrawing of medical treatment.
That aspect does not arise herein.
44. The High Court erred in rejecting the case of Harish on the ground that
he was not terminally ill without considering the alternative criterion, which
he clearly fulfilled.
Clinically Assisted Nutrition and Hydration (CANH) - Does it qualify as
medical treatment?
45. Common Cause (supra) has put this issue beyond any controversy.
Justice Sikri J. in his opinion while elucidating on the aspect of passive
Euthanasia had the following to observe.
“219. …..Passive euthanasia occurs when medical practitioners
do not provide life-sustaining treatment (i.e. treatment necessary to
keep a patient alive) or remove patients from life-sustaining
treatment. This could include disconnecting life support machines
or feeding tubes or not carrying out lifesaving operations or
providing life-extending drugs. In such cases, that omission by the
medical practitioner is not treated as the cause of death; instead, the
patient is understood to have died because of is underlying condition.”
[Emphasis supplied]
46. Equally, Justice D. Y. Chandrachud (as the learned Chief Justice then
was), in his concurring opinion, observed as under.
“359. Individuals who suffer from chronic disease or approach the end
of the span of natural life often lapse into terminal illness or a permanent
vegetative state. When a medical emergency leads to hospitalisation,
individuals in that condition are sometimes deprived of their right to refuse
unwanted medical treatment such as feeding through hydration
tubes or being kept on a ventilator and other life support equipment. Life
is prolonged artificially resulting in human suffering. The petition is
founded on the right of each individual to make an informed choice.
Documenting a wish in advance, not to be subjected to artificial means of
prolonging life, should the individual not be in a position later to
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regard are to be taken keeping in mind “the best interests of the patient”.
53. However, in considering as to what factors would constitute “best
interest”, courts have in the process of deciding individual cases laid down
certain essential factors, while cautioning that no single factor can be
determinative.
54. Lord Goff in Airedale NHS Trust (supra) while determining as to what
the right question to ask would be in this scenario observed as under:—
“The correct formulation of the question is of particular importance in a
case such as the present, where the patient is totally unconscious and
where there is no hope whatsoever of any amelioration of his condition. In
circumstances such as these, it may be difficult to say that it is in his best
interest that the treatment should be ended. But if the question is
asked, as in my opinion it should be, whether it is in his best
interest that treatment which has the effect of artificially
prolonging his life should be continued, that question can sensibly be
answered to the effect that his best interest no longer required that it
should be.”
[Emphasis supplied]
55. In Aintree University Hospitals NHS Foundation Trust v. James6, Lady
Hale J. observed as under:—
“39. The most that can be said, therefore, is that in considering
the best interests of this particular patient at this particular time,
decision-makers must look at his welfare in the widest sense, not
just medical but social and psychological; they must consider the
nature of the medical treatment in question, what it involves and its
prospects of success; they must consider what the outcome of that
treatment for the patient is likely to be; they must try and put
themselves in the place of the individual patient and ask what his
attitude to the treatment is or would be likely to be; and they must
consult others who are looking after him or interested in his
welfare, in particular for their view of what his attitude would be.”
7
56. In NHS Windsor and Maidenhead Clinical Commissioning Group v. SP ,
Lord Justice Williams of the Court of Protection quoting with approval the
judgment In Re A (A Child) 2016 EWCA 759 of the Court of Appeal [which, in
turn, relied on NHS Trust v. MB, [2006] EWHC 507 (Fam)] said:—
“In considering the balancing exercise to be conducted:
“1. The decision must be objective; not what the judge might make for
him or herself, for themselves or a child;
2. Best interest considerations cannot be mathematically weighed and
include all considerations, which include (non-exhaustively), medical,
emotional, sensory (pleasure, pain and suffering) and instinctive (the
human instinct to survive) considerations;
3. There is considerable weight or a strong presumption for the
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Sanskrit goes-
2
Mirko Bagaric, Euthanasia: Patient Autonomy v. the Public Good, 18 University of Tasmania Law
Review 149 (1999).
3
Jonathan Herring, Relational Autonomy and Family Law, 11 (Springer, New York, 2014).
4
D. Feldman, Civil Liberties and Human Rights in England and Wales, 2nd ed. (Oxford, 2002), 241.
5
Jonathan Herring and Jesse Wall, The Nature and Significance of the Right to Bodily Integrity, 76(3)
Cambridge Law Journal 577, 2017
6
Ibid at 581.
7
Para 198.1.1 of Common Cause 2018.
8
Para 198.1.2 of Common Cause 2018.
9
Para 198.1.3 of Common Cause 2018.
10
Para 198.1.4 of Common Cause 2018.
11
Para 198.2.1 of Common Cause 2018.
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12
Para 198.2.2 of Common Cause 2018.
13
Para 198.2.3 of Common Cause 2018
14
Para 198.2.4 of Common Cause 2018.
15
Para 198.2.5 of Common Cause 2018, as modified by Common Cause 2023.
16
Para 198.2.6 of Common Cause 2018.
17
Para 198.3.1 of Common Cause 2018, as modified by Common Cause 2023.
18
Para 198.3.2 of Common Cause 2018, as modified by Common Cause 2023.
19
Para 198.3.5 of Common Cause 2018, as modified by Common Cause 2023.
20
Para 198.3.6 of Common Cause 2018, as modified by Common Cause 2023.
21
Para 198.6.1 of Common Cause 2018.
22
Para 198.4.8 of Common Cause 2018.
23
Para 198.6.2 of Common Cause 2018.
24
Para 198.6.3 of Common Cause 2018.
25
Para 198.4.1 of Common Cause 2018, as modified by Common Cause 2023.
26
Para 198.4.2 of Common Cause 2018.
27
Para 198.4.3 of Common Cause 2018, as modified by Common Cause 2023.
28
Para 198.4.4 of Common Cause 2018, as modified by Common Cause 2023.
29
Para 198.4.5 of Common Cause 2018, as modified by Common Cause 2023.
30
Para 198.4.6 of Common Cause 2018, as modified by Common Cause 2023.
31
Para 198.4.7 of Common Cause 2018, as modified by Common Cause 2023.
32
Para 198.5.1 of Common Cause 2018, as modified by Common Cause 2023.
33
Para 198.5.2 of Common Cause 2018.
34
Para 198.5.3 of Common Cause 2018.
35
Para 198.6.4 of Common Cause 2018, as modified by Common Cause 2023.
36
Para 199.1 of Common Cause 2018, as modified by Common Cause 2023.
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37
Para 199.2 of Common Cause 2018, as modified by Common Cause 2023.
38
Para 199.4 of Common Cause 2018, as modified by Common Cause 2023.
39
ASPEN (American Society for Parental and Enteral Nutrition), What is Enteral Nutrition?, available
at: [Link] (last
visited on: 05.02.2026)
40
Ibid.
41
Bedfordshire Hospitals, NHS Foundation Trust, Having a PEG Tube Inserted, available at:
[Link]
(Last visited on : 10.02.2026); Cambridge University Hospitals, NHS Foundation Trust, Direct
(Surgically placed) Jejunostomy tube- information for parents/carers, available at:
[Link]
for-parentscarers/, (Last visited on: 10.02.2026)
42
Ibid.
43
National Collaborating Centre for Acute Care at The Royal College of Surgeons of England, Nutrition
Support for Adults Oral Nutrition Support, Enteral Tube Feeding and Parenteral Nutrition: Methods,
Evidence & Guidance, 2006, (Last updated: July 2017), available at:
[Link] (Last visited on:
06.02.2026)
44
Royal Berkshire NHS Foundation Trust, Percutaneous Endoscopic Gastrostomy (PEG) tube- what is
it?, (Last updated : February 2025), available at:
[Link] (Last visited on:
10.02.2026)
45
North Tees and Hartlepool, NHS Foundation Trust, Percutaneous Endoscopic Gastrostomy (PEG) :
A Patient leaflet for those having a PEG feeding tube inserted, (Last updated : 09.05.2025) available
at: [Link] (last visited on
10.02.2026); Kent Community Health, NHS Foundation Trust, Care of a PEG feeding tube, (Last
updated: on 05.02.2024), available at: [Link]
tube/, (Last visited on 10.02.2026);
46
American College of Gastroenterology, Enteral and Parenteral Nutrition, available at:
[Link] (Last visited on 05.02.2026)
47
Ibid.
48
Ibid.; Tees, Esk and Wear Valleys, NHS Foundation Trust, Enteral Feeding (PEG) Procedure
(Adults): Ref CLIN-0077-v3, available at [Link]
content/uploads/2021/12/[Link], (Last updated on: 08.04.2021),
(Last visited on 10.02.2026); Milton Keynes University Hospital, NHS Foundation Trust, Adult Enteral
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Tube Feeding Guidelines for Clients in their own Homes or Care Homes, (Last updated on August,
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49
Ibid.
50
North Tees and Hartlepool, NHS Foundation Trust, Percutaneous Endoscopic Gastrostomy (PEG): A
Patient leaflet for those having a PEG feeding tube inserted, (Last updated : 09.05.2025) available
at: [Link] (last visited on
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misplacement: continuing risk of death and severe harm, (Last updated on 14.02.2022), available
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51
Sandwell and West Birbingham Hospitals NHS Trust, Nasogastric tube feeding : Information and
advice for patients (2012), available at: [Link]
content/uploads/2012/07/[Link], (Last visited on 11.02.2026).
52
Indian Council of Medical Research, Definition of Terms used in Limitation of Treatment and
Providing Palliative Care at End of Life, published in March, 2018, available at:
[Link]
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[Link], (Last accessed on 06.02.2026)
53
Raj K Mani, Sushma Bhatnagar, et. al., Indian Society of Critical Care Medicine and Indian
Association of Palliative Care Expert Consensus and Position Statements for End-of-life and Palliative
Care in the Intensive Care Unit, published on 29.02.2024, available at:
[Link] (Last visited on 05.02.2026)
54
All India Institute of Medical Sciences, New Delhi, Guidelines for End of Life Care, Last updated on:
24.02.2021, available at: [Link] edu/images/pdf/notice/Final_EOLC%20Final%20AIIMS%
20(1).pdf, (last visited on: 05.02.2026)
55 th
Law Commission of India, 196 Report titled “Medical Treatment to Terminally Ill Patients
(Protection of Patients and Medical Practitioners” submitted in year 2006; Law Commission of India,
56
Shri Uttam Rao Dhikale, “Introduction of The Euthanasia (Regulation) Bill, 2002” in Lok Sabha on
21.02.2002; Shri C. K. Chandrappan, “Introduction of The Euthanasia (Permission and Regulation) Bill,
2007” in Lok Sabha on 24.07.2007; Shri Bhartruhari Mahtab, “Introduction of The Euthanasia
(Regulation) Bill, 2014” in Lok Sabha on 12.12.2014 and reintroduced on 26.07.2019.
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1
(2023) 14 SCC 131
2
138 [Link].2d 834
3
(1996) 2 SCC 648 : 1996 SCC (Cri) 374
4
(2011) 4 SCC 454 : (2011) 2 SCC (Civ) 280 : (2011) 2 SCC (Cri) 294
5
[1993] A.C. 799
6
2013 UKSC 67
7
2018 EWCOP 11
8
[2025] EWCOP 4 (T3)
9
[2004] EWHC 2247 (Fam)
§
2026 INSC 222
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